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Doctor insights on: Community Support Programs For Sarcoidosis Patients

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What is sarcoidosis?

What is sarcoidosis?

Sarcoidosis: Dear jbennett, sarcoidosis is a disease of unknown etiology which can affect almost any part of a patient's body. It is known for the granulomas it produces--non-caseating--which can form commonly in the lungs. About 50% of the patients are african or hispanic origin, there is also a large % from northern europe. It has been found that a patient's immune response creates the granulomas. .. ...Read more

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Dr. Marci Dietrich
852 doctors shared insights

Sarcoidosis (Definition)

Sarcoidosis is a medical condition in which nodules form in various organs including lymph nodes, lungs, eyes, and liver. Common symptoms include cough, chest pain below the breast bone, fatigue, ...Read more


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Hi I was seeing all these checklists and one I didn't see was for sarcoidosis I wonder if any of you doctors had thought about doing one this?

All systems.: A list of common symptoms and systems affected in patients with sarcoidosis is difficult because it can affect every system and be different in each patient. The most commonly affected systems are the skin, the eyes and the lungs. The disease is rarely fatal unless the heart is involved. Treatment depends on which systems are affected and usually by a specialist. ...Read more

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What causes severe bleeding in the bladder of patients with sarcoidosis?

What causes severe bleeding in the bladder of patients with sarcoidosis?

Inflammation : This can be caused by inflammation of the bowel wall, a bleeding problem or low platelet count which could be caused by sarcoid or a kidney problem. To tell these apart you will require an evaluation by a physician as well as some simple tests. ...Read more

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Is it not a good idea to take lysine when a patient has sarcoidosis?

Is it  not a good idea to take lysine when a patient has sarcoidosis?

Insufficient data: There is insufficient data to say yes or no.A study did show that in sarcoid,N-epsilon-carboxymethyl-lysine(compound that builds up in diabetes,aging,kidney failure)binds a receptor in lungs possibly causing inflammation.Importance?Unknown.However, lysine is an "essential amino acid;"if an insufficient amount is ingested, the body breaks down tissues to get it. Advice:Balanced diet,not supplements ...Read more

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Sarcoidosis-how to cure it and is only steroids the only cure ? If steroids making condition worse of sarcoidosis patient in the long run , what to do?

Specialist : Thera are other immune system modulating drugs other than steroids to treat sarcoidosis, but you need to be under the care of a specialist who can choose the appropriate medication for how the sarcoidosis is manifesting itself in your case. Sarcoidosis can effect almost any organ system in your body so seek out the appropriate socialist in your case. ...Read more

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Should sarcoidosis patients avoid allergy shots due to the immune system being involved? Will it aggravate this condition and make it flare up?

Should sarcoidosis patients avoid allergy shots due to the immune system being involved? Will it aggravate this condition and make it flare up?

No problem: Allergy shots have never been proven to exacerbate any other form of immune disorders. In fact, one recent study suggested that those who received allergy shots are less likely to develop autoimmune diseases. Do note that allergy shots are effective only in 80-90% of the patients. ...Read more

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Since the gastric sleeve can cause complication with a sarcoidosis patient. Is the gastric bypass better to have done with sarcoidosis?

sleeve ; sarcoidosis: Neither one (bypass or sleeve) is better than the other with respect to sarcoidosis. Studies have shown that people on immunosuppressive therapy can safely undergo either operation. I would just decide which operation is best for you. In a healthy ; moderately obese person, either operation is fine. If you have gerd, diabetes, or have a bmi over 50, bypass is preferred. ...Read more

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I have recenty been diagnosed as patient with sarcoidosis, I have fatigue and exertional dyspnoea.Do i need treatment?I have asthma and diabetic.

I have recenty been diagnosed as patient with sarcoidosis, I have fatigue and exertional dyspnoea.Do i need treatment?I have asthma  and diabetic.

Rule out other cause: Fatigue is a well described component if sarcoidosis, it is a part of sarcoidosis penumbra( insomnia, fatigue and possible neuropathic symptoms) . Please talk to your doctor to see if other causes have up be ruled out such as hypothyroidism and any sleep related breathing disorders ...Read more

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Do I need to take medication in case I am diagnosed with sarcoidosis, but don't have any symptoms?

No but you need dr.: It is essential that you establish a therapeutic relationship with a doctor usually a Pulmonary Specialist to monitor you through the years. ...Read more

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