Doctor insights on:
Alternative Treatments For Ehlers Danlos Syndrome
I have ehlers danlos syndrome and my shoulders dislocate up to 20 times a day, what does treatment end up being for this?
Treat symptoms: While there is no cure for this inherited disorder, it is worth determining which of the 6 types the affected person has. This may guide the needs for cardiac evaluation for valvular or vascular problems, eye exams for vision problem such as lens dislocation, or high-risk obstetric care. ...Read more
Not many: There are no specific treatments. Options such as pain meds or splinting are reserved for severe cases. ...Read more
Yes it can: Because of the tendom laxicity, joints may not be as stable as normal joints. That can lead to increased risk of osteoarthritis particularly in larger joints such as the shoulder, hips, and knees. There may also be complications of chronic joint dislocation and chronic pain. The disease itself should not lead to any specific inflammatory diseases such as lupus or ra. ...Read more
Skin/joints stretch: In this disorder there is a deficiency of collagen in the body. Problems include skin hyperelasticity (very stretchy) and joint hypermobility ("double jointed"). Also those people affected have fragile skin and blood vessels. There are 6 forms of ehlers-danlos syndrome. ...Read more
Usually - one type: There are a variety of types as you note and most of the time this is the benign hypermobility type. It is genetic and you may have relatives also wiht it. Each type can have a variety of manifesations and so people with the same type can have different symptoms. Exercise is an improtant stabilizer and you need to be doing this. ...Read more
Pain clinic: Enroll in a pain clinic at a teaching hospital for best results. ...Read more
Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.
ED Syndrome: This syndrome can have multiple symptoms, it is a connective tissue disorder which makes your skin and joints very flexible and somewhat weak. The vascular type is more worrysome, since it can cause dilatations of blood vessels that could eventually rupture. You should have a complete work up at a referral hospital and a local doctor should be able to control you according to your specific case. ...Read more
Ehler danlos syndrom: It is possible if parents have not been told about the diagnosis or the diagnosed was missed. ...Read more
Difficult problem: Because of vascular bleeding it is difficult to give you a definitive answer. You are better off going to a pain clinic preferably at a teaching hospital where they can taylor make a pain medicine cocktail for you, since they would have more experience with your type of problem. ...Read more
Ehlers Danlos: This type of EDS is the result of mutations in type III collagen which is abundant in major blood vessels, skin, and hollow viscera. Diagnosis is based on presence of two of the following: thin, translucent skin, arterial/intestinal/uterine rupture, easy bruisability, and facial features. ...Read more
I am inquiring if you are familiar with Ehlers Danlos syndrome and the implications for pain and pain management. If so I would like to consult you.?
It depends on the type of Ehler-Danlos. Some can involve the heart and blood vessels, with mitral valve prolapse, aortic aneurysm and mid-sized arteries, the gastrointestinal tract, the skin and other organs. Proper examinations can give information regarding fatigue
and other symptoms. ...Read more
See Neurologist: I don't know of a association in general but in vascular eds. There is a tendency for blood vessels to burst. You need to see your doctor to see if you might have this involvement from eds. Anyone with eds can garden variety migraines but you need to get the headaches checked out. ...Read more
Lupus Management: Only a dermatologist or rheumatologist can manage lupus and ehlers-danlos syndrome. Seek one out. . . Do it soon! ...Read more
Usually. Only: Severe disease affects intestinal vesselsGet a more detailed answer ›
Can you have ehlers-danlos syndrome without a parent knowing they having it? Anonymous donor child.
Absolutely: This condition often occurs without the patients knowledge. Because there are may differents patterns of this problem from mild to severe. ...Read more
If someone with Ehlers Danlos syndrome over stretches and hurts a joint are they more prone to over stretching the same joint again?
Yes: Affected kids should be discouraged from showing off, as joint condition may deteriorate. ...Read more
I would like advice on ehlers danlos syndrome and chronic pain I have so much pain I am finding it hard not to think of killing myself I can't cope!
Ehlers-Danlos syndro: If over-the-counter pain relievers — such as Ibuprofen (advil, Motrin ib, others) and Naproxen (aleve) — aren't enough, your doctor may prescribe stronger medications for your joint or muscle pain.Have your doc help with keeping your blood pressure low. Exercises to strengthen the muscles around a joint can help stabilize the joint. There are specific braces avail to help prevent joint dislocations. ...Read more
If I happened to have thin, translucent skin that was caused by vascular Ehlers-Danlos syndrome, would my skin have been that way since I was a child?
May occur: The thin skin is part of Ehlers-Danlos. It is called cutest Lexus. However as we mature there can be increased thinning. Part of it also depends on the type of Ehlers-Danlos you as there are many genetics subtypes ...Read more
I have a rheumatologist. In Ontario Canada there are few rheumatologists that can even spell Ehlers Danlos syndrome. What kind of Dr should I look for?
A few different docs: Medical genetics physician may be helpful in diagnosis if there is concern about an EDS type other than type 3. A physical medicine and rehabilitation physician would be best and helping to coordinate a plan for functional recovery. A rheumatologist would be helpful to look for other causes of joint pain such as an inflammatory disorder. ...Read more
Hello, I am inquiring if you are familiar with Ehlers Danlos syndrome and the implications of this disease as far as pain and pain management is concerned. If you are I would be thrilled to have you consult on my case. I have not yet had a pain specialist
See details: As a rheumatologist I treat numerous patients with EDS. ...Read more
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