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Doctor insights on: Alternative Treatments For Inclusion Body Myositis

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What are the very latest and cutting edge treatments for inclusion body myositis (ibm)? Any good trials out there?

What are the very latest and cutting edge treatments for inclusion body myositis (ibm)? Any good trials out there?

Yes, see list below: First need to have the proper diagnosis. So far no single treament have been found to produce cure. They are several new drugs on trial such as etanercep9tumor necrosis factor)alemtuzumab (t-celldepleting monoclonal antibody)follistatin (antagonist of myostatin pathway)arimoclomol (heat shock protein conducer)lithium (inhibitor of the glycogen synthase kinase enzyme)needless to say you need a physician.

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Dr. Charles Glueck
688 Doctors shared insights

Myositis (Definition)

Inflammation of the muscles that you use to move the body. Symptoms of myositis may include fatigue after walking or standing, tripping or falling, ...Read more


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How does 'inclusion body myositis' affect a person's lifestyle?

How does 'inclusion body myositis' affect a person's lifestyle?

Weakness.: Weakness is the main symptom of inclusion body myositis. This is usually most severe in the distal upper extremities (hands) and proximal lower extremities (hips). Physical therapy and regular physical activity are important to optimize function.

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What are the diagnostic tests for inclusion body myositis?

Ck emyograph biopsy: Ten fold increase creatine kinase enzyme, electromyography, muscle biopsy sent to neuropathologists, or human leucocyte gene assays using gene sequencing or similar tests will Narrow this down to sporadic type but this is a disease that begs more discoveries. Of course your doc needs to determine if your symptoms are those of IBM.

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What defining difference exists between polymyositis and inclusion body myositis?

What defining difference exists between polymyositis and inclusion body myositis?

Different diseases: Both are muscle diseases that are difficult to treat, polymyositis tending to affect shoulders and hips, inclusion body mysoitis the forearms. Polymyositis is the more treatable, but the more likely to become very serious, we know something of its cause unlike inclusion body myositis. Under the microscope they look different. Both are difficult and I wish you good luck and courage.

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What are dermatomyositis, polymyositis and inclusion body myositis?

Separate myosotis: Each is a specific type of inflammatory muscle disease. We call this myositis because the muscles can show information. When you have this you need an extensive evaluation looking for other associated issues. Therapy will be different for each of these.

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Is there any exercise or/and diet that would be helpful in slowing down the progress of INCLUSION BODY MYOSITIS?

Is there any exercise or/and diet that would be helpful in slowing down the progress of INCLUSION BODY MYOSITIS?

No: This illness is refractory to treatment. Try to stay as physically active as you can for as long as you can. See if you can get enrolled in a clinical trial. As much as I'd like to be able to recommend something, and as eager as others will be to offer ideas that will not be helpful, I must be up front with you -- do not expect any intervention to be more effective than a placebo.

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Who has inclusion body myositis?

A wide spectrum Pts.: This is an inflammatory muscle disease, with slowly progressive weakness and wasting of both distal and proximal muscles, most notably of the arms and legs. Because this randomly affects different people in different ways and at different rates, there is no "textbook case." there are two kinds, sporadic and hereditary. The hereditary case does not have inflammation and is thus not myositis.

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How to beat inclusion body myositis?

With a stick maybe?: No definitive treatment has proved effective for the sporadic form of the disease. A militaristic tough-as-nails let's-hard-nose-this-one-out how-to-beat-it when-the-going-gets-tough-the-tough-get-going attitude toward this disease will only cause greater feelings of failure and frustration down the line. Most proactive thing is to try to get into a clinical trial, see clinicaltrials. Gov.

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What is inclusion body myositis (ibm)?

Genetic disorder: Ibm is a genetic disease in the group of diseases called inflammatory myopathies. It is progressive and leads to muscle weakness and wasting away of muscle. There is no cure but there are therapies that can help with symptoms.

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What is inclusion body myositis?

What is inclusion body myositis?

Myopathy type: Ibm is atype of inflammatory myositis. It tends to affect people older than 50. People with ibm often have weakness of their upper and lower arms and legs. Sometimes the muscles look smaller known as atrophy. Unfortunately there are no treatments that are proven to help. However, patients are sometimes tried on a short course of steroids, ivig, etc. Phys therapy is extremely important.

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I have lupus, ra, as, inclusion body myosytis. I live in western ny. Is there a better place to live?

I have lupus, ra, as, inclusion body myosytis. I live in western ny. Is there a better place to live?

Usually doesn't help: While many patients with various forms of arthritis will often report improvement with a change in climate (warm dry vacation, for example), these effects are usually temporary and moving permanently to your favorite vacation spot will probably "wear off" in time.

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What is myositis and what are some treatment options for it?

What is myositis and what are some treatment options for it?

Muscle inflammation: Myosotis is an inflammatory muscle disease. There are several possible causes and the treatment depends on defining the cause.

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What is the treatment for myositis ossificans?

What is the treatment for myositis ossificans?

See below: There are 3 major approaches. One is medication which can retard further bone growth, the second is radiation of the affected area to stop bone growth and finally there is surgery to remove it often followed by radiation. Not all myositis ossificans causes problems particularly if it is not impinging on joint movement.

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What are the causes of orbital myositis and what types of treatment are available?

What are the causes of orbital myositis and what types of treatment are available?

See below: This is a problem that requires a face-to-face meeting with your doctor. In that meeting, your doctor will listen to you, perform a throrough examination and possibly order labs or other tests. Based on this information, he/she will be able to tell you what's wrong and what to do about it.

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Treatment options for myositis? Thanks!

Treatment options for myositis? Thanks!

Could be complicated: Myositis is muscle inflammation. Inflammation damages the fibers of a muscle. This causes muscles to be weak by interfering with the ability of the muscles to contract. Although myositis can cause muscle aches and muscle tenderness, weakness is usually the dominant symptom. In some cases, myositis is a short-term problem that goes away after a few days or weeks. In other could be chronic.

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Any effective muscle inflammation treatments?

Any effective muscle inflammation treatments?

Yes: Initially rest, then heat and most important stretching exercises.

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Computer work causing muscle inflammation. Physical therapy & Naproxen just ordered. Considering stopping all supplements. Thoughts?

Computer work causing muscle inflammation. Physical therapy & Naproxen just ordered. Considering stopping all supplements. Thoughts?

Muscle relaxant?: More to do with your posture during work as well as taking few breaks. In the mean time, consider going to an urgent care center or primary to be evaluated for muscle relaxants as well as other therapeutic modalities. If your symptoms last more than 4 weeks, seek your primary for any imaging to be done.