Doctor insights on:
Does Anyone Know Some Facts About Hemochromatosis
Common & easy: In the common form, the gut absorbs iron too well -- something of a plus, but too much iron will ruin the liver, pancreas, adrenals, heart, sex drive, and joints (base of thumb especially) and turn you gray. Easy to test for by labs, and easy to treat by draining a pint or two of blood every week. Maybe one person in 200 has the genes to get it, and some still get missed. ...Read more
Why doesn't anyone know anything about hereditary hemochromatosis (hh) if it is so common? I feel all alone.
Under-recognized: Actually around 1 person in 200 has it, but it often gets missed -- I've seen it enough at autopsy as a "surprise". If you're diagnosed, be thankful that of all the common, lethal disease it is by far the easiest to manage. There's no glamor, ribbon parades, or sad advertisements simply becuase it's so readily manageable with phlebotomy. ...Read moreSee 2 more doctor answers
Get treated or die: It's as simple as that. Common hereditary hemochromatosis is by far the easiest to manage of all the common, deadly diseases of young people. It announces itself as elevated liver enzymes, impotence, an odd skin color, sore joints at the base of the thumbs, glucose intolerance, or whatever. Accept therapeutic phlebotomy and you'll feel much better. If it's missed or neglected, it's deadly. Period. ...Read moreSee 1 more doctor answer
Can you tell me how to know if you have hemochromatosis diabetes or bronze diabetes/is there an online quiz you can take?
Real testing: Forget "online quizzes". This is the 21st century, and anything less than a real workup by your physician would be playing games with a life-and-death matter. If you have elevated liver enzymes, an elevated serum iron, ferritin, or transferrin saturation, the odd skin color or the arthritis at the base of the thumb, ask a competent physician to work you up ; rx if you have it. ...Read more
Has anyone had adult pt grow taller from Hemochromatosis? Saw post/study saying it causes that. Not Dx w/ it but is it poss why I'm growing in late30s
Get checked!: I can understand your worries. If you read the study, carefully, you will see that it's possible to be checked to see if that's what is wrong. Please see your doctor and find out, so you can relax. Best,if you get re-measured at a doctor's office who's measured your height before. The only way to found out what's going on is to see a doctor. We cannot give you a 100% correct diagnosis here. ...Read more
Many: Usually it's picked up as elevated liver enzymes / other labs, but once the hemochromatosis patient is treated by removal of blood / iron, they usually say, "wow! i no longer have the blahs." impotence, arthritis at the thumb base, the gray skin, lots more, all self-heal when it's treated. ...Read more
How can I know if I have iron overload/hemochromatosis? What tests should be performed? I hear that there is a DNA genetic test kit for hemochromatosis, is that true?
Blood tests: Iron and TIBC (total iron binding capacity) can be used to detect iron overload (iron/tibc >45 increases suspicion). Hemochromatosis, one cause for iron overload, can be detected by a gene study. As a general rule, patients with hemochromatosis are referred to gastroenterologist for a liver biopsy, as iron overload can do significant damage to the liver. ...Read moreSee 2 more doctor answers
Certainly: Red meats are known for iron content in them, so avoid those, avoid foods high in vitamin c, as it increases iron absorption. Foods high in sugar should be avoided, as it increases iron absorption. Avoid raw shellfish.Alcohol in moderation, better off - none. Should eat - nuts, veggies, grains, rice, beans. Coffee and tea are fine if not consumed in excessive amounts. ...Read moreSee 2 more doctor answers
Varies: Many times, it is only presented with high iron saturation and or iron storage without having any symptoms. However, the clinical manifestations of iron accumulation can include liver disease, elevation of liver enzymes, skin pigmentation, diabetes mellitus, arthropathy, impotence in males, and cardiac enlargement with or without heart failure or conduction defects etc. ...Read moreSee 2 more doctor answers
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