Doctor insights on: Alternative treatments for guillain barre syndrome
What is the preferred mode of treatment for guillain barre syndrome: immunoglobulin or plasmepheresis?
See below:: Treatment of guillain-barré syndrome may include plasma exchange (plasmapheresis) and high-dose immunoglobulin therapy. A respirator may be used if the patient requires assistance to breathe. Physical therapy can begin after the patient recovers limb control. The recovery period: a few weeks or as long as a few years. About 30% may suffer from residual weakness after 3 years. ...Read more
Speech therapy & GBS:
Speech therapy can be very helpful to improve speech and promote safe swallowing in patients who have significant weakness of the tongue, palate and throat, or who have had a tracheostomy.
Physical therapy can also be very helpful to attempt to minimize physical function deficits and prevent muscle wasting and joint contractures. ...Read more
How many treatments of ivig/plasphorosis should a person with guillain barre have? I had 5 of each once. People say I should have more is this true?
Probably not.: Gbs treatment with 5 days of ivig is standard. Plasmapheresis, when used, is generally 4-6 treatments. Your doctor/neurologist knows what's right for you. Sounds like she/he is doing the right thing for you. ...Read more
I had guillain barre for 10 months and still cannot walk dr told me I had the aman variant of gbs. Drs took 3 weeks to start my treatment. Outcome?
Nerve weakness: There is a variant which causes eye and coordination problems, but outcome should be quite similar in general if timely therapy is initiated. Your description certainly raises a question of chronic guillain-barre, which would do better with ivig once monthly. Suggest you have a followup emg, possible spinal tap, and get a treatment program started. Maybe, a second opinion? ...Read more
I have had guillain barre for 11 months and still feel tingling on my feet does it mean that I have the chronic type? How many treatments of ivig?
Let's assess.: If all that persists is tingling, then your healing process has gone well, and soon, that will disappear also. If your weakness were to recur, or your sensory problems magnify, it would be time to get reassessment and a new emg, and even lumbar puncture, as then we could consider cidp. Ivig is not appropriate or helpful for your symptoms. ...Read more
See below: Any large teaching or community hospital can treat a patient with gbs if they offer the following capabilities: neurologic consultation 7 days/week, a neurologic ICU or med ICU familiar with neurologic patients/complications, ICU pharmacy that can provide ivig 7 days a week and/or Albumin for plasmapheresis 7 days/week, experienced pt, ot, speech & respiratory therapists, and good rehab. That's all. ...Read more
Paresthesias/weak: Guillain-barre can progress very fast but usually starts with strange sensations in the extremities and then weakness that also starts from the extremities, gets more severe affecting trunk. It is critical to get medical attention before the weakness progresses to the diaphragm/muscles of breathing. Rarely (about 5-10%) of the time, these muscles are affected first/early - variant gb. ...Read more
Is it possible to have had Guillain Barre syndrome and because of misdiagnosis not be hospitalized?
Unlikely: Most patients with Guillain Barre are very sick and need to be Hospitalisd ...Read more
Yes: The famous c miller fisher described facial paresis with ataxia and areflexia as a variant of guillain barre. This fisher variant is rare but well known. ...Read more
Antibodies in the: Plasma fraction are driving the nerve injury. Remove the immune proteins to arrest the process. ...Read more
See your doctor: You should let your doctor know you are having pain. He/she can examine you and possibly run tests to find out the cause. ...Read more
Can I still get an epidural after having guillain barre syndrome? I heard that it can cause the gbs to reoccur. Can gbs cause problems with labor?
Usually acute: Gbs is an ascending weakness of first legs, later arms, and bilateral face, usually following an infection, which can cause difficulty breathing, but if treated in timely fashion with ivig or plasmapheresis, should stabilize, reverse and recover. If chronic cidp develops, will respond very well to ivig. ...Read more
I vote yes: At the onset I would say yes! ...Read more
GBS: Guillain-barre syndrome presents with progressive weakness starting at distal parts of limbs and moving upwards towards the torso. The extremity eventually may become limp. It can also affect the respiratory muscles and the patient my end up on a ventilator in an icu. Other unusual symptoms are changes in heart and blood pressure. ...Read more
Ascending weakness: French neurologists described a condition of progressive weakness following an illness. First by guillain and barre then added to by landray and stohl describing more severe forms with respiratory paralysis. Most cases progress up legs to trunk to arms, then slowing recover to normal. Some affect breathing, swallow and facial movement. Some with dizziness and double vision (fisher variant). ...Read more