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Doctor insights on: Are There Any New Treatments For Stiff Person Syndrome

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Are there any new treatments for stiff person syndrome?

Are there any new treatments for stiff person syndrome?

Not really: This curious and devastating autoimmune disease was newly-discovered when i was in medical school, and is very challenging for both patient and physician. You probably know much more about it than most doctors do. There's a helpful article at medscape http://emedicine.Medscape.Com/article/1172135-treatment good luck and don't give up hope. ...Read more

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Has anyone ever worked with someone whose stiff person syndrome (moersch woltman syndrome) went into remission? Did it come back again?

Has anyone ever worked with someone whose stiff person syndrome (moersch woltman syndrome) went into remission?  Did it come back again?

This interests me: Do you know of someone with stiff person syndrome who went into remission? How did it go into remission? Stiff person syndrome is rare and usually devastating. I have someone with this who has tried many treatments and is not doing well. So, would like your experience.... And which md treated this person? So, to answer your question, I have not seen this go into remission. ...Read more

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What is stiff person syndrome (SPS)?

What is stiff person syndrome (SPS)?

SPS: Rare neurologic disease with progressive stiffness & rigidity of the trunk. One treatment is Benzodiazepines. ...Read more

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What exactly is stiff person syndrome?

What exactly is stiff person syndrome?

SPS: Rare neurologic disease with progressive stiffness & rigidity of the trunk. One treatment is Benzodiazepines. ...Read more

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Has anyone ever helped someone with stiff person syndrome (moersch woltman) find appropriate exercise?

Has anyone ever helped someone with stiff person syndrome (moersch woltman) find appropriate exercise?

Yoga therapy: If you can find a physical therapist that is also trained in restorative yoga, that may help. This can improve flexibility. If you can find a well-trained iyengar yoga specialist and have personal sessions that can also help. ...Read more

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Does stiff-person syndrome (moersch woltman) "burn out" with age, as the immune system weakens?

Does stiff-person syndrome (moersch woltman) "burn out" with age, as the immune system weakens?

No: The disease kniown as stiffman syndrome is not known to burn out if the synptoms reolve one would question the diagnosis. It is a progressive disease not well treated controlled with diazapam high doses and has been treated with plasmaphioresis with mixed results. ...Read more

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Are there any tests to determine if you have stiff person syndrome? I have constant joint pain, twitching muscles, elevated crp

Are there any tests to determine if you have stiff person syndrome? I have constant joint pain, twitching muscles, elevated crp

GAD Antibodies: You can be checked for antibodies to the enzyme glutamic acid decarboxylase (gad). Talk to a neurologist. This is often a diagnosis be exclusion. ...Read more

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I hav pos myopathy &was just dignosed with stiff persons syndrome&taking ivig tm's are these tied 2gether? Don't know what myopathy is yet either

I hav pos myopathy &was just dignosed with stiff persons syndrome&taking ivig tm's are these tied 2gether? Don't know what myopathy is yet either

muscle disease: Myopathy merely means abnormal muscle, and typically presents with weakness over shoulders and hips. Stiff person's syndrome causes muscular rigidity and spasms, but is not a myopathy but rather an autoimmune disorder affecting glutamic acid decarboxylase, and amphiphysin. Ivig is likely your best approach. Likely you have but one disorder. ...Read more

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Could stiff man syndrome affect your talking?

Could stiff man syndrome affect your talking?

Possibly: Some people have it so severe that it can cause issues with throat musculature and even the tongue. That being said, this is usually later in progression or flairs and would not be an early isolated event. ...Read more

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Can any1 break down stiff persons syndrome 4me or help me find a web site or other diseases that are the same if any.

Can any1 break down stiff persons syndrome 4me or help me find a web site or other diseases that are the same if any.

AAN: http://tools.aan.com/apps/disorders/index.cfm?event=database:disorder.view;disorder_id=1070 that is one link, check the american academy of neurology site for other information. They had a "neurology now" article for patient reading a few years ago. ...Read more

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Need info about stiff persons syndrome please?

Need info about stiff persons syndrome please?

Stiff Man syndrome: Stiff person syndrome (sps) (or stiff-man syndrome; also known as moersch-woltman condition) is a rare neurologic disorder of unknown etiology characterized by progressive rigidity and stiffness, primarily of the axial musculature, that is superimposed by spasms, resulting in postural deformities. There are also sub-variants: stiff baby syndrome and stiff limb syndrome. ...Read more

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What is stiff persons syndrome &how many men in the world have it?

What is stiff persons syndrome &how many men in the world have it?

Nervous system: This is a very rare nervous system disease in which the body's immune system attacks itself. Symptoms include progressive rigidity and stiffness. ...Read more

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I have dural ectasia and have constant pain and stiffness I dont have Marfan syndrome what can I do for treatment or type of doctor besides pain meds?

I have dural ectasia and have constant pain and stiffness I dont have Marfan syndrome what can I do for treatment or type of doctor besides pain meds?

Back pain / ectasia: A condition like dural ectasia can be very troublesome. Besides pain medication, people with this condition may respond to physical therapy, surgery, stimulator therapy or muscle relaxant treatment. Recruiting a physiatrist or PMR doctor and a neurosurgeon to your team would be helpful. ...Read more

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What are treatments for lower back stiffness?

What are treatments for lower back stiffness?

A lot!: Lifestyle changes are important like not smoking, weight control and regular exercise. You can use medication if no contraindications like ibuprophen or naproxen, try a back support, guided exercise (stretching, core stengthening, cardiovascular) at least 3x a week & activity modification. Yoga & pilates are good choices. If no better, then see your doctor for further evaluation and treatment. ...Read more

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What is treatment for knee joint stiffness and pain?

What is treatment for knee joint stiffness and pain?

Lots of things!: The most common reason for knee stiffness and pain is arthritis. Treatment can be nsaids/tylenol, physical therapy, ice, non impact aerobic exercise, injections, braces, arthroscopy (if mechanical symptoms are present), and finally knee replacement. An orthopaedic surgeon can help diagnose your reason for knee stiffness and pain. ...Read more

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What is the best treatment for joint stiffness?

What is the best treatment for joint stiffness?

Joint stiffness: Generally speaking, adequate warmup, regular adequate stretching of muscle groups crossing the joint, with adequate cool down. ...Read more

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I am experiencing stiffness in my knees when bending the dr said have a tear in the meniscus. Does this require a special treatment?

Arthroscopic repair: Most meniscsl tears require physical therapy and arthroscopic repair ... Pain medications or antiinflammatories will only provide temporary relief of symptoms but don't fix the problem. ...Read more

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