Doctor insights on:
Ehlers Danlos Syndrome Type 3 Hypermobility
What is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?
EDS-3 is formal Dx: Eds-3 is a formal diagnosis whereas the term double jointedness is a term used to describe someone with hyperlax joints. Hyperlaxity is a normal variant and is only worrisome if it results in pain or joint instability whereby the term is changed to patholaxity (pathologic joint laxity). ...Read more
Joints are very loos: The joints are hyper-extendible and you can bend the wrists backwards a lot. ...Read more
Could I have type 3 (hypermobility) ehlers danlos syndrome or hypermobility syndrome? My parents don't have eds.
Unlikely.: Ehlers danlos is an inherited condition, so if it doesn't run in your family, it's very unlikely that you have it. If your joints are unusually flexible you may just be more limber than normal. But if you are worried about it, see your doctor and find out for sure. ...Read more
Good Afternoon, First of all, I would like to ask you if you are familiar with Ehlers-Danlos Syndrome (hypermobility type)? I was diagnosed with hEDS in 2011 by Geneticist LaDonna Immken, M.D. here in Austin. Often I have questions and my PCP and other
Hypermobility: Ehlers-Danlos syndrome type III (EDS Type III, hypermobility type) typically presents with loose ligaments and flexible joints. This can cause joint pain after activity. The skin is not usually overly stretchy. Type III are not subject to the usual complications of more serious types of EDS. A normal lifestyle is expected. ...Read more
How would a physician differentiate between benign hypermobility and the hypermobile type of ehlers-danlos syndrome?
See details: Benign hypermobility is just what the term implies. It is mild hypermobility similar to the most benign form of ehlers-danlos. The most severe forms of eds are distinguished by marked hypermobility of joint, significant hyperelasticity of skin and the increased risk of rupture of intestines and the aorta. ...Read more
I have ehlers-danlos syndrome hypermobility type. My arches collapse, ankles roll in and knees go backwards. Could AFOs help stabilize my bendy joints?
Yes: There are many people afflicted with ehlers danlos who speak highly of smo (short AFO for feet) and other AFO to help stabilize. These are costly and a long project but certainly worth going to an orthotist to look in to. ...Read more
Pain clinic: Enroll in a pain clinic at a teaching hospital for best results. ...Read more
Yes: Ehlers-danlos syndrome causes hyper mobility. There are many other reasons and causes of hypermobility. Hyper mobility simply refers to an increased amount of motion in a joint from any cause. ...Read more
Difficult problem: Because of vascular bleeding it is difficult to give you a definitive answer. You are better off going to a pain clinic preferably at a teaching hospital where they can taylor make a pain medicine cocktail for you, since they would have more experience with your type of problem. ...Read more
Strengthen: Strengthening opposing muscle groups helps stabilize joints. Avoid concussive sporting activities such as tennis, but leap to activities suck as cycycling, ei. Stationary, or road (mtb) bike. But stabilizing your joints with my recommendations, which involved weight or machines is best. (machines are safeest, because your joints are tracked in a specific motion.) hypermobility causes arthritis. ...Read more
Hypermobility: Ehlers danlos syndrome does have hyperflexible joints - this does not mean you will an olympian. If you think you have ehlers danlos then see your doctor to get a confirmed diagnosis. ...Read more
Usually. Only: Severe disease affects intestinal vesselsGet a more detailed answer ›
Could there be any relationship between progressive bilateral spondylolysis and ehlers-danlos syndrome? Several potential symptoms of hypermobility.
Yes they could link:
However, the E-D syndrome is not diagnosed based on this one finding.
in the US, genetic medicine/ diagnostics could greatly help with this well-described syndrome. ...Read more
I'm FTM transgender. I want to have metoidioplasty in the future, but I have Ehlers-Danlos syndrome type 3. Could I still have the metoidioplasty?
Hi. If you undergo transgender surgery, you have the same risk as everyone for the surgery - plus muscle
recovery with EDS will be important post=operatively.
You might have some systemic symptoms that might last longer than most but may do just fine. Rest and give yourself ample time recovery after the surgery and good luck! Welcome to health tap, Dr. Ivy Fisher ...Read more
Do you think it's possible for Ehlers danlos syndrome type 3 to weaken tissues like the heart and be more suceptible to dilated cardiomyopathy etc?
Type 3- is more common and that is hypermobility syndrome has less chance of cardiac involvement like that seen in type4 ED
where there is problems with the wall of the arteries including aorta and cerebral vesseles
cardiac dialatation is less commonly seen
I hope this helps ...Read more
I'm feeling a strong pulse in my stomach. I have ehlers danlos syndrome type four and a hernia above my navel. Slight stomach pain. What is this???
Not well known: The inheritance pattern is variable. In the more common eds type3 (hypermobility type), the inheritance is autosomal dominant meaning 50% of offspring would be expected to have it. Rarer forms like the vascular type is less predictable. If you have a parent who died of aortic dissection, you should be checked yourself with an echocardiogram. ...Read more
Usually - one type: There are a variety of types as you note and most of the time this is the benign hypermobility type. It is genetic and you may have relatives also wiht it. Each type can have a variety of manifesations and so people with the same type can have different symptoms. Exercise is an improtant stabilizer and you need to be doing this. ...Read more
Spectrum of variety: Yes, it is possible to have several of the symptoms associated with eds and not have the formal syndrome. Many hyperlax individuals have severely loose joints (shoulder and knees are typical), yet they do not have formal eds. ...Read more
That would be: Highly unusual & unlikely, but, I suppose, not impossible. I couldn't find a case study of anyone with more than one type. ...Read more
Pregnancy with EDS: Most of the patients with eds tolerate pregnancy without any difficulty with normal pregnancy and birth. Except in eds type 4 it can be associated with severe maternal complications. Most of the time the decision is made to do a cesarian section. ...Read more
Hyperextensible skin: Most people with ehlers danlos syndrome have hyperexstensible skin. Requires evaluation by knowledgeable physician - eg - rheumatologist. ...Read more
See ednf. Org: Classic, previously type I & ii & hypermobility, previously type iii are connective tissue disorders with skin fragility, hyperelastic skin, easy bruisability & joint hypermobility. Autosomal dominant inheritance (50% chance). Occasionally assoc. With intellectual disability, also scoliosis, mitral valve prolapse, early loss of teeth, premature rupture of membranes, premature delivery. ...Read more
See geneticist..: If you haven't already seen a genetics doctor, you should to make sure you have been diagnosed correctly. If you do have ehlers-danlos syndrome, you should be checked out by an ophthalmologist (for possible displaced lenses), cardiologist (possible heart problems), and physical therapist (for strengthening muscles without injury). Preventative regular visits for these problems are recommended. ...Read more
No statistics: It is a rare disease in anyone. ...Read more
Ehlers Danlos: Ehlers Danlos syndrome (EDS) is a collection of genetic connective tissue disorders- characteristics include including hypermobile joints (joints that move in greater amounts than expected) and skin involvement, such as any of the following: soft, stretchy, saggy, too thin, easy bruising, easy wounding, poor wound healing and/or atrophic scaring. ...Read more
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