Doctor insights on:
Broken Stable C1
Don't do it!: You should not remove a halo without the advice of your treating physician. This device is important to provide stability to healing vertebrae. Fractures that high up on your spine can be quite devastating as damage to your spinal cord at this level affects basic functions such as breathing. Please follow your doctor's advice on this! ...Read more
EMG/NCV test on 28th to determine extent and cause of damage. Neuro mentioned C1-C3. What nerves are in this area? Where can I find good nerve diagram?
Don't be your doctor: Since you are taking antidepressants and migraine meds you might create more problems for yourself if you start trying to be your own doctor. Make notes of what you have, with details, and let the doctor figure it out. This may not be a comfortable approach, but it might be your best. ...Read more
Urine culture: This is a contaminated specimen and it means absolutely nothing. What symptoms do you have, what does your urinalysis show, what were the results of your physical exam and basic lab tests? The internet is not a place in which to turn for a diagnosis. Good luck and you should discuss this with the doctor who ordered it. If still need results get a clean midstream catch into a sterile container. ...Read more
Varies: It varies somewhat based upon the exact nature of what you are discribing. If you actually had an injury that actually led to a dislocation between C1 and C2, it is unlikely you would have survived, as a complete injury to the spinal cord at that level takes out the ability of a person to breath on his own. C1-C2 instability is much more common, and a fusion is the surgery of choice. ...Read more
I would like to what I can do for my cronic pain in the c1-c6 area of my neck. I have had this since 2006.What to do?
Sept 1 2016 my son was hit by a car, c5 diagnosis but when we arrived in rehab the diagnosis was changed to a C1 due to bleeding on the nerves. Help?
Another doctor: ? what treatments are for DDD & fibromyalgia (FM) in 38 yo. DDD merely radiologic descriptor &, as applied to 38 yo, not pain generator. Find another physician, preferably Osteopath. FM cause is multifactorial soft tissue injuries requiring several non-toxic natural therapies, including weight loss & exercise (aquatherapy, gentle yoga, walking), to reconstitute proper soft tissue function & cure. ...Read more
I don't know: But people can live for a long time after spinal cord injury. Its more about other care issues. You want to make sure you don't get bedsores or any complications from not feeling your body below the injury. ...Read more
My daughter was diagnosed with Stenosis of the Foramen Magnum and a syrinx extending from C1-Tll at age 6. What is expected long term?
Surgery @ some point: The syrinx may not be very symptomatic now but this with the narrowing of the bony entrance to the spinal cord will likely cause chronic headaches and other symptoms by the teen years. At some point they will want to go in and remove the bag like syrinx and create more room in the bony entrance to the cord. It is a major surgery but in gifted hands can solve the problem. ...Read more
I was tested for suspected Hereditary Angioedema. The results came back showing my C1-INH function 58% and antigen 59% (range 70-130). What does mean?
Probably: The findings are compatible with HAE especially in the presence of a low C4 level and compatible features of HAE. Many effective treatments are available and I think the next step is for you to consult an allergist for options in treating this potentially life-threatening condition. ...Read more
Congenital odontoid anomaly + MVA = complete instability of c1-c2. Need advice on fusion with abnormality. Will send images to anyone who can help.
Os odontoideum: Os odontoideum is a small tip of the odontoid (peg of C2) that has become separated either congenitally or from remote trauma. In some patients there is no instability and with an intact transverse ligament no surgery is required. In patients with instability, the surgery can be performed from the back of the neck or through the mouth. Real time fluoroscopic images can determine stability status. ...Read more
My top vertebrae (C1 C2) are unstable. 2day getting new zaps pain off/on near this area on left side where there's now a visible lump. Is this urgent?
Yes: I'm not sure how you know you have c1-2 instability, but it can be a serious problem. Knowing if you have any systemic problems that might lead to this would be helpful. I'd see any orthopedist and get x-rayed and a possible MRI. You didn't say if it's chronic or related to an injury, which is important. ...Read more
Yes.: After soft tissue trauma or inflammation, imaging findings of calcifications may be seen in various regions of the body such as a calcific tendinitis of the shoulder or with hip bursitis as well as in the neck. They are secondary findings as a result of the inflammation &/or trauma and do not cause actual symptoms typically. ...Read more
How rare and/or serious is crystal calcium deposits in the longus colli tendon, c1-c2? (hadd, copp)
Is a consistantly low C4 complement level but normal c1 inhibitor and functional level normal for hae if not in a flare?
Yes: The C4 and c1inh level are usually low even in the absence of an exacerbation. ...Read more
Had extremely severe chiari 1. Had decompression and laminectomy of c1 c2 in 2001. Some symptoms returning. Can patch fail?
Meds haven't helped my complex migraines, chiro. Said my c1 and C2 are out of place., pushing on base of my skull. Is this causing numbness & pain?
Don't believe that:
Headaches are not coming from c1c2, that's what most chiropractors tell the headaches are coming from, and that's not the cause
you should see a headache specialist a neurologist who also specialise in headache and get proper treatment
i f chiropractor can make you headache free, which I can assure you is not the case in most patients treated by chiropractors, in my experience, let us know
headaches. ...Read more
My family physician suspects I might have hereditary angeoedmia my test came back with high C4 levels and low c1. can you have high C4 levels w/HEA?
Repeat tests: The C4 is usually low in HAE but can be normal with the inherited kind. You may repeat the test to make sure ...Read more
Discuss with docs: Most breast biopsies don't consume much time, so I'm not clear what is wrong with your upper spine (at c1) to worry you. You should discuss this with your surgeon and, if you are having a separate anesthesiologist, that person as well. They can alter your position, pad the table, etc to assure that you don't suffer any additional problems. ...Read more
Going in for a breast biopsy, more concerned with laying for so long as I have a c1. What can I do?
Type of biopsy?: Is this a core needle biopsy or a surgical biopsy. If it is a core needle biopsy, the procedure should not last long. With an experienced surgeon or radiologist, the procedure should last 10-20 minutes, on average. I recommend speaking with the physician performing your biopsy about your medical problems so they can appropriately position you on the table. ...Read more
Lump on back of neck near C1 and C2 on left side about the size of a acorn, no pain associated with the bump?
Cyst: Usually these are sebaceous cysts or lipomas. Both are benign. Could be something else so keep an eye on it and see someone if it is enlarging. ...Read more
What are the chances of full mobility & work return after acdf & pcdf w/ instrumentation surgery c1-t1 with mild nerve damage, and limited mobility.
That depends on: Several factors such as your occupation and education level as to a return to work-sedentary or desk work v one with a lot of physical activity--does mobility mean getting around or refer to neck motion range which would be limited by 50% with that extent of fusion. "mild" nerve damage may or may not also play a role depending on exactly what you mean. Speak to the surgeon concerning outcomes. ...Read more
Atlas is turned 6 degrees to the left is that a possibility of having injuried ligaments the dmx xray also showed instability c1 an c2, was punched?
Why isn't there any specific mention of the health of c1-c2 in each of last 2 mri's written by 2 different radiologists (other vertebrae are listed)?
See details: Probably because they were normal. Ask the doctor who ordered the mris. ...Read more
C1-C3 fusion with six screws and hourglass-shaped titanium plate 15 years ago. Can the hardware potentially cause Eustachian tube sensitivity problems?
Slim possibility: Difficult to define how the body will react to metal implants if sensitization develops. Local inflammation leading to Eus. Tube problems seems feasible, but unlikely. Perhaps more likely is throat irritation from acid reflux, postnasal drip or allergic or non-allergic rhinitis. If the hardware becomes unstable, then other symptoms would predominate. ...Read more