Doctor insights on:
Chiari Malformation Decompression Surgery
I thought when you had surgery for chiari 1 malformation decompression surgery that the headaches would go away but they are worse than ever and pain meds don't work you have to go lie down. What's up with this?
Lowpressure syndrome: Surgery for chiari 1 involves either or both resection of lowest part of cerebellum (causing the actual brainstem compression) or removal of lowest part of occipital bone and lamina of c1 & sometimes c2. This may result in sagging of brain into surgical defect causing the equivalent of spinal tap headache--ie low pressure in head due to too much decompression. Another surgery might be needed. ...Read moreSee 1 more doctor answer
Can decompression surgery for chiari malformation 1 relieve vision problems/issues (like blurry/double vision or seeing flashes) caused by chiari?
Depends: The goal of Chiara surgery is to restore the normal pattern of CSF flow & thereby prevent further deterioration of the visual (& balance) symptoms of the ACM malformation. Whether this helps existing symptoms depends on how long those symptoms have been present, the type of surgery contemplated, it's success rate, age, & underlying factors. It's a question to ask the neurologist who knows you best ...Read more
I have chiari malformation. Decompressed 2012, CSF leak surgery 2012, vp shunt 2013. Carpal tunnel result of chiari? Only small relief after surgeries
No relationship: Compression of the median nerve at the carpal tunnel has no relationship to the chiari malformation. Patients with chiari i malformation may have syringomyelia, which can cause neck and arm symptoms. However, carpal tunnel syndrome is very specific to the nerve at the wrist. Your neurosurgeon can help distinguish between the two conditions, and explain why you still have symptoms. ...Read more
I had surgery for chiari malformation 1 decompression 1 yr ago. The headaches and other symptions haven't gone away. Will they? Why not? Does chiari ?
Moderately risky: Chiari decompression surgery is considered moderate risk surgery. In other words, its not like having your appendix or hernia repaired but its also not like having a complex brain tumor or aneurysm worked on either. The major risks of this surgery are severe (sometime chronic) neck pain, bleeding, infection, and a small risk of spinal fluid leak. The more scary risks (stroke) are very rare. ...Read moreSee 1 more doctor answer
Many things: Surgery to decompress the herniations can either focus on removing some of the bones to allow more room, or detangling the spinal cord as it leaves the brain (rarely done). This is serious surgery that can result in infections, paralysis, problems breathing, and worse. However neurosurgeons today are incredibly trained and can do amazing things! ...Read moreSee 1 more doctor answer
Possibly: Typically, asymptomatic chiari type-1 malformations are not recommended to undergo a sub-occipital decompression unless there are other associated findings. In children, if there is associated hydrocephalus, or a cervical region syringomyelia, a sub-occipital decompression may be indicated. This is to prevent future neurological decline. ...Read more
It is: Chiari described different types of developmental defects of the cerebellum. Type 2 is associated with spina bifida, type 3 and type 4 are severe defects. You are probably talking about type 2 associated with spina bifida. It can cause breathing and swallowing problems. Treatment with surgery is controversial. ...Read more
Absolutely: A chiari 1 malformation is not a dangerous condition. It is usually found incidentally during the workup for a headache. The only reason to have surgery is to relieve symptoms, and often the symptoms and the chiari are unrelated so surgery doesn't help. If you do not have symptoms, then you absolutely should not have surgery. ...Read moreSee 1 more doctor answer
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