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Doctor insights on: Chronic Hemicrania

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What should I know about cph - chronic paroxysmal hemicrania?

What should I know about cph - chronic paroxysmal hemicrania?

Tough to treat: This can be quite debilitating to some, but many treatments are avaiable. Indocin belongs to the antiinflammatory meds and it is often first choice, but does not work for everyone. There are other classes/meds used for this: calcium chanel blockers (i.E verapamil), steroids (prednisone), acetazolamide, and topamax (topiramate) have been used successfully in many patients. So, consult doc. Good luck. ...Read more

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What surgical or alternative (not drugs) treatments are available for chronic paroxysmal hemicrania?

What surgical or alternative (not drugs) treatments are available for chronic paroxysmal hemicrania?

Want surgery?: There is NO surgery that is beneficial. Drugs such as Indocin, (indomethacin) Lithium, even Naproxen might be useful. OTC includes butterbur, feverfew, magnesium, riboflavin, CoQ-10. Did you see a doctor and discuss this? ...Read more

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What is the process of being dx with paroxysmal hemicrania? Is it a complicated diagnosis or is recognizable?

What is the process of being dx with paroxysmal hemicrania? Is it a complicated diagnosis or is recognizable?

Rare conditions: Paroxysmal Hemicrania is a rare condition. However, it should be recognizable to a neurologist. The process of being diagnosed would be if one's symptoms matched the disease state, clawlike headaches radiating to the back of the neck, associated with nasal congestion and sometimes ptosis. This type of headache is a "zebra" because other types of headache are more common.http://tinyurl.com/5had5z ...Read more

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Possible paroxysmal hemicrania not responding to any medication after 8 months. Started getting worse. Should I get more scans/tests?

Possible paroxysmal hemicrania not responding to any medication after 8 months. Started getting worse. Should I get more scans/tests?

Headache: Are you seeing a headache specialist or neurologist? If not,get a consultation at a headache clinic and appropriate tests will be done in order to make a diagnosis and get you proper treatment. ...Read more

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If Idomethacin is such a dangerous drug, why do Dr.'s still prescribe it? Is there something better? I'm diagnosed with Hemicrania Continua.

If Idomethacin is such a dangerous drug, why do Dr.'s still prescribe it? Is there something better? I'm diagnosed with Hemicrania Continua.

Indomethacin is KING: DANGEROUS-strong word. Most significant GI side effects are GI which is why 20% of patients with side effects stop drug due to side effects of a GI nature. It's the BEST drug available to treat HC. Response to the drug is often diagnostic of the headache. BUT, recent studies suggest BOTOX MAY be good option. Wanna Chat? www.healthtap.com/drsaghafi Use Key Code: PDXFNR P.S. Your doc sure it's HC? ...Read more

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Diagnosed with hemicrania continua.Indomethacin is not working.What next?

Hemicrania continua: How much indomethacin have you tried? If you gave it a try, perhaps a prevention medicine, such as amitriptyline, would help you. http://www.ninds.nih.gov/disorders/hemicrania_continua/hemicrania_continua.htm ...Read more

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With hemicrania continua, is there anything that can be done medically/surgically or just with indomethacin and other drugs?

With hemicrania continua, is there anything that can be done medically/surgically or just with indomethacin and other drugs?

See below: Indomethacin is the best medication. For those that can't tolerate it Celexa (citalopram) has been helpful. Tricyclic antidepressants have also been used.Other medications with case reports of efficacy include melatonin, topiramate, verapamil and gabapentin. Radio frequency ablation of supraorbital branch of trigeminal N, Botox, and deep brain stimulation have been used. ...Read more

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Indomethacin for hemicrania continua. Based on 1 week of use, one 25mg pill kills pain for near 24hrs. Ok to use it this way rather than 3x day as rx.

Hemicrania continua: is an indomethacin-responsive headache disorder. The appropriate dose will vary among patients. The initial dose is that dose which results in resolution of headache, and in your case 25 mg. However, always ask your doctor for more information about your individual situation. ...Read more

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Can cold weather bring on Hemicrania Continua?

Not typically: Although stress is thought to be a trigger one could make a case for the stress of cold weather but it has not been definitively proven to be a known trigger. If one has the diagnosis of hemicrania continua, indomethacin treatment should be started. ...Read more