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Doctor insights on: Ehlers Danlos Syndrome Doctors That Specialize

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Will someone or will multiple Doctors explain to me what. Ehlers-Danlos Syndrome is? In a little.more detail? Send me links/videos,support groups. Plz

Will someone or will multiple Doctors explain to me what. Ehlers-Danlos Syndrome is? In a little.more detail? Send me links/videos,support groups. Plz

Genetic disease: om which the cartilege is funny. Double jointedness, often with falling apart joints.
The wiki is good.
also
http://www.ednf.org/
http://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/basics/definition/con-20033656 ...Read more

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How would a physician differentiate between benign hypermobility and the hypermobile type of ehlers-danlos syndrome?

How would a physician differentiate between benign hypermobility and the hypermobile type of ehlers-danlos syndrome?

See details: Benign hypermobility is just what the term implies. It is mild hypermobility similar to the most benign form of ehlers-danlos. The most severe forms of eds are distinguished by marked hypermobility of joint, significant hyperelasticity of skin and the increased risk of rupture of intestines and the aorta. ...Read more

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I have Ehlers-Danlos Syndrome and take chronic pain med's how do I get my doc to prescribe a med for the intense daily pain EG morphine? Thank you! :)

I have Ehlers-Danlos Syndrome and take chronic pain med's how do I get my doc to prescribe a med for the intense daily pain EG morphine? Thank you! :)

Chronic Pain: The treatment of chronic pain is complex and the best methods depend on the exact reason for your pain. Most of the time opioids such as morphine are NOT a good solution for chronic pain. Most patients build tolerance and can even become addicted. Speak with your doc who knows you best! Many times physical therapy and stretching help the most. ...Read more

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I have ehlers-danlos syndrome. Which medicines should I talk to my doctor about for my injuries or scars?

I have ehlers-danlos syndrome. Which medicines should I talk to my doctor about for my injuries or scars?

It depends: Most of the scars and injuries will heal but they will still remain as scars. They may not be strong scars.There are no fda label drugs to treat these and prevention is your best therapy. The better your muscle tone the better you can be protected. Please exercise. ...Read more

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Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.

ED Syndrome: This syndrome can have multiple symptoms, it is a connective tissue disorder which makes your skin and joints very flexible and somewhat weak. The vascular type is more worrysome, since it can cause dilatations of blood vessels that could eventually rupture. You should have a complete work up at a referral hospital and a local doctor should be able to control you according to your specific case. ...Read more

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What sort of disorder is ehlers-danlos syndrome (e.D.S.)?

What sort of disorder is ehlers-danlos syndrome (e.D.S.)?

Skin/joints stretch: In this disorder there is a deficiency of collagen in the body. Problems include skin hyperelasticity (very stretchy) and joint hypermobility ("double jointed"). Also those people affected have fragile skin and blood vessels. There are 6 forms of ehlers-danlos syndrome. ...Read more

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How common is ehlers-danlos syndrome?

How common is ehlers-danlos syndrome?

1 per 5,000: The combined incidence is estimate at one case per 5, 000 individuals. ...Read more

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How can you tell if you have ehlers danlos syndrome?

Hyperextensible skin: Most people with ehlers danlos syndrome have hyperexstensible skin. Requires evaluation by knowledgeable physician - eg - rheumatologist. ...Read more

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What are most common forms of ehlers danlos syndrome?

What are most common forms of ehlers danlos syndrome?

See ednf.org: Classic, previously type i & ii & hypermobility, previously type iii are connective tissue disorders with skin fragility, hyperelastic skin, easy bruisability & joint hypermobility. Autosomal dominant inheritance (50% chance). Occasionally assoc. With intellectual disability, also scoliosis, mitral valve prolapse, early loss of teeth, premature rupture of membranes, premature delivery. ...Read more

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What to do if I have ehlers danlos syndrome! please help!?

See geneticist..: If you haven't already seen a genetics doctor, you should to make sure you have been diagnosed correctly. If you do have ehlers-danlos syndrome, you should be checked out by an ophthalmologist (for possible displaced lenses), cardiologist (possible heart problems), and physical therapist (for strengthening muscles without injury). Preventative regular visits for these problems are recommended. ...Read more

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What is the definition or description of: Ehlers Danlos syndrome?

What is the definition or description of: Ehlers Danlos syndrome?

Ehlers Danlos: Ehlers Danlos syndrome (EDS) is a collection of genetic connective tissue disorders- characteristics include including hypermobile joints (joints that move in greater amounts than expected) and skin involvement, such as any of the following: soft, stretchy, saggy, too thin, easy bruising, easy wounding, poor wound healing and/or atrophic scaring. ...Read more

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What is ehlers-danlos syndrome (eds)?

"Ehlers–Danlos": Ehlers–danlos syndrome (also known as "cutis hyperelastica") is an inherited tissue disorder caused by a defect in the body's synthesis of collagen. Collagen in connective tissue helps tissues to resist deformation. In the skin, muscles, ligaments, blood vessels and organs, collagen plays a very significant role and with increased elasticity or "stretchiness" they may not work right. ...Read more

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How common is clubfoot in ehlers-danlos syndrome?

Ehlers danlos : It's not as common since ehlers danlos cause loose or laxity in your joints not tightness which occurs with club feet. ...Read more

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Is leukemia common in people with ehlers danlos syndrome?

Not really...: Both uncommon diseases and few reports of the same patient having both illnesses. ...Read more

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How do people inherit ehlers-danlos syndrome, vascular type?

How do people inherit ehlers-danlos syndrome, vascular type?

Not well known: The inheritance pattern is variable. In the more common eds type3 (hypermobility type), the inheritance is autosomal dominant meaning 50% of offspring would be expected to have it. Rarer forms like the vascular type is less predictable. If you have a parent who died of aortic dissection, you should be checked yourself with an echocardiogram. ...Read more

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I need a specialist for Ehlers Danlos syndrome for adults. Suggestions?

I need a specialist for Ehlers Danlos syndrome for adults. Suggestions?

A few different docs: Medical genetics physician may be helpful in diagnosis if there is concern about an EDS type other than type 3. A physical medicine and rehabilitation physician would be best and helping to coordinate a plan for functional recovery. A rheumatologist would be helpful to look for other causes of joint pain such as an inflammatory disorder. ...Read more

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Is it too risky for a woman with ehlers-danlos syndrome to have a baby?

Is it too risky for a woman with ehlers-danlos syndrome to have a baby?

More info needed: Most all syndromes vary in degree so a blanket statement of yes or no regarding pregnancy is presumptious you should get consultation from a perinatalogist before you quit effective birth control. ...Read more

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Can you tell me the difference between ehlers-danlos syndrome and hypermobility?

Yes: Ehlers-danlos syndrome causes hyper mobility. There are many other reasons and causes of hypermobility. Hyper mobility simply refers to an increased amount of motion in a joint from any cause. ...Read more

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I am 18 years old and I have ehlers danlos syndrome. How can I keep myself healthy?

You are healthy: There are several variations of ehlers-danlos syndrome and a similar disorder called benign hyper mobility syndrome. The most common types are certainly compatible with a normal life. You can protect your joints by maintaining a normal weight and keeping the supporting muscles strong. ...Read more

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Should I get checked for ehlers-danlos syndrome if my elbows can bend back really far?

Not if no other sign: Some persons have hyperextensible elbows (going to more than 180 degrees) with no other hyperextensible joints and no other signs of ehlers-danlos syndrome (eds). Of the many types of eds some are clinically benign. If your elbows are not problematic, there is no need to check. ...Read more

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What is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?

What is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?

EDS-3 is formal Dx: Eds-3 is a formal diagnosis whereas the term double jointedness is a term used to describe someone with hyperlax joints. Hyperlaxity is a normal variant and is only worrisome if it results in pain or joint instability whereby the term is changed to patholaxity (pathologic joint laxity). ...Read more

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At what age are people typically diagnosed with vascular Ehlers-Danlos syndrome? Unlikely at age 35?

At what age are people typically diagnosed with vascular Ehlers-Danlos syndrome? Unlikely at age 35?

Not unlikely: at all !! The syndrome can vary in its various abnormalities so that it can be Diagnosed in childhood and in milder cases later in life..the answer really is ALL AGE GROUPS!
Hope this is helpful
Dr Z ...Read more

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If someone suspects having any kind of ehlers-danlos syndrome including hypermobile, can they go to a geneticist for diagnosis?

If someone suspects having any kind of ehlers-danlos syndrome including hypermobile, can they go to a geneticist for diagnosis?

Yes: A good generalist can order the genetic tests. There are several types and if you have one you will need to talk to a genetic counselor. ...Read more

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Why do people with ehlers danlos syndrome have problems with anaesthesia? Wake up from general and local doesn't seem to work. Ty

Why do people with ehlers danlos syndrome have problems with anaesthesia? Wake up from general and local doesn't seem to work. Ty

Probably unrelated: There is no evidence that individuals with EDS have any increased difficulty with sedation related to anesthesia. There are however risks associated with physical manipulation for intubation related to joint laxity as well as vascular or tracheal injury depending on the type and severity of EDS. ...Read more

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I can pop my shoulders in and out of their sockets it's not painful, and I have lots of fainting episodes could I have ehlers danlos syndrome?

I can pop my shoulders in and out of their sockets it's not painful, and I have lots of fainting episodes could I have ehlers danlos syndrome?

Possibly: Are you really loose-jointed or is it joint your shoulders? A rheumatologist should be able to answer your question. If eds is present, the fainting would be unrelated. ...Read more