Top
10
Doctor insights on: Are There Any New Treatments For Stiff Person Syndrome

Share
1

1
Are there any new treatments for stiff person syndrome?

Are there any new treatments for stiff person syndrome?

Not really: This curious and devastating autoimmune disease was newly-discovered when i was in medical school, and is very challenging for both patient and physician. You probably know much more about it than most doctors do. There's a helpful article at medscape http://emedicine.Medscape.Com/article/1172135-treatment good luck and don't give up hope. ...Read more

See 1 more doctor answer
2

2
Has anyone ever worked with someone whose stiff person syndrome (moersch woltman syndrome) went into remission? Did it come back again?

Has anyone ever worked with someone whose stiff person syndrome (moersch woltman syndrome) went into remission?  Did it come back again?

This interests me: Do you know of someone with stiff person syndrome who went into remission? How did it go into remission? Stiff person syndrome is rare and usually devastating. I have someone with this who has tried many treatments and is not doing well. So, would like your experience.... And which md treated this person? So, to answer your question, I have not seen this go into remission. ...Read more

3

3
What is stiff person syndrome (SPS)?

What is stiff person syndrome (SPS)?

SPS: Rare neurologic disease with progressive stiffness & rigidity of the trunk. One treatment is Benzodiazepines. ...Read more

4

4
What exactly is stiff person syndrome?

What exactly is stiff person syndrome?

SPS: Rare neurologic disease with progressive stiffness & rigidity of the trunk. One treatment is Benzodiazepines. ...Read more

5

5
Has anyone ever helped someone with stiff person syndrome (moersch woltman) find appropriate exercise?

Has anyone ever helped someone with stiff person syndrome (moersch woltman) find appropriate exercise?

Yoga therapy: If you can find a physical therapist that is also trained in restorative yoga, that may help. This can improve flexibility. If you can find a well-trained iyengar yoga specialist and have personal sessions that can also help. ...Read more

See 1 more doctor answer
6

6
Does stiff-person syndrome (moersch woltman) "burn out" with age, as the immune system weakens?

Does stiff-person syndrome (moersch woltman) "burn out" with age, as the immune system weakens?

No: The disease kniown as stiffman syndrome is not known to burn out if the synptoms reolve one would question the diagnosis. It is a progressive disease not well treated controlled with diazapam high doses and has been treated with plasmaphioresis with mixed results. ...Read more

7

7
Are there any tests to determine if you have stiff person syndrome? I have constant joint pain, twitching muscles, elevated crp

Are there any tests to determine if you have stiff person syndrome? I have constant joint pain, twitching muscles, elevated crp

GAD Antibodies: You can be checked for antibodies to the enzyme glutamic acid decarboxylase (gad). Talk to a neurologist. This is often a diagnosis be exclusion. ...Read more

See 2 more doctor answers
9

9
I hav pos myopathy &was just dignosed with stiff persons syndrome&taking ivig tm's are these tied 2gether? Don't know what myopathy is yet either

I hav pos myopathy &was just dignosed with stiff persons syndrome&taking ivig tm's are these tied 2gether? Don't know what myopathy is yet either

muscle disease: Myopathy merely means abnormal muscle, and typically presents with weakness over shoulders and hips. Stiff person's syndrome causes muscular rigidity and spasms, but is not a myopathy but rather an autoimmune disorder affecting glutamic acid decarboxylase, and amphiphysin. Ivig is likely your best approach. Likely you have but one disorder. ...Read more

See 1 more doctor answer
10

10
Could stiff man syndrome affect your talking?

Could stiff man syndrome affect your talking?

Possibly: Some people have it so severe that it can cause issues with throat musculature and even the tongue. That being said, this is usually later in progression or flairs and would not be an early isolated event. ...Read more