Doctor insights on:
Best Place To Live With Lupus
Anti-inflammatories.: Granted, with a true lupus flare we generally require prescription-strength steroids to control the raging inflammation, but for now you can try OTC anti-inflammatories such as Ibuprofen or Naproxen. As well, a warm bath may help soothe some of the pain. If specific joints hurt, K you can also try Capsaicin cream to the skin of those joints. ...Read more
Type of lupus: What type of Lupus does she have. There are many types and each one has specific therapy. Also people with lupus can have multiple different types of manifestations and each of these manifestations are treated in different ways. Also different rheumatologisst may treat the same manifestation in different ways because different treatment will work. Have her bring you to her next visit. ...Read more
Many kinds.: Avoid those with visible metal heating elements which can cause fire. Models using ceramic heating elements are safer and not costly. A built in thermostat is a great feature to automatically shut the device off when the air temperature is right. Keep in mind that all heaters dry air. A humidifier in winter is a good thing! ...Read more
Keep moist: This is a very common combination. If you are not already on it talk to your rheumatogist about starting plaquenil (hydroxychloroquine). It is important to pay attention to eye and mouth dryness. There are several over the counter moisturizers for your eyes and mouth. Using a humidifier at home, keeping hydrated, using sugarless gum (to help produce moisture), eye drops during the day, eye oint. At night all help. ...Read more
What is your best advice for the lupus patient other than "take your meds"what can I do best for myself to keep lupus at bay? I am determined 2 b well
There is: No other answer. Nobody knows what steers lupus this way or that way. ...Read more
Many!: Many options, depending on severity and your current treatment. Pulsing IV steroids at high dose, cellcept, (mycophenolate mofetil) benlysta, azothioprine, cyclophosphamide, azothioprine, Methotrexate are all options, alone or in combination. Your treatment should be coordinated by someone in rheumatology and/or nephrology! ...Read more
Skin sarcoidosis!: Lupus perneo is a manifestation of sarcoidosis, usually seen in chronic disease. Intra-lesional steroid injections can help, as can systemic therapy. Sarcoidosis is an autoimmune disease that can affect many organs, but more common and serious, the lungs. This disease needs rheumatologic management. The new tnf-alpha inhibotrs seem to work quite well, although this is off-label use! ...Read more
I have sle lupus what medicine is best for me because I take plenty and what kind of food can I eat?
Varied meds: There are many different meds used for lupus depending on what features of the disease you have. They may range from anti inflammatory medication to steroids and many other drugs. You really need to be followed by a rheumatologist to determine the extent of your disease and which drugs are appropriate ...Read more
Best company to by turmeric capsules from? I want to take it as part of my regimen for lupus- or what should I look for when buying turmeric?
Turmeric: Turmeric is used as a supplement in rheumatoid arthritis and lupus. It comes from the root of turmeric. It has anti inflammatory activities and is used in many other conditions. It is available as capsule in supplemental stores ...Read more
Not enough info: There is no one best med for lupus although Plaquenil (hydroxychloroquine) is usually given to almost all who have systemic lupus. You give no specific information about her disease and therefore cannot receive a specific answer. You should be asking that question to the doctors who treat her. ...Read more
If you have active lupus, your body is "catabolic, " or in a breadown mode. Your hair will not grow normally and sometimes will be shed. However, treatments for sle, such as Prednisone potentiates hair loss, and this is true for methotrexate, azothioprine, cyclophosphamide, etc.
Take 5000mcg of biotin, and 2mg of folic acid. But there may be no "good" solution. ...Read more
I stop taking all medications for lupus I am now only on vitamins an supplements what vitamins would be best?
My 15 year old bro. Has lupus his face is red he is lazy. Doesn't want to eat. Lost weight. High temp., becomes weak. What is the best medicine please :?
Needs immediate care: If he is having fevers and losing weight this is extremely serious. He needs to be under close supervision of a rheumatologist. If he is already seeing one, have him call that doctor immediately and explain his issues. If he does not, go to the er. Fevers may be secondary to lupus but they may also be related to a serious infection especially if your brother is on a cortisone med. Do not delay. ...Read more
Variable!: Long acting steroids taken orally will have the greatest cumulative side effects. So, Prednisone would be better than dexamethasone, if given orally. But my approach is to give steroids by giving then IV in large doses, 3x/wk. Response is quite good in a number of studies. This allows me the latitude to use the lowest daily dose after pulsing." but ho-q is the best background maintenance drug. ...Read more
Get to the root: The root problem of both diseases is inflammation. Disease-modifying medications (rx) must be considered before all else as inflammation control relieves many symptoms including pain. After that, anti-inflammatory rx and/or analgesic rx can be prescribed but there is no one "best" rx. ...Read more
The Mighty Vitamin D: You may do better in warmer climate closer tot he equator for 2 reasons: more vitamin D and more exercise. Receiving more sunlight would naturally raise your vitamin D levels. Adequate vitamin D is essential for fibromyalgia relief, and is a powerful anti-inflammatory. More exercise, especially light walking or yoga on the beach would add to the benefit of vitamin D. ...Read more
What is lichenoid lupus erythematosus? How is it different from discoid lupus erythematosus? Best course of treatment that does not involve oral meds?
Oral agents best: Lichenoid lupus refers to a specific type if rash sometimes photosensitive, which is oftern red and raised. It occurs between the dermis and epidermis under the microscope. Discoid may also start as a red area but will cause atrophy and scarring. The best treatment is usually the oral agent plaquenil (hydroxychloroquine). Other options include sunscreen, moisturizers and topical steroids if the areas are small. ...Read more
Recently diagnosed w/ rotator tear & ligament/muscle strain. Could this be caused by my lupus? What is my best course of action?
Lupus can lead to increased inflammation in joints and specifically in the shoulder increase likelihood of tendonitis and bursitis. Lupus can also cause muscle pain and inflammation (myositis).
What to do with the rotator cuff tear depends on if it is a partial or complete tear and how bad is bothers you. Tears don't have to be operated on but you may elect to if pain and weakness persist. ...Read more
What is the best facial cream for the rash caused by lupus not by eczema or by rosacia, since the regular topical creams didn't work?
Facial cream: Virgin coconut oil works well especially in getting rid of redness. ...Read more
Autoimmune related autonomic deficiency (also have lupus)causing dizziness. What are best tx options for dizziness? Predisone resolves it
I'm a 37 year old female with mild lupus. I have joint pain and constantly wake up feeling stiff and sore. Is there a better/best/ mattress?
Not the bed: It isn't your mattress. You need better control of the lupus. ...Read more
What is the best way to diagnose autoimmune disorders in immune deficient patient on IgG replacement? Rheumy suspicious of lupus, but not definitive
Related to the low gammaglobulin: Sometimes people with agammaglobulinemia can have musculoskeletal problems the diagnosis of lupus in this situation is unlikely sometimes one can have similar symptoms when infection is present. I would be very cautious in trying to say that lupus is present. ...Read more
Can arava (leflunomide) be prescribed for lupus? What is the best medication for sle lupus when liver and kidneys are affected? Thank you very much.
Not really: In my experience it has little or no value. The liver is not involved in lupus so look for other causes. With renal disease, a biopsy is essentially and CellCept (mycophenolate mofetil) would be the drug of choice. ...Read more
Could my lupus antibody labs be altered (lower the antiboy level) by me being on 10 mg prednisone.? I'll be on day 3 when labs are drawn. Is it best to be off duing labs?
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