Doctor insights on:
Best Cystic Fibrosis Treatment
Nutrition/prevention: Cystic fibrosis treatment plans depend on the clinical, infectious and gene mutation. There are some treatments delivered by inhalation to thin airway secretions and others to treat or prevent infections. Growth charts will monitor that growth of the baby and supplements may be provided to boost calories. I hope that this helps. Prmg pediatrics can review records faxed to 858 259 9689. ...Read moreSee 1 more doctor answer
Cystic fibrosis is a genetic disorder involving lungs & digestive tract, causing recurrent lung infections due to thick inspissated mucus & poor growth in majority of patients due to malabsorption. Treatment involves inhaled respiratory therapies to prevent lung disease & pancreatic enzymes to enable absorption of nutrients. Average life expectancy is near 40 years, ...Read more
So far not at all: Trying to replace the faulty gene has been a failure so far. The new science of epigenetics tells us that our genes (even "bad" ones) are changed by diet and life style. I havegiven children with CF vitamin supplements. They help greatly but there is no cure. Find a physician who uses nutrient treatment. ...Read more
I want to see if there's any additional therapy I can do for my boyfriend. He has cystic fibrosis and I'd like to try to help ease the symptoms.
CF center: First I wish him all the best and good health and thank you for caring for him, any cystic fibrosis patient should be followed by specialists in a cystic fibrosis center, if you haven't done that already, please check the cystic fibrosis foundation on the web for help, www.cff.org, goodluck ...Read more
CF home treatments: Long term care of CF at home requires regular use of airway clearance therapies to keep lungs clear. Several methods to remove secretions with help of inhaled medications & devices (chest vest, manual percussion) are utilized. Chronic lung infections may also require use of inhaled antibiotics. Please consult a pediatric pulmonologist at a CF center to help guide therapy based on individual needs. ...Read more
At home therapies: At home treatments for CF include airway clearance therapies that get mucus out of the lungs. These include a chest vest machine & several types of inhaled medications that make it easier for mucus to come out. Most CF pts also need enzyme replacement as pills every time they eat, multivitamins & reflux medications. Talk to your CF doctor to discuss home regimens as they are patient specific. ...Read more
Big role of parents: Parents have a big role to play in management of their child's CF especially in first 10 years. CF infants require manual chest therapy twice daily to keep lungs clear & their parents have to give them all their medicines & enzymes several times a day to keep them healthy. Also paying close attention to nutrition pays in the long run. Not enough room here, talk to your CF doctor to learn more. ...Read more
Not available yet: Gene therapy is not available for cystic fibrosis (CF) yet (2012). Having said that, the underlying concept is that since CF is a genetic disease (meaning there is a defect in a gene), by repairing that defect through gene therapy, one can, hopefully, cure the disease. ...Read moreSee 1 more doctor answer
Trials: Clinical trials for genetic therapy are underway. As of this time there is no approved method for gene tx in cf. Kalydeco, a new drug, dose reverse the effects of one subtype of cf, but it dose so by aiding the damaged sodium-chloride transporter to get in proper position and function normally. ...Read moreSee 1 more doctor answer
No and yes: Safe effective gene therapy for CF is a dream that we have yet to realize, but there are many excellent CF centers in the us. The CF foundation is an excellent source of information on these centers. The treatments for CF are improving, and expanding constantly. The life expectancy for patients with CF has steadily increased but is still limited by pulmonary disease. ...Read more
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