Doctor insights on:
Best Dermatomyositis Program
DX w/Dermatomyositis 18 months ago @ 31. Dysphagia and short of breath started about 4 months ago. What's my best, educated prognosis/survival rates?
Learn more: Nobody here can give you betting odds without knowing your full history. The inflammatory myopathies can run with pulmonary fibrosis or your shortness of breath may have a different cause. You'd do best to become an expert on your illness -- a true pro-active patient who reads the real scientific literature. It's best for you and your physicians. Try to get into a research study. Best wishes. ...Read more
Dermatomyositis: The cause of dermatomyositis is unknown. Experts think it may be due to a viral infection of the muscles or a problem with the body's immune system. It can also sometimes occur in patients who have cancer of the abdomen, lung or other body area. Anyone can develop dermatomyositis, but it most commonly occurs in children age 5 - 15 and adults age 40 - 60. Women develop this condition more often. ...Read more
Dermatomyositis: You have a rare disease. You should be under the care of a rheumatologist with experience treating this disease. Dermatomyositis often has long periods of remission and can usually be controlled when active. Working with your doctor is the most important step in living with this disease. It will require medication to treat when active and physical therapy to help with weakness when controlled. ...Read moreSee 1 more doctor answer
Weakness and rash!: Dermatomyositis has characteristicc rashes: heliotrope, gottren's, etc. A rheumatologist or dermatologist will recognize this. Proximal muscle weakness is the first evidence of muscular disease, and a doctor will check your cpk, which would be elevated. Pts may also experience raynaud's syndrome, and internal organ involvement can occur. It is a serious disease! ...Read more
Skin & muscles: Dermatomyositis is a connective-tissue disease, ranging from mild to severe. Milder cases involve only inflammation of the muscles and the skin, while more severe cases also may affect the joints, esophagus, lungs, and even the heart in rare cases. Treatment is difficult but possible, and often effective in the hands of an experienced dermatologist. ...Read more