Doctor insights on:
Are There Any New Treatments For Stiff Person Syndrome
Not really: This curious and devastating autoimmune disease was newly-discovered when i was in medical school, and is very challenging for both patient and physician. You probably know much more about it than most doctors do. There's a helpful article at medscape http://emedicine.Medscape.Com/article/1172135-treatment good luck and don't give up hope. ...Read moreSee 1 more doctor answer
Has anyone ever worked with someone whose stiff person syndrome (moersch woltman syndrome) went into remission? Did it come back again?
This interests me: Do you know of someone with stiff person syndrome who went into remission? How did it go into remission? Stiff person syndrome is rare and usually devastating. I have someone with this who has tried many treatments and is not doing well. So, would like your experience.... And which md treated this person? So, to answer your question, I have not seen this go into remission. ...Read more
Has anyone ever helped someone with stiff person syndrome (moersch woltman) find appropriate exercise?
No: The disease kniown as stiffman syndrome is not known to burn out if the synptoms reolve one would question the diagnosis. It is a progressive disease not well treated controlled with diazapam high doses and has been treated with plasmaphioresis with mixed results. ...Read more
Are there any tests to determine if you have stiff person syndrome? I have constant joint pain, twitching muscles, elevated crp
Stiff person syndrome diagnosis in 21yo w/rigid lower limb, acquired scoliosis & oligoclonal bands in csf. Is anti-gad and seronegative. Could a rheuma help?
Maybe: If they treated such cases before. High dose benzodiazepines may help. Also consider neurologist. ...Read more
I hav pos myopathy &was just dignosed with stiff persons syndrome&taking ivig tm's are these tied 2gether? Don't know what myopathy is yet either
muscle disease: Myopathy merely means abnormal muscle, and typically presents with weakness over shoulders and hips. Stiff person's syndrome causes muscular rigidity and spasms, but is not a myopathy but rather an autoimmune disorder affecting glutamic acid decarboxylase, and amphiphysin. Ivig is likely your best approach. Likely you have but one disorder. ...Read moreSee 1 more doctor answer
Possibly: Some people have it so severe that it can cause issues with throat musculature and even the tongue. That being said, this is usually later in progression or flairs and would not be an early isolated event. ...Read more
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