Doctor insights on:
Ehlers Danlos Hypermobility Syndrome
I have POTS syndrome & hypermobility syndrome. All of muscles are weak. I have trouble pooping, controlling my bladder and bowel. No doctor knows why.
Dysautonomia: 18y fem has "Hypermobility Syndrome, weak muscles, POTS, difficulty controlling bladder/bowel". Autonomic nerves are tethered at vertebral foramina & subluxing joints, especially sacroiliac joints, impinge these nerves arousing neural stimuli of smooth muscles of arteries, intestine & bladder. Dysautonomic effects manifest as patient describes. Many of these patients go on to develop Fibromyalgia. ...Read more
Maintain muscle tone: Muscle tone and strength may provide adequate dynamic stabilization across your loosest joints affected by eds. Joints commonly affected include the shoulder, and knee. Strengthening the musculature around those joints can serve you well and help prevent the need to progress to a surgical remedy to stabilize the lax joints. ...Read more
Could I have type 3 (hypermobility) ehlers danlos syndrome or hypermobility syndrome? My parents don't have eds.
Unlikely.: Ehlers danlos is an inherited condition, so if it doesn't run in your family, it's very unlikely that you have it. If your joints are unusually flexible you may just be more limber than normal. But if you are worried about it, see your doctor and find out for sure. ...Read more
Strengthen: Strengthening opposing muscle groups helps stabilize joints. Avoid concussive sporting activities such as tennis, but leap to activities suck as cycycling, ei. Stationary, or road (mtb) bike. But stabilizing your joints with my recommendations, which involved weight or machines is best. (machines are safeest, because your joints are tracked in a specific motion.) hypermobility causes arthritis. ...Read more
Difficult problem: Because of vascular bleeding it is difficult to give you a definitive answer. You are better off going to a pain clinic preferably at a teaching hospital where they can taylor make a pain medicine cocktail for you, since they would have more experience with your type of problem. ...Read more
Joints are very loos: The joints are hyper-extendible and you can bend the wrists backwards a lot. ...Read more
What is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?
EDS-3 is formal Dx: Eds-3 is a formal diagnosis whereas the term double jointedness is a term used to describe someone with hyperlax joints. Hyperlaxity is a normal variant and is only worrisome if it results in pain or joint instability whereby the term is changed to patholaxity (pathologic joint laxity). ...Read more
Good Afternoon, First of all, I would like to ask you if you are familiar with Ehlers-Danlos Syndrome (hypermobility type)? I was diagnosed with hEDS in 2011 by Geneticist LaDonna Immken, M.D. here in Austin. Often I have questions and my PCP and other
Hypermobility: Ehlers-Danlos syndrome type III (EDS Type III, hypermobility type) typically presents with loose ligaments and flexible joints. This can cause joint pain after activity. The skin is not usually overly stretchy. Type III are not subject to the usual complications of more serious types of EDS. A normal lifestyle is expected. ...Read more
I have ehlers-danlos syndrome hypermobility type. My arches collapse, ankles roll in and knees go backwards. Could AFOs help stabilize my bendy joints?
Yes: There are many people afflicted with ehlers danlos who speak highly of smo (short AFO for feet) and other AFO to help stabilize. These are costly and a long project but certainly worth going to an orthotist to look in to. ...Read more
Pain clinic: Enroll in a pain clinic at a teaching hospital for best results. ...Read more
Yes: Ehlers-danlos syndrome causes hyper mobility. There are many other reasons and causes of hypermobility. Hyper mobility simply refers to an increased amount of motion in a joint from any cause. ...Read more
Usually. Only: Severe disease affects intestinal vesselsGet a more detailed answer ›
Hypermobility: Ehlers danlos syndrome does have hyperflexible joints - this does not mean you will an olympian. If you think you have ehlers danlos then see your doctor to get a confirmed diagnosis. ...Read more
Could there be any relationship between progressive bilateral spondylolysis and ehlers-danlos syndrome? Several potential symptoms of hypermobility.
Yes they could link:
However, the E-D syndrome is not diagnosed based on this one finding.
in the US, genetic medicine/ diagnostics could greatly help with this well-described syndrome. ...Read more
How would a physician differentiate between benign hypermobility and the hypermobile type of ehlers-danlos syndrome?
See details: Benign hypermobility is just what the term implies. It is mild hypermobility similar to the most benign form of ehlers-danlos. The most severe forms of eds are distinguished by marked hypermobility of joint, significant hyperelasticity of skin and the increased risk of rupture of intestines and the aorta. ...Read more
With ehlers danlos hypermobility and postural orthostatic tachycardia syndrome is there an increased risk of blood clots since blood can pool in limbs?
Not due to pooling of blood. There is one case report. An unusual presentation of ehlers-danlos syndrome vascular type with deep vein thrombosis: a case for multidisciplinary management.
lipinski mj, lipinski se, kripalani s, friesen ld, uthlaut bs, braddock sr.
am j med genet a. 2009 feb 15;149a (4):698-701. ...Read more
Where is cedar park or Austin is it possible to see a specialist if you suspect you might have ehlers danlos hypermobility?
A rheumatologist: Is likely your best bet. Austin appears to be northwest of Houston. ...Read more
I have ehlers danlos hypermobility. I have almost every symtoms that is listed for hypermobility. What arethe chances of having vascular eds symptoms?
Does ehlers danlos hypermobility and pots and GERD caused by eds have flare ups? Better for a while then worse for a while?
I have ehlers danlos hypermobility or classical. Vascular is ruled out. What are the chances of vascular complications like brain aneurism or others?
I come from a family with a lot of hypermobility although there has been no diagnosis of Ehlers Danlos (EDS) yet. What's the likelihood that the rest of my family just has genetic hypermobility, and only I would develop vascular EDS de novo?
Hypermobility: Close to zero but not zero. Any chance your "parents" are not really your "parents"? ...Read more
I have: Hypermobility, joint pain, multiple joint injuries, and I have had 7 surgeries which have healed very poorly. Could this be Ehlers- Danlos?
Sounds like it: Yes, you most likely have Ehler's Danlos syndrome. Did none of your surgeons suggest this? Unfortunately, it's a genetic condition, so there's not much that can be done, therapeutically. ...Read more
I have hypermobility Ehlers danlos. I'm in constant pain in multiple joints. PT doesn't help. I've been to rheumatologists and others. Specialists? Plz
Fibromyalgia: 20's female w. Ehlers-Danlos c/o "pain multiple joints" w/o P.T. benefits. Widespread muscle spasm & tendonosis likely compensate for ligament laxity, i.e., symptoms of fibromyalgia, which is highly associated w. ED. Aquatherapy, wt. Loss, Cannabinoids for pain & sleep, whole foods, gentle Yoga, soft mattress, massages, walking, & possibly a sacroiliac joint belt for pelvic stability when upright. ...Read more
With ehlers danlos hypermobility caused gerd, gastritis, esophagitis does it need to betreated ddifferently. Omeprazole Carafate (sucralfate) not working?
If gastroparesis: High prevalence of GI manifestations including severe chronic constipation, irritable bowel syndrome, acid reflux or gastroesophageal reflux disease, and/or chronic abdominal pain. Gastroparesis, slow gastric emptying, is also seen. If this is present as well as reflux then medication has to be taken to speed up stomach. Gastroparesis is usually diagnosed by nuclear gastric emptying test. ...Read more
28 yr thin girl. Has pots, anxiety, ehlers danlos hypermobility, gerd. Good echo, ekg. Heart attack chances? Nerve pain l arm, chest pain (maybe gerd)
Before addressing...: Risk of heart attack best discussed directly with your physician. Your physician not only has your history but can examine you carefully. Also it is important to share with your doctor any family history of similar issue including heart attack, early death. ...Read more
It may not be: It may not be painful at all. It depends on the type you have and what systems are involved. If your joints are involved and are loose then this could increase their mobility and cause pain. Your evaluation will help explain this. ...Read more
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