Doctor insights on:
Fibrous Dysplasia Prognosis
Fibrous dysplasia: Fd is not hereditary. We did not get fd from our parents and we cannot pass it on to our children. Fd is caused by a mutation that occurs sometime during development of a baby while it is still in the mother's uterus. If the mutation occurs early in development, many tissues may be affected. If it occurs late in development, very few tissues may have the mutation. ...Read more
Some info: Fibrous dysplasia, bone disorder, which scar-like (fibrous) tissue develops in place of normal bone. As bone grows, softer, fibrous tissue expands, weakening bone with resultant deformity and susceptibility to fracture. One or more bones involved. Severe deformity of facial bones can lead to loss of vision and hearing loss.Albrights syndrome, affecting multiple bones, associated endocrine disorder. ...Read more
Orthopedist?: If you are referring to fibrous dysplasia of the bone then you need a bone dr or orthopedist. State your problem and a dr will respond ...Read more
Depends: Depends on bone affected with fibrous dysplasia. The bone overgrows but is less strong than normal bone. Fibrous dysplasia involving hip and proximal femur would be easily fractured and require sometimes surgery for healing. Fibrous dysplasia involving finger, rib, or forearm bone would be less hazardous. ...Read more
It depends: It likely will depending on the location of the bone affected. Give us more details of the location and the degree of impairment, if any. ...Read more
Fibrous dysplasia: Is a genetic disorder characterized by abnormal bone development and increased risk of fractures. Fortunately, only one bone is involved in most cases and symptoms usually present in childhood. In rare cases it is associated with hormonal imbalances. Complications are specific for which particular bone (s) are affected. An orthopedist should be part of your healthcare team. ...Read more
What do you suggest if my son was just diagnosed with fibrous dysplasia. Can anyone help me understand this disease.?
Bone problem: Fibrous dysplasia is an abnormal bone growth where normal bone is replaced with fibrous bone tissue. Fibrous dysplasia causes abnormal growth or swelling of bone. Fibrous dysplasia can occur in any part of the skeleton but the bones of the skull, thigh, shin, ribs, upper arm and pelvis are most commonly affected. Fibrous dysplasia is very rare, no known cure. Fibrous dysplasia is not cancer ...Read more
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Mild fibrous dysplasia discovered incidentally and with no signs or symptoms, little risk of developing deformity or fracturing bone. Osteoporosis medications may help strengthen fibrous bone. Surgery may correct deformity
or difference in limb lengths, help heal fracture, or
remove affected area of bone that's causing you difficulty. ...Read more
No: Fibrous dysplasia will not affect your ability of have a baby nor will the baby inherit the fibrous dysplasia. ...Read more
Asymmetry: Fibrous dysplasia of mandible usually not prone to fracture. However overgrowth of bone can cause some disfigurement or asymmetry. ...Read more
Mono more common: Fibrous dysplasia nonheritable disease in which abnormal fibrous tissue develops in place of normal bone. Abnormalities may involve a single bone (monostotic form; 70% of cases) or many bones (polyostotic form; 30% of cases). Fibrous dysplasia represents five percent of bone tumors. ...Read more
I have a few of Bilateral Axillary Lymph Nodes. Is it a serious medical condition? Also I have large of fibrous dysplasia whole 7th rib.
Relax: Everybody has axillary lymph nodes. They're your friends. If they're not preposterously enlarged, rock-hard, fixed to the bone, or draining something suspicious, they're best ignored. Any dermatitis on your hands can make them big. Fibrous dysplasia is like a birthmark except it's in bone. It also is a non-problem except in a few rare syndromes -- your other ribs will protect this one. ...Read more
If fibrous dysplasia on scull was accidentally found at the age of 54 what treatment should a person get is there a progression on that condition what kind if specialist to see?
Neurosurgeon: Skull based problems are typically seen and treated by neurosurgeons. That being said, fibrous dysphasia is a benign condition and likely would not need any treatment at all. Don't hesitate to be seen and discuss directly. ...Read more
Probably not: Most cases have little or no symptoms. Even if there is pain, it can usually be controlled with medications. I would think that at age 23 disability would be the last thing you would want. ...Read more
Can macune albright syndrome from fibrous dysplasia in my left femur cause problems with ttc and hormonal imbalances?
Albright syndrome: Yes. This syndrome affect harmones. Precocious puberty is oftenly associated with this syndrome. ...Read more
My son has been diagnosed with fibrous dysplasia in the iliac. He is 32 and very physically fit. Would it help for him to take Algae Cal?
My 4 yr old son's rt. Upper tibia MRI gives a probable diagnosis of osteo-fibrous dysplasia and not a tumor. What is osteo-fibrous dysplasia?
Ossifying fibroma, also known as osteofibrous dysplasia, is a benign fibrous tumor with local aggressive behavior. Ossifying fibroma does not metastasize.
It's very rare. I'd make sure that the people making that diagnosis really know what they are talking about and would consider a 2nd opinion if you're not already seeing a bone tumor expert. ...Read more
Fibrous dysplasia involving clivus on CT report. Chronic pain/33y f/ cushing's disease. Can fd be all over body too? Neuro said fd report was normal?
Rarely.: Fibrous dysplasia very rarely involves the entire skeleton. Usually one or several bones are affected. ...Read more
I am having fibrous dysplasia in right temporal bone. Do I need to go for surgery. Somebody told that the bone becomes weak and fractures.
Symptoms?: In the skull especially, a pathological fracture from temporal-bone fibrous dysplasia is unlikely -- it's not bearing your body weight. If it interferes with your hearing or produces a cosmetic problem, surgery will be available and can be individualized. Jama review selecting for the more difficult cases http://archotol. Jamanetwork. Com/article. Aspx? Articleid=482543. ...Read more
Neuro says fibrous dysplasia involving clivus on CT report normal from pit tumor surgery 4 years ago/ I read no known causes/ truth? Seek 2nd opinion?
Get second opinion: Your doctor should be able to facilitate a second opinion upon your request. ...Read more
Would my birth control pill (microgynon) have any impact on my fibrous dysplasia of the femur bone?
Fibrous dysplasia: Fibrous dysplasia is a localized bone disorder in which the cause is unclear it can have variable symptoms assoc with pain local deformity weak local bone it is not affected by oral contraceptives or other medicines u maybe prescribed in future. ...Read more
With fibrous dysplasia in my left femur and left pelvic bone would I need to get a csection during pregnancy instead of having vaginal birth?
Depends: Depending on the extent of involvement and type of limitation. ...Read more
I have mazabraud syndrome. Will fibrous bone dysplasia of the femoral neck cause permanent disability?
Varies.: The location, extent and progression of the dysplasia varies. BUT it occurs after the bones are already formed. The femoral neck is a relatively bad spot for it but it is ONE spot. So, there are limits on the effect of it in isolation. Furthermore the muscle myxoma's vary but since some become malignant they all have to be removed. ...Read more
What is the prognosis of RAEb1. Dad has 1% blast in peripheral blood, hb 7.5 while others like WBC and plts are normal. He has dysplasia in three line?
Guarded!: RAEB has variable prognosis. Your Dad needs to consult a specialist who is an expert in mDS. This specialist may place him on treatment depending on his Bone marrow cytogenetics test results. One drug that may help him (because his main problem is Anemia) is Revlimid (lenalidomide). Investigate this possibility and also may be useful to go to a major Cancer Center for advice as to how his MDS should be treated. ...Read more
Fibromuscular dysplasia hypertension im having stent procedure for narrowing arteries/disection. What is the prognoses please?
Mesothelioma biopsy says 'portions of fibrous tissue infiltrated by malignant cells forming nests. Tumor cells +'ve for CK7 and calretinin. Prognosis?
Marker not prognosis: CK7 and calretinin are used to verify that the tumor is mesothelial in origin (versus adenocarcinoma of the lung). It does not provide information about prognosis. Factors associated with pleural mesothelioma prognosis include: functional status, blood counts, histology (epithelial best vs fibrosarcomatous poorest), and tumor size (degree of involvement of pleural cavity). Several new trials. ...Read more
28 year-old woman was found during laparoscopy for endometriosis to have segmental areas of colon missing its musculature, and wonders about pro.....?
Segmental lack muscl: Segmental absence of colonic musculature is congenital and is usually diagnosed in childhood. It can be associated with constipation and also spontaneous perforation which is when it is diagnosed. Would follow up with colon surgeon, regarding the risk for perforation and whether prophylactic removal is warranted. ...Read more