Doctor insights on:
Are There Certain Foods That Should Be Avoided When You Have Polycythemia Vera
Iron rich: Iron rich foods may help if avoided but is symptomatic treatment is advisable. ...Read more
Polycythemia vera: Foods will not affect it.Get a more detailed answer ›
There are those: Who would encourage you to go forth with a strict organic raw food diet, like something along the lines of the Gerson diet(which also includes coffee enemas!) But I don't think there is any strong data to suggests a "curative" diet. But I will help to eat as healthy as you can, it may help limit further stress on your body. ...Read more
Same as in Gout: About 10-15% of polycythemia vera patients develop gout, a painful inflammation of certain joints (esp. The big toe) caused by precipitation of high uric acid content in the blood. Polycythemics already have a higher level of uric acid (about 50% have hyperuricemia) in their blood due to rapid turnover of red cells. It would be prudent to avoid foods that could precipitate a gouty attack. ...Read more
Eat anything: Eating foods rich in vitamin k should not affect the production of red cells seen polycytemia vera. Vitamin k has more to do the coagulation process. ...Read more
Blood cancer: P vera is a form of blood cancer and affects the bone marrow. Any disease affecting the bone marrow may interfere with the normal production of white cells and make the person prone to infections. Consult this site for more info: http://www.mayoclinic.org/diseases-conditions/polycythemia-vera/home/ovc-20307463 ...Read more
Sometimes.: Most patients with polycythemia vera develop the condition in adulthood, most commonly from an acquired mutation in the jak2 gene, and are not born with it. However, there are families who pass on the tendency to have a high red blood cell count through a variety of genetic mutations. It is usually well-known in the family when that is the case. ...Read more
Your Doctor is guide: P. Vera is a rare condition. It is not difficult to diagnose provided you have consulted a specialist... A hematologist is the right specialist to help you with this issue. It typically manifests with high hemoglobin(>17 grams) and often has high white blood cell count as well as high platelets associated with high hemoglobin levels. ...Read more
Polycythemia vera: Phlebotomy (blood removal) will be needed to maintain your blood at certain level to prevent stroke or blood clot. In addition, Aspirin is recommended if there is no risk of bleeding or other contraindication. For patients with high risk to develop stroke/clot (age>60 or prior history of clot)- medication called-hydroxy-urea- is also recommended. Discuss with your hematologist. ...Read more
Maybe blood draw: Depends on how high the blood count and whether symptoms are present. Also, if pcv is caused by something (secondary polycythemia), that cause needs to be addressed. Smoking, sleep apnea, hemochromatosis are common causes of secondary pcv. If primary and symptoms exist the main treatment is phlebotomy — drawing blood off regularly to decrease the hemoglobin. ...Read more
PCRV is a : Myeloproliferative disease associated with too many red blood cells. Polycythemia -- too many cells -- ruba -- red -- vera -- true. ...Read more
Depends on cause: The treatment really depends on the underlying cause. Unless that is known I can't help. Medications are available to treat this. ...Read more
No: Generally speaking, pvera dose not imapct a person long term survival, ie when comparing a group of patients with pv to a group without, survial rates are the same. However, pv and other myeloproliferative disorders are uncommon in your age group and I would be skeptical of the diagnosis. ...Read more
No: There are two types of polycythemia. Primary Polycythemia (Polycythemia Vera) is an abnormal proliferation of blood cells, leading to too many red blood cells. It is not caused by any other factor. Secondary Polycythemia is a high red cell count caused by another factor, such as being at altitude, sleep apnea, administration of erythropoietin, or several others. Hope this helps! ...Read more
Polycythemia: Polycythemia rubra vera and polycythemia vera are the same thing — a myeloproliferative disorder which causes production of too many red cells (and usually white cells and platelets also). Polycythemia or erythrocytosis just means someone has too many red cells, whether due to prv, high altitude, sleep apnea, emphysema, certain cancers, or certain congenital abnormalities of red cell production. ...Read more
Polycythemia: Polycythemia is a terminology used for a condition where your hemoglobin is elevated above the normal range. It does not tell you what the cause of the condition- which could be caused by a primary bone marrow problem -(which is called polycythemia rubra vera -abbreviated as polycythemia vera) vs some other secondary conditions such as chronic lung problem, sleep apnea, liver mass/renal mass et. ...Read more
I have Polycythemia Vera — and I am JAK2 negative. My question is what is the difference between JAK2 positive and Negative?
Genetic variation: In a group of genes, specifically the Janus kinase 2 gene involved in intracellular signaling at a cellular; tissue level of interaction & control (humans always have multiple interacting levels of overlapping control). Currently, for the JAK2 gene variant: normal (more common) = positive whereas abnormal = negative vs. Study: https://www.google.com/#q=JAK2+gene+variation+negative+vs.+positive ...Read more
To follow up on previous question, i just don't understand how I could have polycythemia vera with my age/sex. What exactly is polycythemia vera?
Polycythemia: Ruba vera or too many cells of the red blood in latin is an acquired, not genetic, disease in the myeloproliferative category. That means the body regulation of blood cell production is off, and in your case you make too many rbcs. Rare at 29 but not impossible. Stay on the plan with your hematologist -- easily and successfully treated. ...Read more
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