Doctor insights on:
Alternative Treatments For Inclusion Body Myositis
What are the very latest and cutting edge treatments for inclusion body myositis (ibm)? Any good trials out there?
Yes, see list below: First need to have the proper diagnosis. So far no single treament have been found to produce cure. They are several new drugs on trial such as etanercep9tumor necrosis factor)alemtuzumab (t-celldepleting monoclonal antibody)follistatin (antagonist of myostatin pathway)arimoclomol (heat shock protein conducer)lithium (inhibitor of the glycogen synthase kinase enzyme)needless to say you need a physician. ...Read more
Ck emyograph biopsy: Ten fold increase creatine kinase enzyme, electromyography, muscle biopsy sent to neuropathologists, or human leucocyte gene assays using gene sequencing or similar tests will Narrow this down to sporadic type but this is a disease that begs more discoveries. Of course your doc needs to determine if your symptoms are those of IBM. ...Read more
Different diseases: Both are muscle diseases that are difficult to treat, polymyositis tending to affect shoulders and hips, inclusion body mysoitis the forearms. Polymyositis is the more treatable, but the more likely to become very serious, we know something of its cause unlike inclusion body myositis. Under the microscope they look different. Both are difficult and I wish you good luck and courage. ...Read more
Is there any exercise or/and diet that would be helpful in slowing down the progress of INCLUSION BODY MYOSITIS?
No: This illness is refractory to treatment. Try to stay as physically active as you can for as long as you can. See if you can get enrolled in a clinical trial. As much as I'd like to be able to recommend something, and as eager as others will be to offer ideas that will not be helpful, I must be up front with you -- do not expect any intervention to be more effective than a placebo. ...Read more
A wide spectrum Pts.: This is an inflammatory muscle disease, with slowly progressive weakness and wasting of both distal and proximal muscles, most notably of the arms and legs. Because this randomly affects different people in different ways and at different rates, there is no "textbook case." there are two kinds, sporadic and hereditary. The hereditary case does not have inflammation and is thus not myositis. ...Read more
With a stick maybe?: No definitive treatment has proved effective for the sporadic form of the disease. A militaristic tough-as-nails let's-hard-nose-this-one-out how-to-beat-it when-the-going-gets-tough-the-tough-get-going attitude toward this disease will only cause greater feelings of failure and frustration down the line. Most proactive thing is to try to get into a clinical trial, see clinicaltrials. Gov. ...Read more
Myopathy type: Ibm is atype of inflammatory myositis. It tends to affect people older than 50. People with ibm often have weakness of their upper and lower arms and legs. Sometimes the muscles look smaller known as atrophy. Unfortunately there are no treatments that are proven to help. However, patients are sometimes tried on a short course of steroids, ivig, etc. Phys therapy is extremely important. ...Read more
Have human growth hormone (hgh) or anabolic steroids ever been used to treat the symptoms of inclusion body myositis (ibm)? Why not?
Unlikely: I cannot find any reason why they would have any benefit. ...Read more
I have lupus, ra, as, inclusion body myosytis. I live in western ny. Is there a better place to live?
Muscle inflammation: Myosotis is an inflammatory muscle disease. There are several possible causes and the treatment depends on defining the cause. ...Read more
See below: There are 3 major approaches. One is medication which can retard further bone growth, the second is radiation of the affected area to stop bone growth and finally there is surgery to remove it often followed by radiation. Not all myositis ossificans causes problems particularly if it is not impinging on joint movement. ...Read more
See below: This is a problem that requires a face-to-face meeting with your doctor. In that meeting, your doctor will listen to you, perform a throrough examination and possibly order labs or other tests. Based on this information, he/she will be able to tell you what's wrong and what to do about it. ...Read more
Could be complicated: Myositis is muscle inflammation. Inflammation damages the fibers of a muscle. This causes muscles to be weak by interfering with the ability of the muscles to contract. Although myositis can cause muscle aches and muscle tenderness, weakness is usually the dominant symptom. In some cases, myositis is a short-term problem that goes away after a few days or weeks. In other could be chronic. ...Read more
Computer work causing muscle inflammation. Physical therapy & Naproxen just ordered. Considering stopping all supplements. Thoughts?
Muscle relaxant?: More to do with your posture during work as well as taking few breaks. In the mean time, consider going to an urgent care center or primary to be evaluated for muscle relaxants as well as other therapeutic modalities. If your symptoms last more than 4 weeks, seek your primary for any imaging to be done. ...Read more
If someone has myositis does it stay in one muscle or spreads throughout the entire body? If it does spread how long would that take?
Which doctor helps with Autoimmune crossover Myositis/that affects all the body...How is a DX made and can Dystrophys, Scleroderma MCTD fall into it?
Rheumatologist: This is one you need to consult. ...Read more
Possibly: There are many (hundreds, thousands) types of mold. Many molds excrete substances which can be toxic to various body systems, of which skeletal muscle is one. ...Read more
Depends: This depends on the location and severity. You may be able to play with extra padding around the area. Ask your physician his/her recommendation for your specific case. ...Read more
Atrophic myositis: Masticatory muscle myositis (mmm) is an inflammatory disease in dogs affecting the muscles of mastication (chewing). It is also known as atrophic myositis or eosinophilic myositis. Mmm is the most common inflammatory myopathy in dogs. The disease mainly affects large breed dogs. ...Read more
Depends: Mostly on the activity of your disease and medications being taken. Have a frank discussion with your physician. ...Read more
See GYN...: First see a GYN provider for formal exam and see if there is any abnormal genital changes causing this problem. Blood tests can be also ordered to check for any hormonal imbalances. If all is negative and you appear healthy stress can be a cause so counseling would be the next step. ...Read more