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I either have mmn or cidp. I get ivig 2 days a month My sensory nerves are getting better but my motor nerves aren't is there additional treatment ?
YOU NEED TO KNOW: Points to emphasize: 70% respond to IVIG, it may take many months to stabilize strength, over time may be best to consider additions of Cell-cept or Imuran to the IVIG, MMN is different from CIDP and needs to be specifically pinned down. If you are not improving, time for a second opinion at a nearby medical school. ...Read more
IVIG & CIDP: IVIG is a special immune-modulatory treatment used for illnesses like myasthenia, AIDP (Guillain-Barre), and CIDP. CIDP is an illness that causes numbness and weakness by affected the nerves of the body. Trouble walking is a common problem with CIDP. It is a long-term, progressive condition that is sometimes mitigated by IVIG. ...Read more
Not necessary but: It is not necessary to continue ivig treatment in patients withchronic inflammatory demyelenating polyneuropathy there are other drugs like steroids, immunosuppressant drugs, plasmaphoresis and physiotherapy. Ivig is the initial treatment.But every case is different and depends on the response to therapy.Discuss with your treating doctors what is best for you. ...Read more
My son has CIDP and is on mycophenelate morvil and steroids. Have had immunisation appointments through for him. Is it safe? He's 15 years old.
No live vaccines: Avoid live vaccines while under treatment with immunosuppressants, ask his doctor about the vaccines whether they are live (e.g. MMR vaccine), other vaccines are safe to administer, might not fully benefit from them, but he won't be harmed. His treating doctors are aware, wish you both wellness ...Read more
Nerve disease: Chronic inflammatory polyneuropathy polyneuropathy - chronic inflammatory; cidp; chronic inflammatory demyelinating polyneuropathy chronic inflammatory polyneuropathy involves nerve swelling and irritation (inflammation) that leads to a loss of strength or sensation. http://www.ncbi.nlm.nih.gov/pubmedhealth/pmh0001781/. ...Read more
See comments: Cidp is an autoimmune disorder predominantly affecting the myelin coverings of the peripheral nerves, and can readily be controlled in over 80% of people by monthly ivig (intravenous immune globulin) infusions. Life span would not be shortened if the disorder is appropriately managed. ...Read moreSee 1 more doctor answer
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