Doctor insights on:
Disseminated Encephalomyelitis Adem
Childhood illness: Occurs in childhood, and typically monophasic, but could be confused with MS in some cases. Typically follows viral infection or vaccination and can result in diffuse encephalopathy. Classic MRI findings of large white matter lesions which light up with contrast help confirm. Typically does NOT recur. ...Read more
Trigger autoimmune: Adem is an autoimmune disease that is usually triggered by a preceding viral or bacterial infection. While there have been reports of adem following vaccinations, this is extremely unusual, and no overall increased risk has been found in wider ranging studies. Most importantly, the very real risk of the disease prevented by the vaccine is much higher than the theoretical risk of adem! ...Read more
Are there any genetic links to make one prone to having acute disseminated encephalomyelitis? Why does this occur?
Susceptibility: Adem is classically a mono phasic illness in children following a viral infection or vaccination, and is considered a secondary autoimmune reaction to the inciting original problem. Unlikely to ever occur again, and does not represent initial ms. There are genetic susceptibilities to this disorder, but not a true hereditary disorder at all. ...Read more
Can autoimmune encephalitis triggered by past infection be insidious unlike acute disseminated encephalomyelitis?
Rasmussen syndrome: There are several others that are even less common ...Read more
Brain lesion. I was told it was a brain tumor, acute disseminated encephalomyelitis, and cortical dysplasia could it still be a brain tumor? Thanks!
Huh?: Didn't you just answer your own question? Maybe I'm missing something but if the diagnosis actually IS ADEM (as I believe you are saying above) and if what you have is cortical dysplasia (unrelated to the ADEM) to boot then, neither of those 2 together nor separately are synonyms for brain tumor. Do you have imaging studies? That would solve the mystery? Questions? Www. Healthtap. Com/drsaghafi ...Read more
Childhood illness: Acute demyelinating encephalomyelitis occurs mainly in children following an upper repiratory tract infection (75%) or vaccination, and causes fever, headache, imbalance, double vision. It is less common in adults who may have limb weakness and tingling. 70% have full recovery. However, there are questions whether this may herald multiple sclerosis later on. ...Read more
ADEM: I am unfamiliar with "myalgic", but the disorder of acute demyelinating encephalomyelitis, is a condition in mainly children subsequent to upper repiratory infection or vaccination. Full recovery occurs in 70%, and treatment with steroids, plasmapheresis, ivig, or chemotherapy drugs has proven successful. ...Read more
? myalgic: I have never heard the term "myalgic". The correct terminology is adem, acute demyelinating encephalomyelitis, which occurs mainly in children following an upper respiratory tract infection or vaccination. Fever, headache, imbalance, double vision, problems with speech and swallowing occur. Biggest concern maybe whether the episode is the onset on multiple sclerosis. ...Read more
Fatigue: Extreme fatigue lasting more than 6 months without any obvious cause (all test are normal) that interfere with the persons normal function. ...Read more
In bed 9 years. I have a disease called myalgic encephalomyelitis. Its life threatening. No help. Have u heard of it and know how I can save my life.?
That sounds like an important problem! But are you sure about the diagnosis? If you are sure, then we just need to find someone on here who is an expert in handling that condition. Problem is, they will want to be sure of the diagnosis too.
So you have been in bed 9 years. Has anyone been looking after you during that time? There are certain things that would help regardless of the cause. ...Read more
Looking for help with myalgic encephalomyelitis also known as cfs. Ideas to overcome this illness?
Pacing: This condition is also known as chronic fatigue syndrome. Many treatments have been tried but with mixed success and sometimes worsening of the underlying condition. This includes trials with cbt and get. Please read the excellent review at wikipedia. Com for a good explanation of what pacing is. You also may wish to type the illness into your search engine on your computer and look up the national organizations for this condition. These websites provide up to date information regarding the status of research and treatment. ...Read more
Have Chonoc fatigue immune dysfunction & myalgic I encephalomyelitis. Has any dr heard of this? It's killing me bed 9 years drs won't help me. Help
The specific words you use all have some medical meaning, but sorting it out would take a lot of work on your part in collaboration with someone skilled in clinical immunology or rheumatology. Good luck, and be aware that both xanex and oxycodone are difficult medications to regulate. ...Read more
I've had numbness in my face and head for about 2 months and can't seem to get any answers as to the cause. I'm sure this couldn't be strokes, but could it be MS or myalgic encephalomyelitis?
5 th cranial N dz.: Is numbness on one side of face or both? Also in the scalp is the numbness involving entire scalp or it stops at ear, chin and vertex level (imaginary line) and half of scalp level. Face and half of scalp in the front are supplied by trigeminal nerve for sensation. Lesions from dm, ms, herpes zoster sarcoidosis, vasculitic condns, tumors of the nerve, nasopharynx tumour to be r/o. Need imaging- brain. ...Read more
I have most of the symptoms typical of myalgic encephalomyelitis, and live consults with doctors here have strengthened my impression that I have this illness. However, I don't know how to get my primary care doctor to take this seriously, despite daily m
Advice: If you lack confidence in your local physicians, find a nearby medical school, get referred and go through a re-evaluation of your issues. In other words, get a SECOND OPINION. ...Read more
Any physicians with experience in treatment of Myalgic Encephalomyelitis? Given it is incurable, can symptoms be mitigated via particular treatments?
Myalgic Encephal: Yes mans specialize in this. I would call one of the medical schools in Chi town and see who they recommend you see. ...Read more
Are doctors in the us allowed to formally diagnose someone with myalgic encephalomyelitis, or do they have to use the diagnosis of chronic fatigue syndrome?
While most mds use the diagnosis "chronic fatigue syndrome, " there are many authorities who feel that myalgic enchephlomyelitis is a more accurate term for many of those with chronic fatigue. Doctors are totally allowed to use that diagnosis for those who qualify- the icd-9 code is 323.9.
See http://www. Name-us. Org/defintionspages/definitionsarticles/2011%20consensus%20criteria. Pdf. ...Read more
I have been diagnosed with. Myalgic encephalomyelitis (by a UK GP), is it safe to get a tattoo with this condition?
No: Since this disorder does not have a proven cause but likely reflects some disorder of the immune system and many central nervous system symptoms, it would be unwise to undertake a tattoo which adds another variable to your condition. When an exact cause and treatment is found there is a better basis for making a decision. ...Read more
What are the symptoms of autoimmune encephalomyelitis (ae) in 3m/o infant and can respiratory syncytial virus (rsv) be the cause?
Difficult question: Autoimmune means the body sets off an inflammatory reaction against itself. Encephalomyelitis means inflammation of the brain and spinal cord. Most cases are of unknown cause. Rsv is a terrible disease that can cause pneumonia but also inflammation of the brain with signs of encephalitis including seizures and encephalopathy with abnormal mri. The answer may then be that RSV could be a cause. ...Read more