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Doctor insights on: Craniosynostosis In Adults

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I was born w/ no soft spot in my head but the doctor said it was ok and didn't need surgery, so do I now have untreated craniosynostosis as an adult?

I was born w/ no soft spot in my head but the doctor said it was ok and didn't need surgery, so do I now have untreated craniosynostosis as an adult?

See below: If your head is normal shaped then there is likely to be no craniosynostosis. If there is a malformation then yes this is possible, easiest way is to have your local md check your head at your next visit. ...Read more

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Can craniosynostosis be treated in adults?

Can craniosynostosis be treated in adults?

Yes: The surgical restructuring of the bony skull can be done in adults but is more often done in infancy. If interested, I would contact a regional craniofacial center for advise. These are generally found in large metropolitan areas like dallas, and may be associated with a medical school or research facility. ...Read more

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I just wanted to know can adult be diagnosed with craniosynostosis?

I just wanted to know can adult be diagnosed with craniosynostosis?

Craniosynostosis: In an adult a diagnosis is made first with facial stigmata consistent with craniosynostosis and then confirmed by CT or skull x-rays ...Read more

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I would like to know what can be done to correct Lamboid synostosis as a young adult? Not many people seem to have this type of craniosynostosis.

I would like to know what can be done to correct Lamboid synostosis as a young adult? Not many people seem to have this type of craniosynostosis.

Corrected in Infancy: The craniosynostosis types are best corrected in infancy. Beyond that time frame, surgical corrective procedures are lengthy, complicated and costly with no guarantee of improved facial shaping. However, you could ask for a neurosurgical consult on Health Tap for a expert opinion on latest technologies and options for an adult. ...Read more

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What causes craniosynostosis?

What causes craniosynostosis?

Premature Fusion: Of the cranial sutures is responsible for craniosynostosis. Multiple genes have been implicated: FGFRs, TWIST, MSX2, etc, Over half of the single suture cases have no obvious genetic cause, indicating environmental and epigenetic causes contribute to abnormal fusion. ...Read more

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How is "craniosynostosis" treated?

How is "craniosynostosis" treated?

Surgery: Depending on the severity of the skull, and sometimes face, deformity, the baby may require surgery to release the bones that have grown together and to improve the established skull deformity. The child should be evaluated by a craniofacial deformitiesd team prior to and following such surgery when necesary. ...Read more

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Could you inherit craniosynostosis?

Could you inherit craniosynostosis?

Craniosynostosis: Yes you can inherited this disorder. There are now known a number of genes that carry this disorder and it can be passed onto the next generation. What we call the "syndromic" types like Aperts, Crouzons, Sathre Chotzen among others carry a higher risk of passing this along by genetics. ...Read more

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Can you tell me about craniosynostosis?

Can you tell me about craniosynostosis?

Craniosynostosis: The baby's skull is a collection of bones held in position by "sutures" - if one or more of these sutures should close prematurely, that is before birth, the child will have craniosynososis. There are several different types depending on which suture (s) have closed. ...Read more

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What are the symptoms of craniosynostosis?

What are the symptoms of craniosynostosis?

Craniosynostosis: Symptoms is not the correct word here, rather if its the signs or physical findings seen at birth typically from mis-shapened skull and orbit bones. Symptoms really do not occur till later in life when left untreated and the most common would be headaches. ...Read more

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How can you tell a baby has craniosynostosis?

How can you tell a baby has craniosynostosis?

Craniosynostosis: Craniosynostosis is a premature closure of a suture, an area where bones of the skull come together. Typical there is asymmetry of the head with ridging over the suture that has prematurely closed. A consultation with a pediatric neurosurgeon could be very helpful in making the diagnosis ...Read more

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Can a mild form craniosynostosis correct itself overtime if left untreated?

Craniosynostosis: It really depends on the type and and how "mild" it is - in a metopic ridge they often will improve to the point they are not noticeable. A plagiocephaly usually does not correct and if really "mild" to the parents one can follow it. ...Read more

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How do they do the surgery to fix craniosynostosis?

How do they do the surgery to fix craniosynostosis?

Craniosynostosis: It really depends on the type of synostosis and what areas of the head and orbits are affected. Also the age of the child at the time of surgery can be a factor. A consultation with a craniofacial center can answer many of the questions as to surgery. ...Read more

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Does anyone have a child with lambdoid craniosynostosis?

Does anyone have a child with lambdoid craniosynostosis?

Rare: True lambdoid synostosis is rare. Vast majority of cases are positional plagiocephaly and are treated well without surgery, often using helmet therapy. ...Read more

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Can you tell me more about craniosynostosis, scaphocephaly?

Craniosynostosis: Scaphocephaly is a type of craniosynostosis and occurs when a suture, a region where two large bones come together and fuse or close prematurely. This typically leads to a prominent forehead and a very narrowed backside of the head, often with a prominent "knob" at the very back of the head. Depending on the severity of the clinical findings surgery can be recommended for correction ...Read more

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Does an early fusion or closure of a soft spot always indicate craniosynostosis?

Does an early fusion or closure of a soft spot always indicate craniosynostosis?

Two separate issues: Fusion is a word that implies final attachment and the end to growth at the site. Perceived closure of the soft spot does not mean it has reached the final fusion. The skull grows with the suture lines pushing away from each other until they fuse at the end of growth. Skulls reach 90% of their final size by age nine, but true fusion takes place in adulthood. ...Read more

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Does a premature closing of the soft spot necessarily mean a baby has craniosynostosis?

Does a premature closing of the soft spot necessarily mean a baby has craniosynostosis?

No: The skull bones are already fused in craniosynostosis and the head shape should be different in appearance. In addition to examining the fontanelles, your doctor should be following the head circumference. If your baby's head is growing as expected that is a good measure of growth. Often the fontanelle feels closed but is still there. I am not sure of the age of your child and advise may change. ...Read more

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I was born with craniosynostosis, is it possible that my children will have that as well?

I was born with craniosynostosis, is it possible that my children will have that as well?

Craniosynostosis: Read this==>http://en. Wikipedia. Org/wiki/craniosynostosis. The short answer to your question is: yes. I assume you are the only one in your known families on both sides that have had this or else you wouldn't be asking the question. While the majority of cases appear to be due to local bio mechanical causes, evidence is mounting that some cases are genetically determined, maybe 10% or so. ...Read more

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If a child has a soft spot that fuses early or can't be felt, does that automatically mean craniosynostosis?

If a child has a soft spot that fuses early or can't be felt, does that automatically mean craniosynostosis?

Not really: The "soft spot" is quite variable in size. I've seen them a quarter inch or 5 inches across. Given such variability ti time of apparent closure is diverse. Craniosynostosis referrals to an actual physical fusing of the skull plates, which produces a ridge like a steeple that can be easily felt. It also stops skull growth from that site. As long as there is n true joining, just a close its nl ...Read more

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If you're born without a sift spot or yur it closes prematurely, does that automatically mean you have craniosynostosis?

If you're born without a sift spot or yur it closes prematurely, does that automatically mean you have craniosynostosis?

Craniosynostosis: No is the answer - children can have the soft spot close early and it can mean absolutely nothing. The key question is whether the brain and skull are still growing and the child is making normal milestones - if that is the case you can ignore the premature closure. ...Read more

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Any ideas why craniosynostosis happens in new borns?

Any ideas why craniosynostosis happens in new borns?

Craniosynostosis: In most cases it is spontaneous event with no known cause. In some cases it can be genetic due to an abnormal gene. There are also cases related to medications taken during pregnancy. ...Read more

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What and where best to get treatment for craniosynostosis?

What and where best to get treatment for craniosynostosis?

Craniofacial Team: A craniofacial team, with neurosurgeon, facial plastic surgeon, oral surgeon, genetecist, speech pathologist, social worker, etc is best suited to treat this problem. You can get the names of teams at cleftline. Org. ...Read more

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Sagittal craniosynostosis operation, can you tell me about this?

Sagittal craniosynostosis operation, can you tell me about this?

Sagittal synostosis: There are a number of different operations done for sagittal synostosis. Some of depends on the age of the child at diagnosis. A consultation with a craniofacial center can hopefully review all the options that are available. ...Read more

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My child has craniosynostosis (metopic), are there any options other than surgery?

My child has craniosynostosis (metopic), are there any options other than surgery?

Metopic synostosis: Surgery is really the only option at present. Surgery for metopics is really based on how severe the synostosis is on examination. A mild ridge most do nothing. Severe ridge with dimpling lateral to the eyes and close set ears are the more concerning types. ...Read more

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Will minor sagittal craniosynostosis (scaphocephaly) that's untreated, become less noticeable and correct itself over Time?

Will minor sagittal craniosynostosis (scaphocephaly) that's untreated, become less noticeable and correct itself over Time?

Depends: Depends in the degree of synostosis. Sime children require surgical management whereas others we just monitor ever 3-6 months depending on age ...Read more

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Does craniosynostosis mean a baby's soft spot is closed or their suture lines? Are the soft spot and cranio independent of each other?

Does craniosynostosis mean a baby's soft spot is closed or their suture lines? Are the soft spot and cranio independent of each other?

Craniosynostosis: Craniosynostosis is the premature closure of a growth plate or suture. Most children will close only one suture early although some genetic syndromes will close multiple sutures. The soft spot or fontanelle is the point where multiple sutures come together. Fontanelles will usually close with the suture. ...Read more

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What to do if I have craniosynostosis because of my cone shaped head. Anyway to fix carpenters syndrome or craniosynostosis on a teen?

What to do if I have craniosynostosis because of my cone shaped head. Anyway to fix carpenters syndrome or craniosynostosis on a teen?

Craniosynostosis: Craniosynostosis is ideally treated in infancy but having said that our center has done a number of untreated adults or adults whose original surgery did not come out well. A consultation with a craniofacial center with multiple sub-specialities that deal with these disorders would be a good place to start. ...Read more

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Can you tell me where I can find a video of how the surgury procedure is done on a child with craniosynostosis also known as synostosis?

Can you tell me where I can find a video of how the surgury procedure is done on a child with craniosynostosis also known as synostosis?

Video: If you go to www. Stlouischildrens. Org and search craniosynostosis they have a really nice video. Not all surgeries are the same but this is a good example. ...Read more

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Does sagittal craniosynostosis have to be treated? What would happen if a minor case isn't treated? Would a child's head grow mostly normally?

Abnormal head shape: Premature fusion of the sagittal suture would stop growth from that site. Since the growing brain would need more room, it would expand the skull in the direction open to growth. This produces an oblong skull with increased front to back dimension while the side to side remained narrow. True CS needs to be fixed surgically in infancy. ...Read more

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Can a 25 yr old be diagnosed w/ craniosynostosis? What if all sutures have fused? Is there a way to distinguish the ones that fused during infancy?

? afterthought?: The human skull has finished most of its growth by 9 but the many of the sutures tend to remain slightly open until mid adulthood. Craniosynostosis is a term usually reserved for premature closure of one or more sutures while the head s still growing. An abnormal head shape may lead someone to use the term. Physical exam of the suture line is usually all that is needed to suspect/confirm it. ...Read more

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What is the best treatment for craniosynostosis in a 3 month old?

What is the best treatment for craniosynostosis in a 3 month old?

Separate the bones: With craniosynostosis, the skull bones fused together too soon, causing a strange appearance; and leads to functional problems with the eyes, the jaw, and the brain, depending on the problem's severity. The fused bones must be separated by surgery, so the question is when & where to do the surgery. Parents can get 2-3 opinions from nearby medical centers, and go where they feel most comfortable. ...Read more