Doctor insights on:
Do All People With Marfan Syndrome Grow More Than The Average Person
Rarely: Occasionally, a person with marfan syndrome will have normal height, but the majority of people with marfan syndrome tall. Even if people with marfan syndrome who have normal height, there long bones tend to be longer than typical, resulting in longer than typical arms, legs, and fingers. ...Read moreSee 1 more doctor answer
Marfan's syndrome is a genetic disorder caused by defects in a protein called fibrillin that, along with collagen, provides most of the structural support of our tissues. Individuals with Marfan's are often tall, lanky, have long arm spans, and are hyperflexible. The most serious complication of Marfan's is caused by defects in the wall of the aorta, the large blood vessel that leaves the heart and supplies the ...Read more
Yes: Marfan syndrome patients can have mild to severe symptoms. Their muscles can grow, but there may be weakness in the connective tissues that help support the muscles and attach muscles to other parts of the body. ...Read moreSee 1 more doctor answer
Varies by severity: People with mild marfan syndrome symptoms probably live a pretty normal lifespan. Those with severe symptoms can die from heart valve problems, rupture of the aorta, tension pneumothorax, etc..., before they reach old age. Of course, those with moderate symptoms will have a lifespan in between. ...Read moreSee 1 more doctor answer
Usually yes: A marfan syndrome person with a current or recent pneumothorax (collapsed lung) should not fly (unless the airplane stays close to his airport's altitude) because the decrease in outside air pressure as the airplane ascends can allow his pneumothorax to enlarge and compress the lungs and heart. ...Read moreSee 1 more doctor answer
Non-strenguous: Marfan syndrome persons should avoid contact sports. If symptoms are on the moderate to severe side, they can participate in non-contact, non-strenguous activities such as golf, bowling, walking, yoga, or tai-chi. If mild to moderate in severity, they can try non-contact, moderately strenguous activities such as biking or swimming. The national marfan foundation website is helpful. ...Read moreSee 1 more doctor answer
Do people with Marfan Syndrome ever stop growing in height and if so is it about the same time others without the disease stop growing ?
Yes : There are multiple potential. abnormalities associated with marfans, such as scoliosis, for example; but they do typically reach skeletal maturity (stop growing) at a similar age as those without marfans. In general, their height is taller than average and they tend to be slender. ...Read more
Loose ligaments: Over half of people with marfan's get scoliosis, but only about a third of these need treatment. It results from loose connective tissue which makes scoliosis more likely. ...Read moreSee 1 more doctor answer
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