Doctor insights on:
Beta Glucan Lupus
No: Lupus is not related to Alpha or beta thalassemias. The thalassemias cause "intrinsic" anemia, meaning the anemia is due to a problem inside the red blood cells. Lupus is an autoimmune disease and causes "extrinsic" anemia, meaning lupus is acting on the red blood cells from the outside and causing them to be destroyed. ...Read more
Is aps possible if beta-2 glycoprotein, lupus anticoagulant and cardiolipin-ig-(g/m/a)are >0.2. Is test to be repeated in 1-2yrs if once negative?
No: It is highly unlikely that you have apa syndrome if the tests are negative. The test values can vary from time to time and may even be negative on rare occasions. However, if you have symptoms and the tests are negative at that time then you need to find another cause. ...Read more
Dxd w/ MS in 2010, tried avonex (interferon beta 1a) & copaxone but it was stopped b/c bad reactions. Same thing w/ plaquinil for my lupus work up. What could do that?
OK, let's sort out.: Do you really have ms or do you have lupus, which can mimic, or do you have both? You need an experienced expert at a good medical school to sort this out. Once all is clarified and confirmed, and indeed if you have ms, do not use the old washed out drugs; rather, consider one of the orals or tysabri (natalizumab). Regardless of diagnosis, you should be taking supplemental vitamin d. Get a new opinion. ...Read more
Many Uses: Beta glucans are cell wall sugars advocated for use to treat high cholesterol, diabetes, cancer, hiv/aids, and to boost the immune system. Of these, data suggests use can reduce total and LDL cholesterol after several weeks of treatment. Some data supports use for increasing survival in people with cancer (when given along with conventional treatment for at least a year) and preventing infections. ...Read more
Do beta glucan work for immune system? User reviews are 99% positive while this does not apply for most other products
I have friends that take beta glucan for their autoimmune, one has told me "helps alot" any truth to this you think?
Maybe: Medical research shows limited promise in use of these substances for various medical purposes. As always, we should exercise caution when ingesting anything that hasn't been thoroughly proven. Instead, use the reliable strategy of daily whole grain intake, such as oats and barley. ...Read more
I have colitis ulcerosa, and I'm thinking to start using immunostimulator beta glucan allegedly it's very good for autoimmune diseases? Opinions please
Do Oat with Beta Glucan really reduce cholestrol level? Can I take it instead of Simvastatin? My level is 6.5
How would u diagnose a persistant cough after having an invasive fungal infection of the lung. Peak flow fine. Beta d glucan level > 120. Scans fine.?
Pulmonologist: This is not a question that can be adequately answered on the internet. Your problem should be reviewed in depth by your internist perhaps in consultation with a pulmonologist. ...Read more
My dsdna double strand reference was 3.45 and very symptomatic. S this a positive for lupus how is it scored?
Possibly: This is one of the many blood tests used to diagnose lupus.you should consult your rheumatologist to have them run a full battery of tests ...Read more
This last 2 weeks feel so run down between p.O.T. S and lupus... I'm 27 I want to feel normal. But I don't think ill ever be "normal" again. :/?
See below: Go the lupus foundation of america's website to find a support group for lupus patients near you. I think you would find this beneficial and you would also learn how other patients cope with the disease. ...Read more
Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic
Not likely: Why worry about 3 disorders, as you likely possess one unifying diagnosis to explain your problems. A good place to start is with an endocrinologist to deal with diabetes and the complications secondary to this. Focus on these issues, and later, if things seem peculiar look into co-morbities. Lastly, if you possess diabetes and lupus, doubt you have ms in addition. ...Read more
Both my mom and aunt have been diagnosed with lupus, should I get checked for it as well? Since I know its hereditary
Rheumatologic issues: The specific diagnosis of lupus wouldn't run in families as much as the tendency towards rheumatologic conditions in general — that tendency runs in families — lupus, rheumatoid arthritis, Sjögren's syndrome, scleroderma. Can find all of these in family lineages. Have a good history/physical exam/blood testing coordinated by Rheumatologist. ...Read more
Immune regulation: One's immune system requires a control center (regulatory lymphocytes etc) to keep it in balance. When the regulation is impaired, immune disorders such as allergic and autoimmune disorders develop. There is also a strong genetic and hormonal influences. Females or people with family history of autoimmune or allergic disorders are at a higher risk to develop these diseases. ...Read more
Varied therapies: It depends on what manifestations of disease you have. Treatments may include anti inflammatory medications, steroids and many other treatments. These really depend on your symptoms with severe nervous system or kidney disease powerful drugs lime Cytoxan (cyclophosphamide) may also be needed. ...Read more
Complicated: If you have lupus, you should see a doctor specializing in careof that disease. The specialist here would be a rheumatologist. You may have a pcp who is very competent in caring for you, however. You may need to be followed by a dermatologist, nephrologist (kidney doctor) and neurologist. Can't give you the whole enchilada in 400 character space. (google a reputable website). ...Read more
Estimate: Numbers are difficult to obtain but the estimate for the United States is between 500, 000 and 1.5 million have lupus. Women greatly outnumber men with this disease. Black skinned individuals have the highest incidence. The peak ages are between 15 and 40. ...Read more
Autoimmune disease: Systemic lupus erythematosus (sle), or lupus is an autoimmune disease where the body's immune system mistakenly attacks healthy tissues of the body. This can occur from a number of different factors some of which is unknown. Certain medications are known to trigger sle in an otherwise healthy person. ...Read more