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Doctor insights on: Ehlers Danlos Hypermobility Syndrome

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I have POTS syndrome & hypermobility syndrome. All of muscles are weak. I have trouble pooping, controlling my bladder and bowel. No doctor knows why.

I have POTS syndrome & hypermobility syndrome. All of muscles are weak. I have trouble pooping, controlling my bladder and bowel. No doctor knows why.

Dysautonomia: 18y fem has "Hypermobility Syndrome, weak muscles, POTS, difficulty controlling bladder/bowel". Autonomic nerves are tethered at vertebral foramina & subluxing joints, especially sacroiliac joints, impinge these nerves arousing neural stimuli of smooth muscles of arteries, intestine & bladder. Dysautonomic effects manifest as patient describes. Many of these patients go on to develop Fibromyalgia. ...Read more

Dr. Laurence Badgley
224 Doctors shared insights

Hypermobility Syndrome (Definition)

Described as a condition where joints are able to move loosely beyond their ...Read more


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I have ehlers-danlos hypermobility syndrome. What should I do?

I have ehlers-danlos hypermobility syndrome. What should I do?

Maintain muscle tone: Muscle tone and strength may provide adequate dynamic stabilization across your loosest joints affected by eds. Joints commonly affected include the shoulder, and knee. Strengthening the musculature around those joints can serve you well and help prevent the need to progress to a surgical remedy to stabilize the lax joints. ...Read more

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Could I have type 3 (hypermobility) ehlers danlos syndrome or hypermobility syndrome? My parents don't have eds.

Could I have type 3 (hypermobility) ehlers danlos syndrome or hypermobility syndrome? My parents don't have eds.

Unlikely.: Ehlers danlos is an inherited condition, so if it doesn't run in your family, it's very unlikely that you have it. If your joints are unusually flexible you may just be more limber than normal. But if you are worried about it, see your doctor and find out for sure. ...Read more

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What is the difference between ehlers-danlos syndrome and joint hypermobility syndrome?

What is the difference between ehlers-danlos syndrome and joint hypermobility syndrome?

EDS-HT = JHS: EDS-hypermobility type (EDS-HT) is considered synonymous with JHS. Do not confuse these with other types of EDS as they have very different presentations including more involvement of skin, vascular structures, scleral fragility, or scoliosis. ...Read more

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What can someone do for hypermobility syndrome / ehlers-danlos syndrome?

What can someone do for hypermobility syndrome / ehlers-danlos syndrome?

Strengthen: Strengthening opposing muscle groups helps stabilize joints. Avoid concussive sporting activities such as tennis, but leap to activities suck as cycycling, ei. Stationary, or road (mtb) bike. But stabilizing your joints with my recommendations, which involved weight or machines is best. (machines are safeest, because your joints are tracked in a specific motion.) hypermobility causes arthritis. ...Read more

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Is there any pain relief from ehlers danlos syndrome hypermobility?

Is there any pain relief from ehlers danlos syndrome hypermobility?

Difficult problem: Because of vascular bleeding it is difficult to give you a definitive answer. You are better off going to a pain clinic preferably at a teaching hospital where they can taylor make a pain medicine cocktail for you, since they would have more experience with your type of problem. ...Read more

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What are the signs of Ehlers Danlos Syndrome Hypermobility Type in a young child?

What are the signs of Ehlers Danlos Syndrome Hypermobility Type in a young child?

Joints are very loos: The joints are hyper-extendible and you can bend the wrists backwards a lot. ...Read more

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What is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?

What is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?

EDS-3 is formal Dx: Eds-3 is a formal diagnosis whereas the term double jointedness is a term used to describe someone with hyperlax joints. Hyperlaxity is a normal variant and is only worrisome if it results in pain or joint instability whereby the term is changed to patholaxity (pathologic joint laxity). ...Read more

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Good Afternoon, First of all, I would like to ask you if you are familiar with Ehlers-Danlos Syndrome (hypermobility type)? I was diagnosed with hEDS in 2011 by Geneticist LaDonna Immken, M.D. here in Austin. Often I have questions and my PCP and other

Good Afternoon, First of all, I would like to ask you if you are familiar with Ehlers-Danlos Syndrome (hypermobility type)? I was diagnosed with hEDS in 2011 by Geneticist LaDonna Immken, M.D. here in Austin. Often I have questions and my PCP and other

Hypermobility: Ehlers-Danlos syndrome type III (EDS Type III, hypermobility type) typically presents with loose ligaments and flexible joints. This can cause joint pain after activity. The skin is not usually overly stretchy. Type III are not subject to the usual complications of more serious types of EDS. A normal lifestyle is expected. ...Read more

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I have ehlers-danlos syndrome hypermobility type. My arches collapse, ankles roll in and knees go backwards. Could AFOs help stabilize my bendy joints?

I have ehlers-danlos syndrome hypermobility type. My arches collapse, ankles roll in and knees go backwards. Could AFOs help stabilize my bendy joints?

Yes: There are many people afflicted with ehlers danlos who speak highly of smo (short AFO for feet) and other AFO to help stabilize. These are costly and a long project but certainly worth going to an orthotist to look in to. ...Read more

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Can you tell me the difference between ehlers-danlos syndrome and hypermobility?

Can you tell me the difference between ehlers-danlos syndrome and hypermobility?

Yes: Ehlers-danlos syndrome causes hyper mobility. There are many other reasons and causes of hypermobility. Hyper mobility simply refers to an increased amount of motion in a joint from any cause. ...Read more

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Am going to be olympian due to hypermobility. Does this sound like ehlers-danlos syndrome?

Am going to be olympian due to hypermobility. Does this sound like ehlers-danlos syndrome?

Hypermobility: Ehlers danlos syndrome does have hyperflexible joints - this does not mean you will an olympian. If you think you have ehlers danlos then see your doctor to get a confirmed diagnosis. ...Read more

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Could there be any relationship between progressive bilateral spondylolysis and ehlers-danlos syndrome? Several potential symptoms of hypermobility.

Could there be any relationship between progressive bilateral spondylolysis and ehlers-danlos syndrome? Several potential symptoms of hypermobility.

Yes they could link: However, the E-D syndrome is not diagnosed based on this one finding.
in the US, genetic medicine/ diagnostics could greatly help with this well-described syndrome. ...Read more

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How would a physician differentiate between benign hypermobility and the hypermobile type of ehlers-danlos syndrome?

How would a physician differentiate between benign hypermobility and the hypermobile type of ehlers-danlos syndrome?

See details: Benign hypermobility is just what the term implies. It is mild hypermobility similar to the most benign form of ehlers-danlos. The most severe forms of eds are distinguished by marked hypermobility of joint, significant hyperelasticity of skin and the increased risk of rupture of intestines and the aorta. ...Read more

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With ehlers danlos hypermobility and postural orthostatic tachycardia syndrome is there an increased risk of blood clots since blood can pool in limbs?

With ehlers danlos hypermobility and postural orthostatic tachycardia syndrome is there an increased risk of blood clots since blood can pool in limbs?

Yes: Not due to pooling of blood. There is one case report. An unusual presentation of ehlers-danlos syndrome vascular type with deep vein thrombosis: a case for multidisciplinary management.
Authors
lipinski mj, lipinski se, kripalani s, friesen ld, uthlaut bs, braddock sr.
Journal
am j med genet a. 2009 feb 15;149a (4):698-701. ...Read more

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I have ehlers danlos hypermobility. I have almost every symtoms that is listed for hypermobility. What arethe chances of having vascular eds symptoms?

I have ehlers danlos hypermobility. I have almost every symtoms that is listed for hypermobility. What arethe chances of having vascular eds symptoms?

Possible: Certainly possible. Easy to determine. See your doctor for proper evaluation and diagnosis. Particularly if you have excessive fatigue, shortness of breath, chest pain or exercise intolerance. ...Read more

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Does ehlers danlos hypermobility and pots and GERD caused by eds have flare ups? Better for a while then worse for a while?

Does ehlers danlos hypermobility and pots and GERD caused by eds have flare ups? Better for a while then worse for a while?

Explain abbreviation: Explain pots abbreviation? Gerd can certainly have flareups. Ehlers danlos has a myiad of symptoms. Hypermobility-related flares are typically activity-related. ...Read more

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I have ehlers danlos hypermobility or classical. Vascular is ruled out. What are the chances of vascular complications like brain aneurism or others?

I have ehlers danlos hypermobility or classical. Vascular is ruled out. What are the chances of vascular complications like brain aneurism or others?

The obvious secret: With EDS you cannot always prevent brain aneurysms, but there some things you can do to reduce your risk. No smoking, no drinking, healthy diet, regular exercise, manage your stress and get screened more often. Take a good care. ...Read more

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I have: Hypermobility, joint pain, multiple joint injuries, and I have had 7 surgeries which have healed very poorly. Could this be Ehlers- Danlos?

I have: Hypermobility, joint pain, multiple joint injuries, and I have had 7 surgeries which have healed very poorly. Could this be Ehlers- Danlos?

Sounds like it: Yes, you most likely have Ehler's Danlos syndrome. Did none of your surgeons suggest this? Unfortunately, it's a genetic condition, so there's not much that can be done, therapeutically. ...Read more

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I have hypermobility Ehlers danlos. I'm in constant pain in multiple joints. PT doesn't help. I've been to rheumatologists and others. Specialists? Plz

I have hypermobility Ehlers danlos. I'm in constant pain in multiple joints. PT doesn't help. I've been to rheumatologists and others. Specialists? Plz

Fibromyalgia: 20's female w. Ehlers-Danlos c/o "pain multiple joints" w/o P.T. benefits. Widespread muscle spasm & tendonosis likely compensate for ligament laxity, i.e., symptoms of fibromyalgia, which is highly associated w. ED. Aquatherapy, wt. Loss, Cannabinoids for pain & sleep, whole foods, gentle Yoga, soft mattress, massages, walking, & possibly a sacroiliac joint belt for pelvic stability when upright. ...Read more

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With ehlers danlos hypermobility caused gerd, gastritis, esophagitis does it need to betreated ddifferently. Omeprazole Carafate (sucralfate) not working?

With ehlers danlos hypermobility caused gerd, gastritis, esophagitis does it need to betreated ddifferently. Omeprazole Carafate (sucralfate) not working?

If gastroparesis: High prevalence of GI manifestations including severe chronic constipation, irritable bowel syndrome, acid reflux or gastroesophageal reflux disease, and/or chronic abdominal pain. Gastroparesis, slow gastric emptying, is also seen. If this is present as well as reflux then medication has to be taken to speed up stomach. Gastroparesis is usually diagnosed by nuclear gastric emptying test. ...Read more

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28 yr thin girl. Has pots, anxiety, ehlers danlos hypermobility, gerd. Good echo, ekg. Heart attack chances? Nerve pain l arm, chest pain (maybe gerd)

28 yr thin girl. Has pots, anxiety, ehlers danlos hypermobility, gerd. Good echo, ekg. Heart attack chances? Nerve pain l arm, chest pain (maybe gerd)

Before addressing...: Risk of heart attack best discussed directly with your physician. Your physician not only has your history but can examine you carefully. Also it is important to share with your doctor any family history of similar issue including heart attack, early death. ...Read more

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How is ehlers-danlos syndrome painful?

It may not be: It may not be painful at all. It depends on the type you have and what systems are involved. If your joints are involved and are loose then this could increase their mobility and cause pain. Your evaluation will help explain this. ...Read more

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How to tell if I have ehlers danlos syndrome?

See details: You will have major increased flexibility of joints and increased elasticity of skin. ...Read more