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Doctor insights on: Chordoma

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Can chordoma affect the vision?

Can chordoma affect the vision?

Chordoma diplopia: Chordomas are rare, malignant tumors arising in the spine but which can spread elsewhere. Most are large when first discovered and if located at the base of the skull can affect the nerves to the eye muscles leading to visual doubling (diplopia). This, along with headache, is the most common early symptom of chordoma. ...Read more

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Can chordoma cancer be the cause of the pain that i'm having below my tailbone?

Can chordoma cancer be the cause of the pain that i'm having below my tailbone?

Yes: By the nature of chordomas being involved in the spinal cord or canal, they are capable of pushing in nerve roots and even spinal cord both of which can cause severe pain or weakness. There are other causes of such pain, but chordomas can cause it as well. Should check with your neurosurgeon or neurologist. ...Read more

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I have a sacral chordoma. I've endured 3 surgeries first in '99, and nov/10. Tumors still exist. Best way to remove them?

I have a sacral chordoma. I've endured 3 surgeries first in '99, and nov/10. Tumors still exist. Best way to remove them?

Proton beam: Chordoma is known for its tendency to recur. If it can be resected again, surgery would be worthwhile. Proton beam radiation has shown a lot of promise for this disease and is more effective than conventional radiation. Regardless whether surgery is feasible or not, that's also a modality to consider. Some chemotherapy agents, like imatinib, can also be tried. Go to a large oncology center. ...Read more

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What are symptoms of a sacral or coccyx chordoma? Is a pointy or sharp tailbone that protrudes a symptom of this disease?

Few symptoms: Chordoma is a rare malignancy of the lower sacrum, typically in male patients over 40. It is often associated with deep pain in pelvis/sacrum, and bowel obstruction due to the mass interfering with evacuation of colon. Neurologic symptoms are rare until late and include sciatica and bowel/bladder dysfunction. Tumors are slow growing, hard to resect/cure, and often found late in the disease. ...Read more

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Would a sacral or coccyx chordoma show up on plain xray?

Would a sacral or coccyx chordoma show up on plain xray?

They can: Yes, depending on the soft-tissue density, some chordomas create a shadowing effect and would indicate that a more eloborate imaging study is necessary. ...Read more

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What is the difference between a macro prolactinoma & a prolactin producing cellar chordoma? Thanks!

What is the difference between a macro prolactinoma & a prolactin producing cellar chordoma? Thanks!

Look & act different: True prolactinomas arise from and mimic cells of the adult pituitary gland. The less common "pseudoprolactinoma" is a chordoma, a tumor of the vestigial notochord left over from the unborn child; it may disrupt the communication between brain and pituitary and produce hyperprolactinemia. Treatment will probably be different; both are challenges. Good luck. ...Read more

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Burning anus/tailbone pain. Sensitivity in area. Is this a symptom of a chordoma or am I ridiculous for thinking this?

Burning anus/tailbone pain. Sensitivity in area. Is this a symptom of a chordoma or am I ridiculous for thinking this?

Exclude hemorrhoids: Rare diagnoses are rarely correct. Chordoma is an uncommon tumor. It would be prudent to rule out hemorrhoids, that seem to be able to explain your symptoms, before considering other diagnoses. ...Read more

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We spoke to neurologist secretary and she said it's a notochord BNCT. I will need follow up MRI's as Chordoma could develop. Do you think biopsy is required? Thank for your help.

We spoke to neurologist secretary and she said it's a notochord BNCT. I will need follow up MRI's as Chordoma could develop. Do you think biopsy is required? Thank for your help.

Complex question: This condition is complex, so I hope the advice is coming from a neurologist, not his/her secretary. Benign Notochord Cell Tumor (BNCT) & chordoma are very similar in origin. The main difference in them is how much contrast is taken up during an MRI. More contrast uptake suggests chondroma, a condition requiring biopsy & surgery. BNCT may progress to chordoma. See nih.gov/pmc/articles/PMC4212531/ ...Read more

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I have a small pea sized movable lump on my tailbone under my skin. Noticed it about 2 years ago. Not painful or red. Pilonidal cyst? Chordoma?

I have a small pea sized movable lump on my tailbone under my skin. Noticed it about 2 years ago. Not painful or red. Pilonidal cyst? Chordoma?

Neither: Neither of those match that description. I would lean towards lipoma versus a sebaceous cyst, but ultimately it needs to be seen to determine. I would suggest you see your doctor for further eval. ...Read more

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21-Female Tailbone pain for about 1.5 mths. No injury remembered. X-ray done and spine curvature found. No numbness/bladder problems. Sacral chordoma?

21-Female
Tailbone pain for about 1.5 mths. No injury remembered. X-ray done and spine curvature found. No numbness/bladder problems. Sacral chordoma?

Varies : Are you saying you do have a sacral chording? If so, that is your answer. A much more common cause is known as coccydynia, which literally means pain from the tailbone. I would not hesitate to be seen. An exam and appropriate studies can usually determine the cause. ...Read more

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Clivus chordoma cancer patient feeling pain in joints a lot Doctor said she need surgery but no size inc Will this pain goes aways after-surgery ?

Clivus chordoma cancer patient  feeling pain in joints a lot
Doctor said she need surgery but no size inc
Will this pain goes aways after-surgery ?

Depends: Chordoma is a rare type of sarcoma that is aggressive and can metastasize, or travel to other parts of the body and spread the cancer, making things worse. Once you know why the pain is happening, you will have your answer. Surgery is likely a good next step if your doctor thinks this is appropriate ...Read more

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What are the symptoms of chordoma tailbone pain? Would weight loss/loss of appetite be one? Tailbone/legs tingles when sitting in certain positions.

What are the symptoms of chordoma tailbone pain? Would weight loss/loss of appetite be one? Tailbone/legs tingles when sitting in certain positions.

Location depends : Characteristic symptoms are back and or Lauren extremity pain. Some patients have what we call autonomic symptoms especially rectal dysfunction or urinary incontinence. You need to get a clarification by your physician and a neurologist. Surgery is the most common therapy. You need to see a specialist. There is also available certain biologic therapy's. your team will have to make the best advice. ...Read more

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Would sacral chordoma show up on a ultrasound? Masses in sacral up to 4cm. No mass shows on us or xray.Doc is leaving it at that.Should I ask for ct?

Would sacral chordoma show up on a ultrasound? Masses in sacral up to 4cm.  No mass shows on us or xray.Doc is leaving it at that.Should I ask for ct?

I always ask if: Doing a test will change the management of the problem. If the treatment is the same, does this test need to be done? Do you, or does your doctor have any reason to doubt the diagnosis? You are better off asking for a second opinion when in doubt rather than another test. And if the test results won't affect what you do about it then the answer is clearly no. Think about this and discuss w/ MD. ...Read more

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Clivus chordoma patient having flu Stiff neck and sore throat Her body is paining due to fever What will be best medicine to take away this flu ?

Clivus chordoma patient having flu 
Stiff neck and sore throat 
Her body is paining due to fever
What will be best medicine to take away this flu 
?

Neurologist this am: The treatment for flu is symptomatic Tylenol (acetaminophen) and ibuprofen. The stiff neck means you need to contact the treating neurologist this morning. Viral infections can sometimes cause meningitis. That could cause a stiff neck (rather than the chordoma). If you can't reach him/her she needs to go to an urgent care center or ER ...Read more