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Doctor insights on: Do All People With Marfan Syndrome Grow More Than The Average Person

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Dr. Steven Neish
Board Certified, Pediatric Cardiology
33 years in practice
827K people helped
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Do all people with Marfan syndrome grow more than the average person?

Dr. Steven Neish
Board Certified, Pediatric Cardiology
33 years in practice
827K people helped
Do all people with Marfan syndrome grow more than the average person?

Rarely: Occasionally, a person with marfan syndrome will have normal height, but the majority of people with marfan syndrome tall. Even if people with marfan syndrome who have normal height, there long bones tend to be longer than typical, resulting in longer than typical arms, legs, and fingers. ...Read more

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Dr. Marsha Davis
Board Certified
23 years in practice
66M people helped
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Dr. Marsha Davis
Board Certified
23 years in practice
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Dr. Scott McLean
289 doctors shared insights

Marfan Syndrome (Definition)

Marfan's syndrome is a genetic disorder caused by defects in a protein called fibrillin that, along with collagen, provides most of the structural support of our tissues. Individuals with Marfan's are often tall, lanky, have long arm spans, and are hyperflexible. The most serious complication of Marfan's is caused by defects in the wall of the aorta, the large blood vessel that leaves the heart and supplies the ...Read more


Dr. Peter Ihle
Board Certified, Orthopedic Surgery
49 years in practice
6M people helped
2

2
Does a person have to be tall to be diagnosed with Marfan Syndrome? How often does it occur in average height or shorter people?

Dr. Peter Ihle
Board Certified, Orthopedic Surgery
49 years in practice
6M people helped
Does a person have to be tall to be diagnosed with Marfan Syndrome? How often does it occur in average height or shorter people?

Usually tall & thin.: Most universities that recruit such a person because they are tall & good players, the usually test 4 marfans B4 signing them.tall thin women have it more commonly than males. Also they really stand out in high school due to their height. ...Read more

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Dr. Marsha Davis
Board Certified
23 years in practice
66M people helped
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Dr. Marsha Davis
Board Certified
23 years in practice
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Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped
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3
Can a person who has Marfan syndrome still grow muscle?

Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped
Can a person who has Marfan syndrome still grow muscle?

Yes: Marfan syndrome patients can have mild to severe symptoms. Their muscles can grow, but there may be weakness in the connective tissues that help support the muscles and attach muscles to other parts of the body. ...Read more

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Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped
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4
Can people with Marfan syndrome live long lives?

Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped
Can people with Marfan syndrome live long lives?

Varies by severity: People with mild marfan syndrome symptoms probably live a pretty normal lifespan. Those with severe symptoms can die from heart valve problems, rupture of the aorta, tension pneumothorax, etc..., before they reach old age. Of course, those with moderate symptoms will have a lifespan in between. ...Read more

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Dr. Marsha Davis
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23 years in practice
66M people helped
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Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped
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5
Can people with Marfan syndrome still fly on planes?

Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped

Usually yes: A marfan syndrome person with a current or recent pneumothorax (collapsed lung) should not fly (unless the airplane stays close to his airport's altitude) because the decrease in outside air pressure as the airplane ascends can allow his pneumothorax to enlarge and compress the lungs and heart. ...Read more

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Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped
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6
What type of exercise is good for people with Marfan syndrome?

Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped
What type of exercise is good for people with Marfan syndrome?

Non-strenguous: Marfan syndrome persons should avoid contact sports. If symptoms are on the moderate to severe side, they can participate in non-contact, non-strenguous activities such as golf, bowling, walking, yoga, or tai-chi. If mild to moderate in severity, they can try non-contact, moderately strenguous activities such as biking or swimming. The national marfan foundation website is helpful. ...Read more

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Dr. Edward Hellman
Board Certified, Orthopedic Surgery
24 years in practice
3M people helped
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7
Do people with Marfan Syndrome ever stop growing in height and if so is it about the same time others without the disease stop growing ?

Dr. Edward Hellman
Board Certified, Orthopedic Surgery
24 years in practice
3M people helped
Do people with Marfan Syndrome ever stop growing in height and if so is it about the same time others without the disease stop growing ?

Yes : There are multiple potential. abnormalities associated with marfans, such as scoliosis, for example; but they do typically reach skeletal maturity (stop growing) at a similar age as those without marfans. In general, their height is taller than average and they tend to be slender. ...Read more

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Dr. Keith Baldwin
Board Certified, Pediatric Orthopedic Surgery
10 years in practice
507K people helped
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Why do people with Marfan syndrome develop scoliosis?

Dr. Keith Baldwin
Board Certified, Pediatric Orthopedic Surgery
10 years in practice
507K people helped

Loose ligaments: Over half of people with marfan's get scoliosis, but only about a third of these need treatment. It results from loose connective tissue which makes scoliosis more likely. ...Read more

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Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped
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9
What type of learning disability do people with Marfan syndrome usually have?

Dr. Robert Kwok
Board Certified, Pediatrics
28 years in practice
13M people helped

Visual disabilities: Marfan syndrome patients, if severe, can have disabilities involving vision, such as reading. Patients can have dislocated lens in the eyes (lens are out of position and cannot focus properly), retinal detachments (retina comes off the inside surface of the eyeballs), early cataracts (lens become cloudy), or early glaucoma (excess pressure inside the eyeballs). ...Read more

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Dr. Carla Enriquez
Board Certified, Adolescent Medicine
45 years in practice
19M people helped
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What type of learning disability do people with Marfan syndrome have, if any?

Dr. Carla Enriquez
Board Certified, Adolescent Medicine
45 years in practice
19M people helped
What type of learning disability do people with Marfan syndrome have, if any?

Usually none. : Marian's effects connective tissue (heart, bones, muscles). There usually are no learning, attention, or behavioral problems associated with it. ...Read more

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Dr. Marsha Davis
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