Top
10
Doctor insights on: Distal Arthrogryposis Syndrome

Share
1

1
Please help to find someone who treats distal arthrogryposis.?

Please help to find someone who treats distal arthrogryposis.?

Arthrogryposis: This condition is best managed by a pediatric orthopedic surgeon. I recommend trying to locate a shriner's hospital close to you. They provide care free of charge, and tend to see an treat a lot of kids with conditions like is. They're easy to locate online. Good luck! ...Read more

Dr. Richard Britton
58 doctors shared insights

Arthrogryposis (Definition)

Arthrogryposis is a congenital disorder (birth defect, present at birth) in which a baby is born with joints that are contracted (tightly bent). The baby has difficulty moving, due to the problems with ...Read more


2

2
Need expert help here. What are effective ways to treat arthrogryposis?

Need expert help here. What are effective ways to treat arthrogryposis?

Pediatric Ortho Eval: Arthrogryposis is defined as a congenital joint contractures in two or more areas of the body. A team approach is often needed to maximize functionality of the affected contracted joints. Surgery is considered when non-operative treatment fails such as an early talectomy (removal of the talus) for ankles affected by arthgrogryposis. ...Read more

3

3
Do guys with arthrogryposis normally have a shorter lifespan?

Do guys with arthrogryposis normally have a shorter lifespan?

Depends: The severity of the problem varies. Most have normal lifespans, but it there is severe thoracic scoliosis restricting lung function, life expectancy could be reduced. ...Read more

4

4
Can people with arthrogryposis multiplex congenita survive long?

Depends: It depends on the severity of the problem (it varies widely). For example, some have severe scoliosis, limiting chest movement and lung inflation. Some have small lungs. These could reduce lifespan. On the other hand, many with amc have normal life expectancy. ...Read more

See 1 more doctor answer
5

5
Is it possible that people with arthrogryposis multiplex congenita have childeren?

Is it possible that people with arthrogryposis multiplex congenita have childeren?

Probably yes: This rare condition can have multiple causes. If only the joints are affected, your reproductive system should not be affected. If it is part of a genetic disorder, there may be issues. See your primary doctor or your gynecologist. ...Read more

6

6
I recently heard of arthrogryposis multiplex congenita. Can you tell me what that is?

I recently heard of arthrogryposis multiplex congenita. Can you tell me what that is?

Contracted joints: Patients with that condition are born with contractures in one or more of their joints and so are unable to move their joints normally. There is not a real great approach to the problem as surgery has a very limited benefit. ...Read more

7

7
Is arthrogryposis considered a chronic illness?

Is arthrogryposis considered a chronic illness?

Yes: Chronic essentially means having for a longtime so all incurable genetic disease would qualify as chronic. ...Read more

9

9
What is arthrogryposis?

What is arthrogryposis?

Joint contractures: Arthrogryposis is a rare congenital condition in which the affected child as joint contractures and muscle weakness. A joint contracture means essentially that the joint is stuck in one position. The care issues are complex, and an affected child needs to be cared for at a multi-specialty pediatric center with the appropriate expertise. ...Read more