Top
30
Doctor insights on: Churg Strauss Syndrome Life Expectancy

Share
Dr. Stratos Christianakis
75 Doctors shared insights

Churg Strauss Syndrome (Definition)

Churg Strauss syndrome = a disease that ...Read more


2

2
What is the survival rate of churg-strauss syndrome?

Very good: 90%: The French Vasculitis Study Group published findings of 2 large prospective trials (following affected patients over time into the future) in 2013 which involved 105 patients. Overall survival was 90% at 7 years regardless of baseline severity. Relapses were frequent (38%). Age at or above 65 years was the only factor associated with a higher risk of death during follow-up care. ...Read more

3

3
Is there an immniosuppressant option for churg-strauss syndrome?

Is there an immniosuppressant option for churg-strauss syndrome?

Yes: Depending on severity, there are several options that should be discussed in great detail with your rheumatologists. ...Read more

4

4
What are some immunosuppressant options for churg-strauss syndrome?

What are some immunosuppressant options for churg-strauss syndrome?

See: Http://www. Mayoclinic. Org/diseases-conditions/churg-strauss-syndrome/basics/treatment/con-20028895

Get a more detailed answer ›
5

5
How is churg-strauss syndrome treated?

Immune suppression: Css can be treated by medications that suppress the immune system. Prednisone is most helpful initially. Based on what organ is affected, another agent may be used while Prednisone is tapered. Meanwhile, asthma and nasal/sinus issues can be treated for symptom relief. A rheumatologist diagnoses and treats autoimmune diseases like this and may work with ENT and pulmonary doctors. ...Read more

6

6
What are the tests for churg-strauss syndrome?

Diagnostic markers: Following diagnostic markers
eosinophilic granulocytes and granuloma in affected tissue
antinutrophil cytoplasmic antibodies (anca)
eosinophilia. ...Read more

7

7
What sort of disease is churg-strauss syndrome?

What sort of disease is churg-strauss syndrome?

Involves many organs: Churg-strauss syndrome is an autoimmune disorder that affects small blood vessels and (by definition) includes asthma that is often difficult to control. It commonly affects the vessels of the skin, kidneys, and nervous system among others. It is treated with steroids and usually a drug called cyclophosphamide. ...Read more

8

8
What are the symptoms of churg-strauss syndrome?

What are the symptoms of churg-strauss syndrome?

Rash, kidney disease: This is a form of vasculitis, often related to allergic reaction, which can produce rashes, kidney disease and other multisystem damage. ...Read more

9

9
What are the chances of surviving churg-strauss syndrome?

Good nowadays: This is actually more responsive to glucocorticoids than are some of the other vasculitis syndromes. I have a colleague who had to take a year off to be treated, but who survived and is fine now. ...Read more

10

10
What are the minimum tests needed to diagnose churg-strauss syndrome?

4 of these 6: Asthma, eosinophilia (>10%), neuropathy, migratory pulmonary infiltrates, paranasal sinus disease, eosinophilic vasculitis of small/medium blood vessels. Css is incredibly rare. ...Read more

11

11
Are there official recommendations for treating churg-strauss syndrome?

Yes: You need to see an asthma or pulmonary specialist for specific treatment. Every patient is different and need to be treated individually. What works for one patient might not work for another. This disorder can be well-controlled with simple therapy but the occasional exacerbation does happen and needs immediate treatment. ...Read more

13

13
Hello sir my sis is 27 years old she has been diagnosed with churg-strauss syndrome I just want to know whether she would be able to live a normal lif?

Hello sir my sis is 27 years old she has been diagnosed with churg-strauss syndrome I just want to know whether she would be able to live a normal lif?

Unfortunate: This is a difficult and I hope the family offers high level support. She will need close follow up with rheumatologist or immunologist. Most common complication affecting life is coronary vascular disease and heart attack or failure. Without treatment, 5-yr survival rates are 25% and are 62% with. If she responds well to treatment and has good baseline health, she may do well for many years to come ...Read more

14

14
My doctor says I have churg-strauss syndrome, but I don't understand. What does it mean?

CSS: Churg-strauss syndrome (css) is an inflammation of the blood vessels that can lead to chest symptoms that mimic asthma. Css is typically associated with sinus disease, elevated eosinophils your blood, occasional abnormal chest x-ray finding and neurological symptoms. It can be a very serious disease if not treated appropriately. ...Read more

15

15
My neighbors say my new doctor tends to overdiagnose everyone. He thinks I might have churg-strauss syndrome. Can you tell me the symptoms?

Severe asthma: Css is a form of blood vessel inflammation (vasculitis) that typically presents as severe asthma requiring oral Prednisone to control. Steroids control asthma but not the underlying inflammation so that when your doctor tries to lower the dose other symptoms appear - bruising, rhinitis, gastrointestinal bleeding. The astute physician will note these additional symptoms & order appropriate tests. ...Read more

16

16
I'm having abdominal pain, could it be churg strauss syndrome and what are the other symptoms?

I'm having abdominal pain, could it be churg strauss syndrome and what are the other symptoms?

Churg-Strauss??: In the 24 years that I have been in practice, I have never seen Churg-Strauss cause abdominal pain. It can cause asthma and can cause pain in the hands and feet, and even occasionally cause G.I. bleeding, but hardly ever abdominal pain. Your abdominal pain most likely has another cause. Good luck.. ...Read more

18

18
Can you still have a gastric bypass when you have systemic vasculitis (churg strauss syndrome)?

Probably: Vasculitis alone does not rule out the possibility of having gastric bypass surgery. However, severe symptoms may increase your risk of certain complications. High dose steriods for example may complicate wound healing. ...Read more

20

20
Love indian culture and yoga. Can I ask an indian doctor at a us hospital to use some treatments from there to heal me of churg-strauss syndrome?

Love indian culture and yoga. Can I ask an indian doctor at a us hospital to use some treatments from there to heal me of churg-strauss syndrome?

No: Churg-strauss is treated. It is not something that can be healed. You must not be foolish about this disorder. Trying unproven methods for treatment can endanger your life. ...Read more

21

21
Is Singulair safe to take long-term? Can it cause Churg-Strauss syndrome? On and off it for 3 years, only drug that clears up mucus in nose and throat

Is Singulair safe to take long-term? Can it cause Churg-Strauss syndrome? On and off it for 3 years, only drug that clears up mucus in nose and throat

Considered safe: All medications have potential side effects, some of them severe, and Singulair is no exception. Churg-Strauss is among those possible effects. However, Singulair is considered on the safer end of the spectrum. Naturally, the longer you are on a medication, the more likely it is that a side effect would occur, but there are no specific recommendations against long-term use of Singulair. ...Read more

22

22
Lenox gastaut syndrome average life expectancy?

Lenox gastaut syndrome average life expectancy?

Haven't seen numbers: Haven't seen any numbers on life expectancy of lennox-gastaut patients. Maybe nobody has collected and published that information. One website reported a 3%-7% mortality in patients over a 9 year period (that sounds like 1/2 % per year). The deaths were often due to accidents. In such disorders, if a person is watched and cared for closely, he can outlive parents, and die of other natural causes. ...Read more

23

23
What is the life expectancy with triple x syndrome?

What is the life expectancy with triple x syndrome?

Normal: Life expectancy should be normal. There are no effects that affect heart, or other major systems that would reduce life expectancy. ...Read more

24

24
What is the life expectancy for kids with noonan syndrome?

What is the life expectancy for kids with noonan syndrome?

May be normal: Children with Noonan's Syndrome may have cardiac abnormalities such as pulmonic stenosis, ASD (atrial septal defect), VSD (ventricular septal defect). If these abnormalities are mild, then the life expectancy may be normal. ...Read more

25

25
Can you please lay out the life expectancy for people who have down syndrome?

Can you please lay out the life expectancy for people who have down syndrome?

Average > 60 yrs: As long as the initial issues facing these infants are addressed as they would for normal kids (heart defects, abdominal defects, etc) they have a projected lifespan in excess of 60 years. ...Read more

26

26
What is the life expectancy for people with loeys-dietz syndrome?

What is the life expectancy for people with loeys-dietz syndrome?

Not Known: This disease has been diagnosed in about 300-500 people and is known as a disease entity only since 2005. Life expectancy is expected to increase like in Marfan's syndrome with improved awareness and medical progress.

Due to the high risk of death from aortic aneurysm rupture, patients should be followed closely.

A valuable resource for this is
http://www. Loeysdietz. Org/index. Ph. ...Read more

27

27
What is the life expectancy of someone woth kearn- sayres syndrome?

What is the life expectancy of someone woth kearn- sayres syndrome?

No data about this: Life expectancy is generally reduced but there is no data available to tell us how much it is reduced. It depends on the complications of the disease, especially if there are cardiac problems. ...Read more

29

29
What is the life expectancy for kids who have treachers collins syndrome?

What is the life expectancy for kids who have treachers collins syndrome?

Normal: If the craniofacial abnormalities are addressed then the life expectancy can be otherwise normal. ...Read more

30

30
My friend has a mild form of marphan syndrome. She takes her medication. What's her life expectancy?

My friend has a mild form of marphan syndrome. She takes her medication. What's her life expectancy?

Marfan syndrome: With excellent care, can be normal. Cardiac and vascular care by specialists is essential. ...Read more