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Doctor insights on: Desmoid Tumors

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What is a desmoid tumor?

What is a desmoid tumor?

Soft tissue tumor: A desmoid is a rare soft-tissue tumor that looks like scar tissue. Desmoids do not spread throughout the body like other types of tumor, and aren't really considered "cancerous". They are lumps that continue to grow in one place, destroying the tissue around them. They can occur inside or outside the body. Go to www.Dtrf.Org for more information. ...Read more

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What are the most common causes of desmoid tumors?

What are the most common causes of desmoid tumors?

FAP and pregnancy: The exact cause of desmoid tumors is unknown but they appear intrabdominally in about 20-30% of people who have a genetic condition called fap (familial adenomatous polyposis). Sporadically, they can occur in the abdominal wall or extremities during or following pregnancy or sometimes following trauma or surgery. These tumors rarely spread but can be locally aggressive causing pain or obstruction. ...Read more

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What do doctors not know about desmoid tumors?

What do doctors not know about desmoid tumors?

Behavior/testing: There are a variety of tumors under this umbrella name. Some of them occur in young while others in older age groups. Some are frankly cancerous, others not. We are still learning better ways to diagnose, predict behavior and find better ways to treat some of the more aggressive ones and ones that occur in uncommon areas like the brain. ...Read more

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I'm going for surgery to get my desmoid tumors out should I be worried?

I'm going for surgery to get my desmoid tumors out should I be worried?

Confidence : You must have complete confidence in your surgeon. Desmoids are generally benign. ...Read more

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What are the best medicines for treatment of desmoid tumors?

What are the best medicines for treatment of desmoid tumors?

Antiestogens: Desmoid tumors are low grade fibrous tumors that occur on the abdominal wall or extra abdominally. Surgical resection with margins indicated. Pharmacologic therapy with antiestrogens (tamoxifen) and prostaglandin inhibitors may also be used. In cases of recurrent extra-abdominal desmoid tumors a chemotherapeutic regimen of doxorubicin, dacarbazine, and carboplatin may be effective ...Read more

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I have a desmoid tumor in my adbominal wall by the rectus muscle should I remove it?

I have a desmoid tumor in my adbominal wall by the rectus muscle should I remove it?

Your Doc advice??: The doctor who diagnosed you to have desmoid tumnor must have given you some advice! What did he ask you to do???. Please tell us the full story, then we can guide you further. Desmoid Tumor is a low grade cancer, so removal of the tumor is the best choice to be able to control it.. ...Read more

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Can desmoid tumors be found in the brain?

Can desmoid tumors be found in the brain?

NOT USUALLY: These types of tumors are rare, and I have limited experience, but of those I have seen, were located within shoulder and brachial plexus (very gadolinium positive). Am unaware of this type of tumor involving brain intrinsically or extrinsically, and the vast majority of primary brain tumors are derived from basic brain cellular components. ...Read more

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Specifically, can a desmoid tumor be found in the brain?

Very Rare: Desmoid tumors do not arise directly in the brain, however, these tumors can rarely occur intracranially, meaning inside the skull. This has been reported most often in children with an inherited condition called fap (familial adenomatous polyposis). Desmoids in location mag be impossible to remove and can gtow back after surgery so treatment usually includes chemotherapy and/or radiation ...Read more

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I have FAP and 2 intra abdominal wall Desmoid tumours, I had a ct scan which shows some white spots, what could they be?

I have FAP and 2 intra abdominal wall Desmoid tumours, I had a ct scan which shows some white spots, what could they be?

Possible mets.: Patients with familial adenomatous polyps due to APC mutation gradually develop hundreds colorectal polyps.These may bleed, leading to blood in the stool. Should malignancy develops, this may present with altered bowel habit, or even metastasis to the liver or elsewhere. When the polyposis is associated with osteomas, fibromas, desmoids the condition is termed Gardner's syndrome. ...Read more

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I have 2 intra abdominal Desmoid tumours, gardeners syndrome. my colon removed.A recent ct scan should white spots on my liver. What could this be?

I have 2 intra abdominal Desmoid tumours, gardeners syndrome. my colon removed.A recent ct scan should white spots on my liver. What could this be?

Possibilities : Actually this isn't so rare. Gardner's isn't so uncommon, it just gets missed or called common familial polyposis. Desmoids are very common in Gardner's. And Desmoids don't spread to the liver like this. I am hoping these are von Meyerburg complexes or hemangiomas or something, but my concern is a tiny colon cancer did metastasize. Your physician will follow up with radiologist input. ...Read more

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Diagnosed with desmoid tumor in duodenum. Had surgery jan2013 & on tamoxifen. Now CT clear and was wondering if he should have reverse bypass surgery.

Diagnosed with desmoid tumor in duodenum. Had surgery jan2013 & on tamoxifen. Now CT clear and was wondering if he should have reverse bypass surgery.

Challenging: Desmoid tumors are notorious for coming back, even if they are resected completely. Tamoxifen often helps. Sometimes not operating and waiting it out is the best thing, so consult the opinion of your surgeon who knows you best. Reversing your bypass is a complicated process and requires a lot of discussion. ...Read more

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What is a desmoid tumour or fibromitosis?

What is a desmoid tumour or fibromitosis?

Tumor of fibroblast: Fibroblasts are the cells in your body that create collagen or scar tissue. These tumors are made of these cells that grow out of control and invade tissues where they don't belong. Even though they are benign, they can aggressively keep coming back if they are not entirely removed at the time of the first surgery. ...Read more

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What would be a highly effective known treatment for a desmoid sarcoma?

What would be a highly effective known treatment for a desmoid sarcoma?

Varies case by case: It is better known as fibromatosis or desmoid tumor since it is benign and is not a sarcoma (cancer). Mainstay of treatment is surgical excision, if it is feasible. Recurrence rate is rather high, so radiation is often given. If tumor cannot be removed safely, options include radiation, low dose chemotherapy and not doing anything and observing. Each case is different, so ask your doctor. ...Read more

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What is the recovery time for a 10 YO with a distal femur benign tug lesion/cortical desmoid? Are activities like volleyball that don't cause pain ok?

What is the recovery time for a 10 YO with a distal femur benign tug lesion/cortical desmoid? Are activities like volleyball that don't cause pain ok?

Brief recovery time: This is a benign and self limited lesion that requires no more than rest and pain relief with ibuprofen if needed. It is not serious and usually occurs in the presence of athletic activity. Sometimes it is found as an unrelated and insignificant finding on MRI done for other reasons. A few weeks at most of rest and use of ibuprofen if painful and activities that do not cause pain are ok ...Read more

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Firm painless 2-3 cm lump inner thigh under muscle 6 months. MRI x 3 not lipoma or desmoid. Avid enhancement - no diagnosis. Size fluctuates - benign?

Firm painless 2-3 cm lump inner thigh under muscle 6 months. MRI x 3 not lipoma or desmoid. Avid enhancement - no diagnosis. Size fluctuates - benign?

When in doubt: excision biopsy , it is in safe accessible location ,it is a simple ambulatory procedure , will rule out more serious sarcomas , do not have to go for more MRI s etc ...Read more

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Oval lump in rght upper quadrant, can only feel when standing ultrasound, MRI revealed nothing conclusive general surgeon thinks desmoid no follow up?

Oval lump in rght upper quadrant, can only feel when standing ultrasound, MRI revealed nothing conclusive general surgeon thinks desmoid  no follow up?

Muscle spasm?: I have seen muscle spasm as the most likely cause of similar situations in the past. If someone thinks there is a desmoid tumor, and there is no follow up planned, I would strongly consider another opinion. Hope this helps ! ...Read more

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Whats a tumor?

Whats a tumor?

Tumor definition: Tumors are growths of tissue - like fat or epithelial lining cells that grow uncontrollably and can be hadmless if benign or dangerous if malignant like a colon or breast cancer. Your doctor will perform a biopsy and send the tissue to a pathologist who can diagnose the tumor and recommend curative or palliative follow up. ...Read more

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What's a sudo tumor?

What's a sudo tumor?

Pseudotumor cerebri : From the mayo clinic pseudotumor cerebri (soo-doh-too-mur ser-uh-bry) occurs when the pressure inside your skull (intracranial pressure) increases for no obvious reason. Symptoms mimic those of a brain tumor, but no tumor is present. Pseudotumor cerebri can occur in children and adults, but it's most common in obese women of childbearing age. ...Read more