Doctor insights on:
Antiarrhythmic Post Eds Surgery
I just had jaw surgery last tuesday. The surgery was a success, but I am having very bad pain in my lips nose and two jaws. The eds ?
Acute pain: Post surgical acute pain is biologically useful. Acute pain is of short duration, but it gradually resolves as the injured tissues heal. It is appropriate to use whatever medication (including narcotic analgesics) for treatment and palliation. Re.: follow your surgeon's directions. ...Read more
Having a colonoscopy. Have veiny, stretchy skin, flexible fingers, had scoliosis surgery, and bad bladder. Should I check for EDS before colonoscopy?
Colonoscopy in EDS: Colonoscopy does carry a higher risk of perforation in EDS. Whether or not you need to diagnose it ahead of time really depends on why you're having the colonoscopy. If the procedure is urgent, you can proceed with the knowledge that EDS is a possibility, as long as the colonoscopist is aware. If it's an elective procedure, you may be able to delay until you know for sure. Good luck. ...Read more
Hard to tell: Neck pain and joint pain is just as common in eds as in many other non-eds causes. As far as joint surgeries go, I am not sure what kind of surgeries you had and for what reason. Definitely, eds patients have multiple joint problems (hypermobility, fractures, laxaty etc.) that makes them prone to trauma etc. ...Read moreSee 1 more doctor answer
What impact does ehlers danlos type 3 have on lumbar fusion surgeries, and is ther a type of fusion that would be better for an eds patient?
EDS has surgery risk: Ehlers danlos syndrome (eds) is a connective tissue disorder that has many subtypes. In type 3 eds, joint overextensibility can cause serious orthopedic issues.In eds of any type, anesthetic & surgical complications, while rare, are more common than in someone without eds, including blood vessel rupture, hemorrhage, and airway and neck damage.Type of lumbar fusion doesn't seem to affect these issues. ...Read moreSee 1 more doctor answer
I have ehlers danlos syndrome throughout my feet, back, wrists etc. is there a cure for it besides surgery?
I have ehlers danlos syndrome. Also few surgeries for rupured disc! My left rib cage is sore and if I raise my left arm it spasms so painfully?
More info needed: The most usual form is the familial hyperextensibility type. Is there a family history? Have you genetics clinic for evaluation and advice? http://www.ehlersdanlosnetwork.org/typesofehlersdanlos.html A trial of glucosamine sulfate 2 grams per day for at least 30 days may help as much is an NSAID. your orthopedist may prescribe a short-term prednisone, NSAID, possibly muscle relaxant. ...Read more
Yes: Generally, these are wonderful gymnasts, ballerinas and people who easily dislocate their joints to perform some pretty amazing feats, such as escaping from a strait jacket. However, the price is very high for those who use their flexibilty. They have to retire early from the severe form of premature osteoarthritis that they develop. ...Read more
Tends to be "mild": Most cases and types of eds have fragile skin and joint dislocation as the worst consequenses. However the vascular type can be devestating with spontaneously rupturing blood vessels in multiple organs causing bleeding or bowel rupture. Eds can be confirmed by genetic testing and typed by skin biopsy. ...Read more
"Ehlers–Danlos": Ehlers–danlos syndrome (also known as "cutis hyperelastica") is an inherited tissue disorder caused by a defect in the body's synthesis of collagen. Collagen in connective tissue helps tissues to resist deformation. In the skin, muscles, ligaments, blood vessels and organs, collagen plays a very significant role and with increased elasticity or "stretchiness" they may not work right. ...Read moreSee 2 more doctor answers
Yes.: EDS has 11 types, all hereditary,all with gene mutations causing problems with collagen in skin,bone,blood vessels.Symptoms include stretchy easily bruised skin, double jointedness,back pain,flat feet,early arthritis,etc. Lupus, an autoimmune disease, requires 4 of 11criteria.MalarorDiscoidrash,Photosensitivity,OralUlcers,Arthritis,Serositis,KidneyDz,Neurologic Sx's,Blood abn,immunologic,ANA. ...Read more
Mitochondrialsupport: Many enzymatic cofactors necessary for mitochondrial energy production, as well as antioxidants to clear up the free radicals which are produced by the working mitochondria which would otherwise injure them. Cofactors commonly injected include L-carntine (Carnitor)_ and vitamin B12, and a mix inositol, choline, and folate (folic acid). ...Read more
Stature and heart: Marfans people are tall, skinny, with valve problems, joint instability, but also have aortic problems. Ehlers danlos has hypermobility, subluxations, but also certain types of eds have tissue fragility, spontaneous pneumothorax, joint subluxation, and has difficulty healing. ...Read more
Yes: Pima indians of the desert southwestern us live where food is scarce. Therefore, a gene that makes food storage into fat very efficient so that they survive the desert. Taken out of the desert, and fed a standard american diet, they will gain weight. Similar genes are certainly present that will soon be described once the human genome is fully known. ...Read more
? Ehlers-Danlos Syn.: The most common pain associated with eds comes from the fact that the connective tissue supporting the joints becomes lax and allows chronic joint dislocations. These people frequently notice they are "double-jointed" but later experience the chronic dislocations. A more serious kind involves blood vessels where they can spontaneously rupture. Eds can also be a limited to the skin. ...Read moreSee 1 more doctor answer
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