Doctor insights on:
Cystic Fibrosis Physical Therapy
Trials: Clinical trials for genetic therapy are underway. As of this time there is no approved method for gene tx in cf. Kalydeco, (ivacaftor) a new drug, dose reverse the effects of one subtype of cf, but it dose so by aiding the damaged sodium-chloride transporter to get in proper position and function normally. ...Read moreSee 1 more doctor answer
Not available yet: Gene therapy is not available for cystic fibrosis (CF) yet (2012). Having said that, the underlying concept is that since CF is a genetic disease (meaning there is a defect in a gene), by repairing that defect through gene therapy, one can, hopefully, cure the disease. ...Read moreSee 1 more doctor answer
So far not at all: Trying to replace the faulty gene has been a failure so far. The new science of epigenetics tells us that our genes (even "bad" ones) are changed by diet and life style. I havegiven children with CF vitamin supplements. They help greatly but there is no cure. Find a physician who uses nutrient treatment. ...Read more
Not specifically: Most CF patients that are monitored and receiving regular healthcare can not be picked out in a crowd of people of similar age. If their disease were to go unrecognized and or untreated they would appear ill. ...Read more
Depends on Lung Fx: The level of physical activity for a child with CF is an individual choice that should be made in consultation with the treating physician. However, there has been some interesting research done in australia, which suggests Hypertonic Saline (e.g., salty air) inhalation in CF patients was beneficial in maintaining lung function. Why? A doctor noticed surfers with CF tend to have better outcomes! ...Read moreSee 1 more doctor answer
Anything: Most individuals with cystic fibrosis can participate in all physicial activities. Salt supplementation is needed because of excess salt loss in CF sweat. Individuals with severe lung disease should discuss what level of activity is safe/appropriate for them with their physician. ...Read more
PT or OT: Both are equally demanding.Get a more detailed answer ›
Correct gene defects: Cystic fibrosis is a genetic disorder where a dysfunctional cftr protein causes problems in various organ systems. By restoring the function of this protein in the involved body systems, it is hoped that normal functionality will be restored & the harmful effects of CF disease will improve. There are still several obstacles before it can be successfully implemented in CF patients everywhere. ...Read more
Is living with only one lung possible. Lady diagnosed with radiation fibrosis after cancer therapy. Is radiation fibrosis of lung progressive?
Sure: Some degree of radiation fibrosis is to be expected. Different people get less or more. It's usually little or no trouble. People actually have lungs removed for lung cancer, and do okay afterwards. I hope she got a good result from her cancer treatment, and that if she smokes now, she will stop. Best wishes. ...Read moreSee 1 more doctor answer
For the stage 1 vocal cord cancer (affecting cartilages), which treatment is better -- radiation therapy or photodynamic therapy?
We don't know. : Aip, or haymann-rich syndrome, is a usually severe inflammatory disease of the lungs. It is somewhat rare and is a diagnosis of exclusion. Fungal infections, strange bacteria, and aids-related infections must be ruled out prior to this diagnosis. It can be a rapid and severe disease, requiring pts to be in icu. Steroids at high doses are a recommended tx, but there is little evidence. ...Read moreSee 2 more doctor answers
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