Doctor insights on:
Cystic Fibrosis Chest Congestion
My 17 month old keeps getting a cold, sinus congestion and ear-aches. He gets sick once every 1-2 months, Cystic fibrosis? Screening was clear. latino
Follow up/Cilia: Children of this age can have multiple common viral illnesses during the course of a year, especially if they attend daycare. If he is otherwise well, growing and developing normally there may be no abnormality. Other considerations include defects in the cilia. It is important to follow up with you physician. ...Read moreSee 1 more doctor answer
Airway Clearance: To help improve lung function & prevent chronic infections, it is important to do airway clearance therapies with the help of breathing treatments (hypertonic saline, recombinant dnase etc.) & techniques that help remove mucus (chest vest, acapella, manual chest physical therapy etc.). Exercise is also important for CF patients. Talk to your CF doctor about an appropriate airway clearance regimen. ...Read more
When babies are born, are they screened for cystic fibrosis? Also, can a chest xray indicate cystic fibrosis in the lungs?
Depends: The specifics of newborn screening are defined on a state to state basis. Many states screen for CF, but this was not added to the screening in my state until about 10 years ago. The x-ray changes that may be seen in some older CF patients are not present in early childhood and not specific to the disease when they are seen. ...Read moreSee 1 more doctor answer
What are the overlapping features of cystic fibrosis and tuberculosis, as revealed by chest x-ray? Responding in technical language is fine.
Why whould their be cysts on the lung I have several of them I never had tb or cystic fibrosis so what would be causing them?
Would it be possible for someone to donate a lung to a cystic fibrosis patient when you are a smoker?
Depends: If your pulmonary function tests show both lungs to have adequate capacity and no significant emphysema then it could be possible. Bear in mind that you both have to be able to live relatively normal lives on the single remaining lung. Both you and the recipient should avoid being in the same room with a cigarette! ...Read more
I was born with cystic fibrosis. I'm now 35 and my lung function has gradually worsened the last years. I know that survival age is about 40 and I'm at peace with that. However, I still wonder: are there any recent findings about cystic fibrosis?
Mgt: I would advise following your lung function closely with your pulmonary specialist, optimizing your nutrition, and treating any exacerbations with antibiotics and chest physiotherapy. The use of DNAase has been shown to be effective. Some patients may benefit from treatments specifically targeted to their genotype. The CF foundation is another good resource for patients. Stay well. ...Read moreSee 1 more doctor answer
Cystic fibrosis and percentage of lung that still functions properly? How low does it need to be to qualify for a transplant?
Around 30 %: Many things about a patient and their cystic fibrosis (CF) are considered when a team is deciding whether or not to do a lung transplant. When lung function gets bad enough that the patient might die with a bad flare up or infection (often near 30%), they may be listed to get new lungs. It usually takes months to get new lungs, so teams want to use that time to improve strength and nutrition. ...Read more
Is lung transplant really worthwhile for cystic fibrosis? I've heard that less than 1% benefit from the procedure?
Lung Transplantation: There are many lung transplantation centers in the U.S. Among the busiest centers, texas children/s hospital performs many lung transplantations per year. The international society for heart and lung transplantation provides statistical information at ishlt.Org. It is also important to consider that you will have many follow up visits, so living close to a center may be important as well. ...Read moreSee 1 more doctor answer
Can benefit some: Lung transplantation is an option when the medical regimen can not prevent further decline in end stage lung disease. The timing of the transplantation is important in maximizing the benefit of the transplant. The average survival at one year is around 90%, five years is approx 55% depending on the center. I hope that this helps. Prmg pediatrics/respiratory fax 858 259 9689 for ?S. ...Read moreSee 1 more doctor answer
Varies: Not everyone has a similar experience post lung transplant. In general, respiratory symptoms and breathing, overall improve, and people are able to do activities they were not able to do before as easily. Not all respiratory symptoms go away. Various medications are required and close follow up is mandatory. Survival after lung transplantation is ~ 50% at 5 years. ...Read moreSee 1 more doctor answer
Long enough to: have a meaningful and purposeful life. The statistics show that over 67% of people who receive a lung transplant are alive and well five years later and more than half of those ten years later. Because the lungs do not carry the mutation, all lung symptoms are gone. You would still have the effect of CF in other organs, however so would still work with the CF team. Read this https://www.cff.org/CF-Community-Blog/Posts/2017/Finding-New-Purpose-After-Getting-New-Lungs/ ...Read moreSee 1 more doctor answer
If I have cystic fibrosis and get a lung transplant, will the disease eventually invade my new lungs?
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