Doctor insights on:
Cystic Fibrosis Physical Therapy
Why?: Many of the therapies for CF (chest percussion, inhaled saline, good nutrition) are "natural" (whatever that means in a modern society), but why on earth would you want to avoid the best treatment possible. CF is a disease with established, effective means for reducing suffering and improving quality of life (and length of life as well). Skipping modern medicine here is a mistake. ...Read moreSee 1 more doctor answer
I want to see if there's any additional therapy I can do for my boyfriend. He has cystic fibrosis and I'd like to try to help ease the symptoms.
CF center: First I wish him all the best and good health and thank you for caring for him, any cystic fibrosis patient should be followed by specialists in a cystic fibrosis center, if you haven't done that already, please check the cystic fibrosis foundation on the web for help, www.cff.org, goodluck ...Read more
Not available yet: Gene therapy is not available for cystic fibrosis (CF) yet (2012). Having said that, the underlying concept is that since CF is a genetic disease (meaning there is a defect in a gene), by repairing that defect through gene therapy, one can, hopefully, cure the disease. ...Read moreSee 1 more doctor answer
Trials: Clinical trials for genetic therapy are underway. As of this time there is no approved method for gene tx in cf. Kalydeco, (ivacaftor) a new drug, dose reverse the effects of one subtype of cf, but it dose so by aiding the damaged sodium-chloride transporter to get in proper position and function normally. ...Read moreSee 1 more doctor answer
No and yes: Safe effective gene therapy for CF is a dream that we have yet to realize, but there are many excellent CF centers in the us. The CF foundation is an excellent source of information on these centers. The treatments for CF are improving, and expanding constantly. The life expectancy for patients with CF has steadily increased but is still limited by pulmonary disease. ...Read more
Cure: Depending on the type of gene therapy, gene therapy can be a cure, if the underlying genetic problem is corrected. Of course, any damage done to the body by the disease up to that point may, or may not be, reversible. ...Read more
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