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Doctor insights on: Ehlers Danlos Syndrome And Lupus

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How can I manage my skin from affects of lupus and ehlers danlos syndrome?

How can I manage my skin from affects of lupus and ehlers danlos syndrome?

Lupus Management: Only a dermatologist or rheumatologist can manage lupus and ehlers-danlos syndrome. Seek one out . . . Do it soon! ...Read more

Dr. Lois Freisleben-Cook
344 doctors shared insights

Ehlers Danlos Syndrome (Definition)

Ehlers-Danlos Syndrome is a medical condition characterized by hypermobile joints, very elastic or stretchy skin that bruises easily, and other abnormalities. It is caused by defects in collagen, an important structural protein that is responsible for the strength of many different types of tissue including skin, ...Read more


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What sort of disorder is ehlers-danlos syndrome (e.D.S.)?

What sort of disorder is ehlers-danlos syndrome (e.D.S.)?

Skin/joints stretch: In this disorder there is a deficiency of collagen in the body. Problems include skin hyperelasticity (very stretchy) and joint hypermobility ("double jointed"). Also those people affected have fragile skin and blood vessels. There are 6 forms of ehlers-danlos syndrome. ...Read more

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Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.

Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.

ED Syndrome: This syndrome can have multiple symptoms, it is a connective tissue disorder which makes your skin and joints very flexible and somewhat weak. The vascular type is more worrysome, since it can cause dilatations of blood vessels that could eventually rupture. You should have a complete work up at a referral hospital and a local doctor should be able to control you according to your specific case. ...Read more

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How common is ehlers-danlos syndrome?

How common is ehlers-danlos syndrome?

1 per 5,000: The combined incidence is estimate at one case per 5, 000 individuals. ...Read more

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How can you tell if you have ehlers danlos syndrome?

How can you tell if you have ehlers danlos syndrome?

Hyperextensible skin: Most people with ehlers danlos syndrome have hyperexstensible skin. Requires evaluation by knowledgeable physician - eg - rheumatologist. ...Read more

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What are most common forms of ehlers danlos syndrome?

What are most common forms of ehlers danlos syndrome?

See ednf.org: Classic, previously type i & ii & hypermobility, previously type iii are connective tissue disorders with skin fragility, hyperelastic skin, easy bruisability & joint hypermobility. Autosomal dominant inheritance (50% chance). Occasionally assoc. With intellectual disability, also scoliosis, mitral valve prolapse, early loss of teeth, premature rupture of membranes, premature delivery. ...Read more

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What to do if I have ehlers danlos syndrome! please help!?

See geneticist..: If you haven't already seen a genetics doctor, you should to make sure you have been diagnosed correctly. If you do have ehlers-danlos syndrome, you should be checked out by an ophthalmologist (for possible displaced lenses), cardiologist (possible heart problems), and physical therapist (for strengthening muscles without injury). Preventative regular visits for these problems are recommended. ...Read more

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How common is clubfoot in ehlers-danlos syndrome?

Ehlers danlos : It's not as common since ehlers danlos cause loose or laxity in your joints not tightness which occurs with club feet. ...Read more

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