Doctor insights on:
Frontotemporal Dementia Life Expectancy
There are 3 types: Named for the brain areas that are affected, the frontal and temporal lobes, there are several different variants of this type of dementia. Some of these types of dementia have prominent problems with words - either slowly losing the ability to speak or losing the ability to makes sense when one talks. There is an impulsive, disinhibited personality variant also. ...Read more
It happens: At a much younger age and the course of the disease is rapidly progressive with symptoms such as memory loss, getting lost driving the same route you've been driving for a long time, decrease in personal hygiene, later there is complete memory loss of even the simplest way of functioning that the individual needs total care. The prognosis is poor, ...Read more
Yes: Pick disease and frontotemporal dementia is the same. ...Read more
Evolving: There is no effective treatment for these illnesses yet, though aggressive research is underway. UCSF has a website / center with good updates, and they also operate a clinical trials unit. ...Read more
Do you have to have behavioral problem if you have frontotemporal dementia? What are all the symptoms?
Please see the excellent review at:www. Mayoclinic. Com/health/frontotemporal-dementia/ds...
Frontotemporal dementia — comprehensive overview covers symptoms, treatment for this group of rare brain disorders. ...Read more
In BV Frontotemporal dementia, how long does aggressive behavior last throughout the span of the disease?
I hope this site can lead you to good information:
http://www. Theaftd. Org/understandingftd/disorders/bv-ftd
Best wishes! ...Read more
Mom has BV Frontotemporal dementia, gets btw. 3-6 UTIs a yr. Because of poor hygiene practice. How will this affect her kidneys and overall health?
It's not good: This can certainly be difficult and can get worse. Discuss her needs w/ her doctor (s) and slowly prepare for care decisions. Her need for more complete care might become urgent as time passes and planning can help. A problem w/ UTIs is that they plus the antibiotics can both cause problems for the brain and tat can worsen the dementia, etc. It's a vicious cycle and help will help. Best wishes! ...Read more
Is numbness in feet a symptom of progressing frontotemporal dementia? My mom is pretty inactive, overweight, and in abt. Mid-stage of ftd. Thank you.
No: No, foot numbness is not a symptom of fronto-temporal dementia. But being inactive and overweight can lead to diabetes, which can be associated with numb feet and a variety of other peripheral nerve problems. Hoping you can get your mother in to see her primary care physician for a checkup soon. ...Read more
Mom has mid-stage Frontotemporal dementia; having more freqent UTIs lately; started 3 yrs ago. Concerned the antibiotics will lose effectiveness soon.
UTI and abx: Why is she getting UTI, most patients there is a reason, and the reason can be personal or anatomic, is there an issue with her urogenital tract etc? Next issue is does she have true UTI or a urine is positive and she gets treated, are there cultures done, and often patients can be colonized may not therapy. A discussion with her MD may be needed and she may need to see a Inf disease doc. ...Read more
Dementia: Usually rule of thirds. 3 years mild, 3 years moderate and 3 years severe. ...Read more
Difficult to say: Signs that someone is nearing the end of life include weight loss, decreased speech (fewer than 6 words per day), need for medical interventions like IV fluids, frequent infections, not walking any longer and decreased interactivity with others. ...Read more
Ask doctor: Predicting life expectancy is very complicated and requires dozens or more pieces of information. Seek information from the persons health care team. ...Read more
F/u q: the dementia is wernicke-korsakoff syndrome (alcohol induced). Dx'd mid-2010, now late stage, what is development rate? Life expectancy?
No telling: It's hard to predict what course it will take. It will depend on a lot of factors such as general health, whether he continues alcohol consumption or not and comorbidities. People usually don't die from dementia itself but rather from other complications such as pneumonia, urinary tract infections, fractures, heart issues to name a few. ...Read more
My mom has hashimotos encephalopathy and since two months ago, she's getting worse. Dementia is advancing fast. Can it be reversible? Life expectancy?
This can be treated: If your mother's encephalopathy is truly from hashimotos (autoimmune hypothyroidism), then it is reversible with treatment. She needs to see a doctor, be tested, and be treated immediately. Severe hashimotos can be life-threatening and is very easily treatable with thyroid replacement pills. If it does not seem to be improving, then there is probably something else going on that needs diagnosis. ...Read more
What is the life expectancy for an 83 year old man with diagnoses of alzheimer's, parkinson's, and lewey bodies dementia?
Depends: Depending on how severe the above conditions are, and what other medical problems he has, it may be anywhere from 6 weeks to 5+ years. For your loved ones, particularly if they are mentally incapacitated, you would want to address end of life issues such as would they want to be maintained on a respirator, live in a nursing home etc. A social worker can help you with that. ...Read more
See below: It affects the frontal lobes (front) and temporal lobes (sides) of the brain. Onset is usually earlier than alzheimer's. Initial sx may involve changes in personality, judgement and social functioning. Pick's disease is one of the forms of the frontotemporal dementia. Here's a link to fuller description of the disease http://www. Alz. Org/alzheimers_disease_frontotemporal_dementia. Asp. ...Read more
Is frontaltemporal dementia hereditary? My mom has it, but no other relatives (dad, grandparents, aunts/uncles) have had it.
Can well be: Although precise hereditary data is lacking due to the variable nature of many ftd presentations, it is thought that 20% may be associated with a mutation affecting chromosome 17, and there may be at least 4 different allelic presentations. ...Read more
Diagnosed with early onset dementia at 36, what is life expectancy like? Any promising treatment to be ready in the next 5 years to delay?
Talk to your doctor: I recommend evaluation and treatment by a doctor who specializes in dementia. If you were my patient or family member, I would want a second opinion to confirm the diagnosis. Also, I would have to know the underlying cause of the dementia. There are many causes: Alzheimers, Vascular, mixed, alcohol, Lewy Body, Pick's, etc. The type and cause determines treatment and prognosis. My best wishes to u! ...Read more
Confusing: When getting dementia (and before diagnosis) day to day life can be very confusing. You forget things, and tasks which have been easier are now getting more difficult to get done. Decisions are harder to make. You can't think of words which are right on the tip of your tongue. You run into people you have met before, and cannot recall their names. All this can make for great anxiety and fear. ...Read more
Can be quite long: Remember, an individual is not an average. With dementia dx, a person under 70 averages 10.7 yrs but less if they are frail or ill. In a study of all ages, average survival after DX of alzheimers or dementia was 4.5 yrs. But, with good care and an otherwise strong, healthy body - life with dementia can exceed averages by a lot yet it definitely shortens average life expectancy. ...Read more
BUT, Rx Available!!: Dopamine meds for physical parkinsonism: Azilect (mao-b selective inhibitor) & sinemet +/- Comtan (stalevo (carbidopa and levodopa and entacapone) is both together). Tailor rx watching for side effects. Avoid Dopamine agonists (requip xl/mirapex er/neupro)--too side effect prone for lewy body patients. For dementia: namenda, paired with Exelon patch or aricept. For psychosis: seroquel or even clozaril. For excess sleepiness: nuvigil. ...Read more
Dementia and MS:
Some people with MS may have a large burden of lesions, either because they did not find a helpful treatment, or because they did not use treatment. There are times when MS can cause symptoms of dementia, although it is normally referred to as MS.
This is becoming less common with the greater number of treatments that are available. More than thirty years ago, this was more common. ...Read more
Dementia and MS:
Sometimes a long history of aggressive or poorly-managed MS can result in symptoms like dementia. Perhaps this could be called "MS dementia".
There is no association of MS and Alzheimers disease or other illnesses that are considered causes of dementia. These are distinct illnesses. ...Read more
7 to 8 years: Most studies indicate that the average life expectancy after being diagnoses with Lewy Body Dementia is 7 to 8 years. However, other individual factors such as overall health condition, nutrition and lifestyle can have a positive (or negative) effect on the life expectancy of these patients. ...Read more
What are some ways to help my mom enjoy life after diagnosis of dementia (bensons syndrome, Lewy bodies, cbd)?
I feel sorry for U: These r chronic progressive illnesses, just be ;loving and supportive and pray for her.. ...Read more
Understand disease: Neurodegenerative d/o featuring milder physical parkinsonism than parkinson's disease typically. (slowed movements, stiff/rigid muscles & posture, possibly resting tremor). But with early dementia, often with associated psychosis (visual hallucinations, delusional thoughts), excessive sleepiness, depression/anxiety/apathy, & rbd. Rbd = rem behavior d/o, causing acting-out of dreams in rem sleep. ...Read more
Is dementia hereditary disease? What cautions should be taken to patient in order to live a safe life?
Yes and no: If there is an illness that runs in your family you should speak to your doctor about it. There are many types of dementia. Some of them are genetically passed on while others aren't. The most common type of dementia is alzheimers disease and there are 2 forms. The early onset form is highly heritable. Alcoholic dementia is not inherited though a propensity for alcohol dependence can be. ...Read more
I have had anxiety and stress for most of my life. (i'm 38) do I have an increased chance of alzheimer's or dementia when I get older?
Not sure: Everything in life is better if you have a purpose & a goal. ...Read more
How rare is early onset dementia between age 30-40? Also life expediency after official diagnoses
I am 71; memory is good but I am so distracted and can't seem to finish a task. Is it sign of dementia? I don't get joy from much in life.
My friend's mother has dementia, is it compulsory for patient to take it's medicine life time and is it inheriting disease, from parent to child?
Good questions: You may not mean "compulsory", but it might be advised that an elder with dementia take effective medication until they die. The selection of drugs may change over time, but they are intended to delay disease progress and relieve some behavioral symptoms. As there is no cure, this is the best that can be done. Causation is complex, but heredity appears to play a role in the risk. ...Read more
For dementia pt especially what are end of life symptoms? Pt suddenly to be bed bound, robust appetite poor almost overnight, back on o2, hiccups.
Weight loss, day-nig: Generally, dementia is considered advanced when the pt experiences severe memory loss (can't recognize own family) & forgets how/when 2 eat, toileting, chew, & use basic body functions. This results in weight loss, incontinence, choking/gagging, not able to clear secretions, & loss of 24-hr cycle (days & nights get mixed). Read "The 36-hour day" by Nancy Mace & Peter Rabins- a gr8 descriptive book ...Read more
Mom's on hospice care, heart, blood clots, dementia. She is constipated, likely from meds. How to ease pain. Quality of life over quantity.
Yes: Yes they are still wise in many areas. Memory loss and confusion typically start with difficulty in forming new memories and gradually progress into other areas. Factual knowledge is retrieved in a different manner that personal memories. The degree of dementia determines which areas are most profoundly affected so a person can be wise but unable to identify familiar individuals. ...Read more
Probably: Don't become obese or develop type 2 diabetes, control your blood pressure & lipids, stay physically active & exercise & keep your brain active w/ work or hobbies, stay active socially. In other words, try to lead a healthy, happy life. Also, choose your parents wisely, there's a major hereditary component to alzheimer's. ...Read more
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