Doctor insights on:
Frontotemporal Dementia Life Expectancy
Variable: It is important to understand that the brain may dictate bodily function. If lisencephaly is part of miller-dieker syndrome death may occur before age 2, but sometimes infants may live longer. Remember if the patient cannot feed themselves and is bed-ridden-they are prone to pneumonia, infection-which may lead to an earlier death.Also important are other associated congenital abnormalities. ...Read more
Impossible to say: The life span depends on the severity of the diseases. Most patients with these diseases have a normal life expectancy. ...Read more
Eventually, yes: Lbd is not the same as alzheimers. However, there also is no cure, and it is progressive - either slow or rapid. So, it is terminal but an average life expectancy after DX is 5-7 yrs. The worst of it is that the symptoms are quite difficult to manage and few families can avoid residential care. Here's a link: http://www.Lbda.Org/content/role-palliative-and-hospice-care-in-lbd. Hope you find help! ...Read moreSee 1 more doctor answer
Stage 4 kidney dz: Stage 4 chronic kidney disease ( kidney function of 15-30%) occurs for many reasons. People with stable stage 4 disease can live fairly normal lives. However, if the kidney disease is progressing rapidly, it can be associated with more complications (anemia, bone disease, end stage renal disease with dialysis). It is important to follow closely with a nephrologist. ...Read more
Normal: In the bad old days, these people would live normal life spans but remain tiny and simple-minded, like children. Read about "cretins". To allow this to happen to a child today is a disaster, but a few million children in our world suffer from this just from iodine deficiency because of misplaced priorities. ...Read more
Depends: Without a full exam and review of medical records and history of infections secondary to CF would be remiss in trying to become an actuarial. Go see a pulmonologist and discuss the options and likely outcomes. ...Read more
Haven't seen numbers: Haven't seen any numbers on life expectancy of lennox-gastaut patients. Maybe nobody has collected and published that information. One website reported a 3%-7% mortality in patients over a 9 year period (that sounds like 1/2 % per year). The deaths were often due to accidents. In such disorders, if a person is watched and cared for closely, he can outlive parents, and die of other natural causes. ...Read more
Thorough Evaluation: Tests determine whether other medical problems could be causing dementia, such as anemia, brain tumor, chronic infection, drug and medication intoxication, severe depression, thyroid disease, vitamin deficiency. Neuropsychological testing is helpful to find out what parts of thinking have been affected, and to guide other tests. Tests also can include a head ct scan and MRI of the brain. ...Read moreSee 1 more doctor answer
Prognosis is Good.: Follicular lymphoma is a slow growing type of nhl which responds very well to treatment, but can rarely be cured. Despite this, the prognosis is generally very good and the median survival is about 8-15 years according to the nci. A recently published study from stanford has shown that since 1997 the median survival has increased to over 18 years. Life expectancy depends on the extent of disease. ...Read more
Stage ?: Depends on stage. There are two subsets of mantle cell nhl. One is an indolent subset in which 5 yr survival approaches 70-80%. The othe more aggressive subset has a prognosis of only 50/50 at three years. But stage also matters. ...Read more
BUT, Rx available: Dopamine meds for physical parkinsonism: Azilect (mao-b selective inhibitor) & sinemet +/- Comtan (stalevo (carbidopa and levodopa and entacapone) is both together). Tailor rx watching for side effects. Avoid Dopamine agonists (requip xl/mirapex er/neupro)--too side effect prone for lewy body patients. For dementia: namenda, paired with Exelon patch or aricept. For psychosis: seroquel or even clozaril. For excess sleepiness: nuvigil. ...Read moreSee 3 more doctor answers
Yes and no: If you a have a true familial form (generally this means multiple 1 st degree relatives have it. Usually happens at an earlier age) then yes the course of disease is similiar. If by familial you mean 1 relative had it, then no it is variable and progress differently. ...Read more
There are 3 types: Named for the brain areas that are affected, the frontal and temporal lobes, there are several different variants of this type of dementia. Some of these types of dementia have prominent problems with words - either slowly losing the ability to speak or losing the ability to makes sense when one talks. There is an impulsive, disinhibited personality variant also. ...Read moreSee 1 more doctor answer
It happens: at a much younger age and the course of the disease is rapidly progressive with symptoms such as memory loss, getting lost driving the same route you've been driving for a long time, decrease in personal hygiene , later there is complete memory loss of even the simplest way of functioning that the individual needs total care. The prognosis is poor, ...Read more
Do you have to have behavioral problem if you have frontotemporal dementia? What are all the symptoms?
In BV Frontotemporal dementia, how long does aggressive behavior last throughout the span of the disease?
Info: I hope this site can lead you to good information: http://www.theaftd.org/understandingftd/disorders/bv-ftd Best wishes! ...Read more
Mom has BV Frontotemporal dementia, gets btw. 3-6 UTIs a yr. because of poor hygiene practice. How will this affect her kidneys and overall health?
It's not good: This can certainly be difficult and can get worse. Discuss her needs w/ her doctor(s) and slowly prepare for care decisions. Her need for more complete care might become urgent as time passes and planning can help. A problem w/ UTIs is that they plus the antibiotics can both cause problems for the brain and tat can worsen the dementia, etc. It's a vicious cycle and help will help. Best wishes! ...Read more
Is numbness in feet a symptom of progressing frontotemporal dementia? My mom is pretty inactive, overweight, and in abt. Mid-stage of ftd. Thank you.
No: No, foot numbness is not a symptom of fronto-temporal dementia. But being inactive and overweight can lead to diabetes, which can be associated with numb feet and a variety of other peripheral nerve problems. Hoping you can get your mother in to see her primary care physician for a checkup soon. ...Read moreSee 1 more doctor answer
Mom has mid-stage Frontotemporal dementia; having more freqent UTIs lately; started 3 yrs ago. Concerned the antibiotics will lose effectiveness soon.
UTI and abx: Why is she getting UTI, most patients there is a reason, and the reason can be personal or anatomic, is there an issue with her urogenital tract etc? Next issue is does she have true UTI or a urine is positive and she gets treated, are there cultures done, and often patients can be colonized may not therapy. A discussion with her MD may be needed and she may need to see a Inf disease doc. ...Read more
Difficult to say: Signs that someone is nearing the end of life include weight loss, decreased speech (fewer than 6 words per day), need for medical interventions like IV fluids, frequent infections, not walking any longer and decreased interactivity with others. ...Read moreSee 1 more doctor answer
F/u q: the dementia is wernicke-korsakoff syndrome (alcohol induced). Dx'd mid-2010, now late stage, what is development rate? Life expectancy?
No telling: It's hard to predict what course it will take. It will depend on a lot of factors such as general health, whether he continues alcohol consumption or not and comorbidities. People usually don't die from dementia itself but rather from other complications such as pneumonia, urinary tract infections, fractures, heart issues to name a few. ...Read moreSee 1 more doctor answer
My mom has hashimotos encephalopathy and since two months ago, she's getting worse. Dementia is advancing fast. Can it be reversible? Life expectancy?
This can be treated: If your mother's encephalopathy is truly from hashimotos (autoimmune hypothyroidism), then it is reversible with treatment. She needs to see a doctor, be tested, and be treated immediately. Severe hashimotos can be life-threatening and is very easily treatable with thyroid replacement pills. If it does not seem to be improving, then there is probably something else going on that needs diagnosis. ...Read more
What is the life expectancy for an 83 year old man with diagnoses of alzheimer's, parkinson's, and lewey bodies dementia?
Depends: Depending on how severe the above conditions are, and what other medical problems he has, it may be anywhere from 6 weeks to 5+ years. For your loved ones, particularly if they are mentally incapacitated, you would want to address end of life issues such as would they want to be maintained on a respirator, live in a nursing home etc. A social worker can help you with that. ...Read moreSee 1 more doctor answer
See below: It affects the frontal lobes (front) and temporal lobes (sides) of the brain. Onset is usually earlier than alzheimer's. Initial sx may involve changes in personality, judgement and social functioning. Pick's disease is one of the forms of the frontotemporal dementia. Here's a link to fuller description of the disease http://www.Alz.Org/alzheimers_disease_frontotemporal_dementia.Asp. ...Read moreSee 2 more doctor answers
Is frontaltemporal dementia hereditary? My mom has it, but no other relatives (dad, grandparents, aunts/uncles) have had it.
Diagnosed with early onset dementia at 36, what is life expectancy like? Any promising treatment to be ready in the next 5 years to delay?
Talk to your doctor : I recommend evaluation and treatment by a doctor who specializes in dementia. If you were my patient or family member, I would want a second opinion to confirm the diagnosis. Also, I would have to know the underlying cause of the dementia. There are many causes: Alzheimers, Vascular, mixed, alcohol, Lewy Body, Pick's, etc. The type and cause determines treatment and prognosis. My best wishes to u! ...Read more
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