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Doctor insights on: Do Natural Remedies For Fragile X Syndrome Work

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Do natural remedies for fragile x syndrome work?

Do natural remedies for fragile x syndrome work?

No: Unfortunately there are no effective treatments for fragile x that would alter the genetic defect. Behavioral training may be useful in facilitating education and behavior. ...Read more

Dr. Barbara Trommer
129 doctors shared insights

Fragile X Syndrome (Definition)

A genetic disorder where there is a mutation of the fragile X mental retardation 1 (FMR1) gene on the X chromosome. Affected individuals may have large ...Read more


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Can you tell me the best places for treatment for fragile x syndrome?

Can you tell me the best places for treatment for fragile x syndrome?

The MIND Institute : at UC Davis' Dr. Randi Hagerman leads a team that researches all aspects of Fragile X Syndrome & related disorders. See: www.ucdmc.ucdavis.edu/mindinstitute/research/fragilex/. To find experts near you, contact the Fragile X Association New York, 61 Dean St Brooklyn, NY, 11201 (718) 875-4901 or use thus contact form for nfxf, the national support group: www.fragilex.org/foundation/contact/. ...Read more

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Can there be some drug treatment available for fragile x syndrome?

Can there be some drug treatment available for fragile x syndrome?

See Below: Since Fragile X is a genetic disease, there is no treatment for the disease itself. There are options for treating some of the symptoms of Fragile X (ADHD, seizures, or other behavioral disorders). ...Read more

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Owen and fragile x syndrome. What are my treatment options?

Owen and fragile x syndrome. What are my treatment options?

Confusing question: I know of no "Owen" syndrome, although a certain Owen had Down syndrome and gained notoriety.That and fragile X are permanent alteration in the chromosomes of every cell in the patients body. Treatment is supportive.There is no cure or medication. You discover their strengths and weaknesses and try to promote the best life they can have. ...Read more

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What are the best facilities for treatment for fragile x syndrome?

What are the best facilities for treatment for fragile x syndrome?

Fragilex.org: I don't know if these are the "beset" clinics but you might start by seeing the list of clinics that works with the fragile x foundation: go to: http://www.Fragilex.Org/ then click on treatment & intervention and clinics. If you don't live near one of these clinics then try calling up the nearest university hospital pediatric neurology or neurology dept and see if anyone specializes in this area. ...Read more

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What age does fragile x syndrome show up?

Birth: You can be suspicious at birth. Here is some information: http://www.fragilex.org/fragile-x-associated-disorders/fragile-x-syndrome/ ...Read more

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Do people with fragile x syndrome have normal lives?

Do people with fragile x syndrome have normal lives?

Of course: But then again who among us can claim to have a normal life? Men and women with fragile x syndrome can be, just like the rest of us, happy or unhappy, fulfilled or frustrated, sick or well, socially busy or lonely, and all points in between. Many people with fragile x syndrome have limited capacity for advanced learning, and very few marry and/or have children. Learn more at http://www.Nfxf.Org/. ...Read more

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Fragile x syndrome questions? Do they look different?

Fragile x syndrome questions? Do they look different?

Yes: Most often mentioned features include relatively large head, thickened nasal ridge, large ears & dental crowding. ...Read more

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Please tell me, are people with fragile x syndrome tall?

They can be: I have several patients with fragile x that are average height or taller. ...Read more

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My son was recently tested for fragile x syndrome. What is accuracy?

My son was recently tested for fragile x syndrome. What is accuracy?

Very high: Fragile x is a problem found on the x chromosome, so it is inherited from the mother. Something called karyotyping is often done first, where the chromosomes are looked at under a microscope to see if they look normal. This is usually followed by dna testing that is very accurate. If the dna test is positive, it's positive. ...Read more

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Cow can I tell if a teen has fragile x syndrome?

Variety of symptoms: Males more affected than females and more apparent physically. Long face, protruding ears. Intelligence is effected, shyness, poor eye contact, and symptoms of autism. ...Read more

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Can you tell me things to keep in mind about fragile x syndrome?

Fragile X: Fragile X syndrome is the leading known inherited cause of intellectual disability, and leading known genetic cause of autism and can cause developmental and language delays, learning impairment, and behavioral and mental health issues. Females who are carriers of the Fragile X gene mutation have a 50/50 chance of passing the mutation to each of their children. Other associated syndromes exist. ...Read more

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My daughter is pregnant and the father has "fragile x syndrome" so what are risks for baby?

My daughter is pregnant and the father has "fragile x syndrome" so what are risks for baby?

Depends: He can only pass the fragile x to a daughter, 100% of which would be carriers and might have minor learning problems.They could then pass the fragile x to their male offspring. If the baby is male he would be unaffected since they got the Y from dad. ...Read more

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Can you tell me about fragile X syndrome?

Can you tell me about fragile X syndrome?

Male dominated: The fragile x is named for a non staining region on the long arm of an x containing useless genetic material that results in mental impairment & physical changes(if you only have 1 x:males).The females usually show few if any features due to protection by a normal x, but not always & have a 50% chance of passing the fragile x to any offspring. This is a male dominated form of mental impairment. ...Read more

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What can I do to treat fragile x syndrome?

Seek help: While there are no cures for patients with fragile x, there are many supportive care services that can provide a great deal of help. See http://www.Fragilex.Org/treatment-intervention/ for more information. ...Read more

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What can you tell me about fragile x syndrome?

What can you tell me about fragile x syndrome?

Fragile X: Fragile X syndrome is the leading known inherited cause of intellectual disability, and leading known genetic cause of autism and can cause developmental and language delays, learning impairment, and behavioral and mental health issues. Females who are carriers of the Fragile X gene mutation have a 50/50 chance of passing the mutation to each of their children. Other associated syndromes exist. ...Read more

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How do you treat fragile x syndrome in a child?

How do you treat fragile x syndrome in a child?

Careful behavior mgt: Careful and supportive behavioral management. there is some data suggesting treatment with folic acid may help avoid the behavioral manifestations that may develop. ...Read more

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Dr. Heidi Fowler
679 doctors shared insights

Natural Remedies (Definition)

Natural remedies are plant based supplements to help with different symptoms people have. They are found ...Read more