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Doctor insights on: Encephalomyelitis Disseminata

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How does one get acute disseminated encephalomyelitis (adem)?

Trigger autoimmune: Adem is an autoimmune disease that is usually triggered by a preceding viral or bacterial infection. While there have been reports of adem following vaccinations, this is extremely unusual, and no overall increased risk has been found in wider ranging studies. Most importantly, the very real risk of the disease prevented by the vaccine is much higher than the theoretical risk of adem! ...Read more

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What is myalgic encephalomyelitis and what are its symptoms?

What is myalgic encephalomyelitis and what are its symptoms?

?myalgic: I have never heard the term "myalgic". The correct terminology is adem, acute demyelinating encephalomyelitis, which occurs mainly in children following an upper respiratory tract infection or vaccination. Fever, headache, imbalance, double vision, problems with speech and swallowing occur. Biggest concern maybe whether the episode is the onset on multiple sclerosis. ...Read more

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Are doctors in the us allowed to formally diagnose someone with myalgic encephalomyelitis, or do they have to use the diagnosis of chronic fatigue syndrome?

Are doctors in the us allowed to formally diagnose someone with myalgic encephalomyelitis, or do they have to use the diagnosis of chronic fatigue syndrome?

Yes: While most mds use the diagnosis "chronic fatigue syndrome, " there are many authorities who feel that myalgic enchephlomyelitis is a more accurate term for many of those with chronic fatigue. Doctors are totally allowed to use that diagnosis for those who qualify- the icd-9 code is 323.9. See http://www.Name-us.Org/defintionspages/definitionsarticles/2011%20consensus%20criteria.Pdf. ...Read more

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In bed 9 years. I have a disease called myalgic encephalomyelitis .its life threatening .no help .have u heard of it and know how I can save my life. ?

In bed 9 years. I have a disease called myalgic encephalomyelitis .its life threatening .no help .have u heard of it and know how I can save my life. ?

Chronic fatigue: That sounds like an important problem! But are you sure about the diagnosis? If you are sure, then we just need to find someone on here who is an expert in handling that condition. Problem is, they will want to be sure of the diagnosis too. So you have been in bed 9 years. Has anyone been looking after you during that time? There are certain things that would help regardless of the cause. ...Read more

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I've had numbness in my face and head for about 2 months and can't seem to get any answers as to the cause. I'm sure this couldn't be strokes, but could it be MS or myalgic encephalomyelitis?

I've had  numbness in my face  and  head for about 2 months and can't seem to get any answers as to the cause. I'm sure this couldn't be strokes, but could it be MS or myalgic encephalomyelitis?

5 th cranial N dz.: Is numbness on one side of face or both? Also in the scalp is the numbness involving entire scalp or it stops at ear, chin and vertex level (imaginary line) and half of scalp level. Face and half of scalp in the front are supplied by trigeminal nerve for sensation. Lesions from dm, ms, herpes zoster sarcoidosis, vasculitic condns, tumors of the nerve, nasopharynx tumour to be r/o. Need imaging- brain. ...Read more

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What treatment do you suggest, me diagnosed myalgic encephalomyelitis with constant react. Infect. Ebv, cpn, cmv, hhv, etc, myocarditis, tachycardia?

Some gentle advice..: You must have been diagnosed by an md/do. Your case sounds complicated. How does the md who diagnosed you want to treat you? If you want another opinion, see another doctor. That's your right. Answering a question like yours is explicitly not the purpose of this website. For better or worse, our bodies aren't 6-cylinder chevys. You goof with your car, you can always get another one. ...Read more

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Can myalgic encephalomyelitis be cured?

Can myalgic encephalomyelitis be cured?

ADEM: I am unfamiliar with "myalgic", but the disorder of acute demyelinating encephalomyelitis, is a condition in mainly children subsequent to upper repiratory infection or vaccination. Full recovery occurs in 70%, and treatment with steroids, plasmapheresis, ivig, or chemotherapy drugs has proven successful. ...Read more

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Are there any genetic links to make one prone to having acute disseminated encephalomyelitis? Why does this occur?

Are there any genetic links to make one prone to having acute disseminated encephalomyelitis? Why does this occur?

Susceptibility: Adem is classically a mono phasic illness in children following a viral infection or vaccination, and is considered a secondary autoimmune reaction to the inciting original problem. Unlikely to ever occur again, and does not represent initial ms. There are genetic susceptibilities to this disorder, but not a true hereditary disorder at all. ...Read more

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What is acute encephalomyelitis?

What is acute encephalomyelitis?

Brain inflammation: It does not yell us the cause- infectious, inflammatory, toxic. It involves change in mental status. ...Read more

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Can myalgic encephalomyelitis be cured?

ADEM: I am unfamiliar with "myalgic", but the disorder of acute demyelinating encephalomyelitis, is a condition in mainly children subsequent to upper repiratory infection or vaccination. Full recovery occurs in 70%, and treatment with steroids, plasmapheresis, ivig, or chemotherapy drugs has proven successful. ...Read more