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Doctor insights on: Eds Bones

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Bone (Definition)

Bone is a living growing tissue made mostly of collagen (protein that provides soft framework) & the mineral calcium phosphate that adds strength & hardens the framework. Two types of bone are found in the body; cortical (dense compact outer layer) & trabecular (makes up inner layer, ...Read more


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I have EDS 3 (hypermobility) & often my wrist cracks (feels like tendon catches on bone) & hurts for days after. Is there a way to prevent/treat this?

I have EDS 3 (hypermobility) & often my wrist cracks (feels like tendon catches on bone) & hurts for days after. Is there a way to prevent/treat this?

Pain: Warm compress to affected joints may help with the pain. Splints from an occupational therapist can help with the loose joints of your wrists. Motrin or Aleve (naproxen) for the pain in loose joints. if not improved in 1 wk, appointment with physician and referral to rheumatologist for further management w/ possible x-rays or lab work ...Read more

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What's transmission of eds?

What's transmission of eds?

Genetic: The only common form of eds is type iii. This is because afflicted individuals rarely reach childhood; and, certainly not adulthood. Eds iii is an autosomally dominant gene which means that 50% of children of the affected person will have the disease; or each child has a 50% risk of developing the disease. ...Read more

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What is inheritance and pentrance of eds?

What is inheritance and pentrance of eds?

Depends: Ehlers danlos is a family of disorders, which has 6 major and several minor types. Given the multiple genes involved, it can be inherited in both autosomal dominant and autosomal recessive patterns, and can even spring from a de novo mutation. Penetrance depends on the type of mutation, and can therefore not be reliably calculated without more information. ...Read more

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What is the new cardiac valvular form of eds?

What is the new cardiac valvular form of eds?

Not: There are 7 forms of ehlers-danlos syndrome. None specifically affect valves. Type IV which is very rare causes fragile blood vessels which can rupture. Type iii is the commonest form and causes hypermobile joints ("double jointedness") and it is benign. My research revealed no "new valvular" form of eds. ...Read more

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Do some eds patients suffer with sleep problems?

Do some eds patients suffer with sleep problems?

EDS: Can you specify what eds stands for? Some abbreviations mean different things to different people. ...Read more

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Is it really possible to be double jointed if eds?

Is it really possible to be double jointed if eds?

No: There's no such thing as a double joint. You can be extremely flexible, and folks with ehlers danlos often are incredibly flexible. This comes from laxity in the ligaments and connective tissues surrounding the joints. The joints themselves, where the bones meet, have the same number of connections as anyone else. ...Read more

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How can you tell if you're double jointed from eds?

How can you tell if you're double jointed from eds?

Clinical diagnosis: The collagen diagnostic laboratory offers diagnostic testing for eds type IV (vascular eds), eds type vi (kyphoscoliotic eds) and eds vii (arthrochalasia). Testing for eds types i and ii (classical eds) is available elsewhere. There is presently no laboratory test available for individuals with the most common form of eds - eds type iii or hypermobility eds. It remains a clinical diagnosis.. ...Read more