Doctor insights on:
I was diagnose with "painful bladder syndrome" three years ago and I still have pain in elmiron (pentosan). What can I do?
Dietary adjustments: Although dietary modifications can help, interstitial cystitis can be difficult to control, and subject to recurrent symptoms. It is also important to make sure that other conditions which can cause this type of pain have been ruled out. This mainly refers to endometriosis, which can cause pelvic pain, painful intercourse as well. Check out http://www.Ichelp.Org/. ...Read moreSee 1 more doctor answer
What to do if I have interstitial disease, does taking more elmiron (pentosan) than I'm prescribed, a bad thing?
As prescribed: I think you are referring to interstitial cystitis. Take the dose that your urologist prescribed. Good luck. ...Read more
I have had ic for some time prescribed elmiron (pentosan) but to afraid to take ie side effects very scary?
Don't be afraid: I have treated hundreds of patients with the medication and the overwhelming majority do very well. The medication is very safe and effective. The downside is it is typically taken 3 times per day and it does not work fast. It will typically take 3 months to begin to be effective. Rarely I have seen patients with hair loss but it is typically seen as additional hair in the sink or brush. ...Read more
I have just been prescribed elmiron (pentosan). I have not been thoroughly assessed to see if I have ic, is this safe? I still don't think my doc. Is listening.
Safe..yes?necessary?: It might be safe but i would think "is it the right medication?". Elmiron (pentosan) has been shown to help but takes about 3 months before it starts helping with real ic. A lot of times it is used in conjunction with other medications and it is pretty pricey. For the assessment of a diagnosis of ic, need to have at least a urine evaluation, symptom evaluation, and bladder evaluation. ...Read moreSee 1 more doctor answer
How common is hair loss side effect in women taking elmiron, (pentosan) and will hair loss stop if drug is discontinued?
See answer: In the clinical trials leading to FDA approval of Elmiron (pentosan) for the treatment of Interstitial Cystitis, hair loss (alopecia) was self/reported by 4% of the ~2500 patients who took Elmiron (pentosan) for between 3 and 12 months. In my experience, I would estimate noticeable hair loss by the patient to be slightly higher and nearly always reversible upon stopping the medication. ...Read more
Few, but watch for..: ..Upset stomach, nausea, and loose stools. Headache has been reported as well. Some patients experience hair loss, which is temporary and will grow back when this drug is stopped. If you have the gastrointestinal symptoms, we recommend small meals, good mouth care, sucking on sugar-free candy, or chewing sugar-free gum. Elmiron (pentosan) is generally well tolerated by patients. ...Read more
Elmiron (pentosan) SE: Elmiron (pentosan) is a long term medication used for interstitial cystitis. Side effects are very uncommon. The most common side effects are gastrointestinal: rectal hemorrhage (6%), diarrhea (4%), nausea (4%), abdominal pain (2%), dyspepsia (2%). Hair loss occurs 6%. ...Read more
I need to take Elmiron (pentosan) and the cost is so high,, have no insurance. Most drugstores want accept coupons or discounts either.Do you have any answers.
A few thoughts: If you have no insurance, perhaps you can try and contact your State to see if they participate in the Accountable Care Act. Some pharmaceutical companies have compassionate aid for those who need their products but cannot afford them - contact the company for assistance. Also check with your local public health agency or charity hospital. Finally check the charity dealing with your illness. ...Read more