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Doctor insights on: Chordoma

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Can chordoma affect the vision?

Can chordoma affect the vision?

Chordoma diplopia: Chordomas are rare, malignant tumors arising in the spine but which can spread elsewhere. Most are large when first discovered and if located at the base of the skull can affect the nerves to the eye muscles leading to visual doubling (diplopia). This, along with headache, is the most common early symptom of chordoma. ...Read more

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What are symptoms of a sacral or coccyx chordoma? Is a pointy or sharp tailbone that protrudes a symptom of this disease?

What are symptoms of a sacral or coccyx chordoma? Is a pointy or sharp tailbone that protrudes a symptom of this disease?

Few symptoms: Chordoma is a rare malignancy of the lower sacrum, typically in male patients over 40. It is often associated with deep pain in pelvis/sacrum, and bowel obstruction due to the mass interfering with evacuation of colon. Neurologic symptoms are rare until late and include sciatica and bowel/bladder dysfunction. Tumors are slow growing, hard to resect/cure, and often found late in the disease. ...Read more

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Can chordoma cancer be the cause of the pain that i'm having below my tailbone?

Can chordoma cancer be the cause of the pain that i'm having below my tailbone?

Yes: By the nature of chordomas being involved in the spinal cord or canal, they are capable of pushing in nerve roots and even spinal cord both of which can cause severe pain or weakness. There are other causes of such pain, but chordomas can cause it as well. Should check with your neurosurgeon or neurologist. ...Read more

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I have a sacral chordoma. I've endured 3 surgeries first in '99, and nov/10. Tumors still exist. Best way to remove them?

Proton beam: Chordoma is known for its tendency to recur. If it can be resected again, surgery would be worthwhile. Proton beam radiation has shown a lot of promise for this disease and is more effective than conventional radiation. Regardless whether surgery is feasible or not, that's also a modality to consider. Some chemotherapy agents, like imatinib, can also be tried. Go to a large oncology center. ...Read more

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Would a sacral or coccyx chordoma show up on plain xray?

Would a sacral or coccyx chordoma show up on plain xray?

They can: Yes, depending on the soft-tissue density, some chordomas create a shadowing effect and would indicate that a more eloborate imaging study is necessary. ...Read more

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What is the difference between a macro prolactinoma & a prolactin producing cellar chordoma? Thanks!

What is the difference between a macro prolactinoma & a prolactin producing cellar chordoma? Thanks!

Look & act different: True prolactinomas arise from and mimic cells of the adult pituitary gland. The less common "pseudoprolactinoma" is a chordoma, a tumor of the vestigial notochord left over from the unborn child; it may disrupt the communication between brain and pituitary and produce hyperprolactinemia. Treatment will probably be different; both are challenges. Good luck. ...Read more

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I have a small pea sized movable lump on my tailbone under my skin. Noticed it about 2 years ago. Not painful or red. Pilonidal cyst? Chordoma?

I have a small pea sized movable lump on my tailbone under my skin. Noticed it about 2 years ago. Not painful or red. Pilonidal cyst? Chordoma?

Neither: Neither of those match that description. I would lean towards lipoma versus a sebaceous cyst, but ultimately it needs to be seen to determine. I would suggest you see your doctor for further eval. ...Read more

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21-Female Tailbone pain for about 1.5 mths. No injury remembered. X-ray done and spine curvature found. No numbness/bladder problems. Sacral chordoma?

Varies : Are you saying you do have a sacral chording? If so, that is your answer. A much more common cause is known as coccydynia, which literally means pain from the tailbone. I would not hesitate to be seen. An exam and appropriate studies can usually determine the cause. ...Read more

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Clivus chordoma cancer patient feeling pain in joints a lot Doctor said she need surgery but no size inc Will this pain goes aways after-surgery ?

Clivus chordoma cancer patient  feeling pain in joints a lot
Doctor said she need surgery but no size inc
Will this pain goes aways after-surgery ?

Depends: Chordoma is a rare type of sarcoma that is aggressive and can metastasize, or travel to other parts of the body and spread the cancer, making things worse. Once you know why the pain is happening, you will have your answer. Surgery is likely a good next step if your doctor thinks this is appropriate ...Read more