Doctor insights on:
Carcinoid Syndrome In Children
Carcinoid refers to neuroendocrine tumors originating in gastrointestinal (GI) tract, lungs and appendix. They are usually indolent developing over many years. Aggressive, fast-growing forms such SCLC known as Oat Cell Ca of lung represents neuroendocrine carcinoma that exhibits rapid growth and early spread to distant sites. They are sensitive ...Read more
Imaging too: If the blood and urine tests suggest carcinoid, a pet scan is the next best test to try to localize the tumor. Octreotide scanning does not have great resolution. There are newer imaging studies available at select centers. These scans use a higher resolution marker to better see small volume disease. This can help us understand extent of disease and symptoms better. ...Read more
Confirm: First you have to confirm the diagnosis. If diagnosis made, then the extent of disease needs to be evaluated. If limited and no symptoms, there is nothing to do. If there is extensive disease, then either systemic therapy alone or along with surgical intervention. Hope this helps. ...Read more
Years: It is almost always in years, depending on the extent of disease. It is a wide range, anywhere from a year and a half to 12-15 years. ...Read more
I was getting flushed once a week, then each few days now it's every day. Hot bright dryflush that lasts. Dr wants carcinoid syndrome test. What is it?
Good idea: The usual screen is urinary 5hiaa. Seem chromogranin is a new pricy test. Good luck with this. ...Read more
Restate question: Hello huzefafn8. Can you restate your question? In the current form it is not understandable. ...Read more
Multidisciplinary: Tratment is multidisciplinary between surgeons, medical oncologists and intervention radiologists often. The goal is symptom control with medications or surgery or tumor ablation. Medications such as octreotide control diarrhea, flushing, rash, etc. Tumor control is achieved by surgery or tumor ablation or regional chemothearpy. ...Read more
Depends on stage: Carcinoid syndrome is different than having a carcinoid tumor. The syndrome is caused by the tumor secreting a hormone (serotonin) which can cause flushing, heart palptitations, and diarrhea. Can get carcinoid tumors in the tracheobronchial tree and gastrointestinal ttact. Survival depends on whether the tumor can be removed, and whether it has read to other organs. ...Read more
Quite long usually: Of all the variants of neuroendocrine cancer, carcinoid is usually very slow growing and we measure life expectancy in years to decades of life. This does not however mean that they do not produce quality of life limiting symptoms for patients with carcinoid syndrome. The syndrome can lead to malabsorption and its associated nutritional consequences as well as valvular disease of the heart. ...Read more
Is it possible to have the separate diagnoses of carcinoid syndrome and sarcoidosis at the same time?
Yes: An octreotide scan or octreoscan is a type of scintigraphy used to define metastatic carcinoid lesions. Octreotide, is a drug similar to somatostatin. It is radiolabeled with indium-111 to seek out the carcinoid lesions and is then delivered intravenously. Radioactive octreotide attaches to tumor cells that have receptors for somatostatin and releases a radioactive signal that can be detected ...Read more
I can help you!: Send us your medical history indicating where your Carcinoid tumor/s is located and if it is producing symptoms of Carcinoid syndrome which included Facial flashing and Diarrhea. The results of an imaging test such as a CT scan of the chest /Abdomen can help us decide if and when you may need active treatment. ...Read more
Can two 24 hr 5 hiaa urine tests elevated at 50 be a false positive for carcinoid syndrome if all diet?
I am a carcinoid syndrome patient and I will be having surgery soon. I have heard that anesthetics can be a problem. Is this true?
Somatostatin: Patients with carcinoid syndrome from a tumor are at an increased risk of having carcinoid crisis during induction of anesthesia or manipulation of the tumor intraoperatively. Preoperative treatment with a somatostatin analog (e.g. Octreotide) should decrease this risk. This medication should also be readily available during surgery. ...Read more
It is well known med: A well known medical condition, it is caused by carcinoid tumors, mostly found in the abdomen. It consists of repeated flushing of the skin which can turn you into red beet like skin especially on your face. Most people also have frequent diarrhea along with the episodes of flushing. These are slow growing tumors and can go on for many years. ...Read more
Hours: Carcinoid syndrome is symptoms associated with carcinoid tumors -- tumors of the small intestine, colon, appendix, and lungs. These tumors release too much serotonin, and other chemicals that cause the blood vessels to open (dilate) leading to flushing of the face, neck or chest.. Sometimes symptoms are brought on by exercise, red wine, blue cheese that contains tyramine. Symptoms occur in hours. ...Read more
I get night time facial flushing and palpitations last few minutes to hour 61yrs thru menopause is it carcinoid syndrome?
How much metastasis does there need to be to cause carcinoid syndrome from midgut carcinoid tumors?
Flushing, lightheadedness, abd pain, & tachycardia for over a month. If 5-hiaa is normal should further testing be done for carcinoid syndrome?
Yest: I think one of the most important diagnostic consideration will be excluding pheochromocytoma another tumor responsible for a neuro endocrine response. The other thing that we need not to forget, we need to focus on the horses not on the zebras. We need to check thyroid function, drug use or abuse, medication review etc. ...Read more
In its genealogy, how long does it usually take for carcinoid tumor to metastize to the liver and subsequent progression into carcinoid syndrome? Ty
Slow/unpredictable: Carcinoid tumors are commonly very slow growing tumors. It takes them 10 to 20 years (or longer) to run their course. We can not be exact in predicting when, or if, the carcinoid will spread to the liver. So relax and try not to make any predictions. Most of my patients have no problems for decades of relatively good life despite a tumor nodule or two siting some place in the belly. ...Read more
Carcinoid syndrome: Carcinoid syndrome is cluster of symptoms that can include-chronic flushing and/or diarrhea/wheezings which is the result of secretion of serotonin and other vasoactive substances into the systemic circulation. The carcinoid syndrome is primarily associated with metastatic carcinoid tumors usually from the midgut - to the liver. Carcinoid is a type of cancer- neuroendocrine tumor. ...Read more
Yes: Carcinoid syndrome is a series of complaints noted by patients with carcinoid of the GI tract secondary to the production of serotonin. It is characterized by diarrhea. Flushing of the skin or face, shortness of breath and wheezing. When the hormone reaches the liver it is detoxified so that to appear, liver mets secreting the hormone is necessary. Treatment requires resecting the primary tumor ...Read more