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Doctor insights on: Alternative Treatments For Ehlers Danlos Syndrome

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What treatments for ehlers-danlos syndrome can I try at home?

What treatments for ehlers-danlos syndrome can I try at home?

None: There are several kinds of eh, er danlos and there is no alternative treatment. Evaluation of type and extent is necessary to monitor possible internal involvement in certain cases such as heart valve abnormalities. ...Read more

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Are there treatment guidelines for ehlers-danlos syndrome?

Are there treatment guidelines for ehlers-danlos syndrome?

Treat symptoms: While there is no cure for this inherited disorder, it is worth determining which of the 6 types the affected person has. This may guide the needs for cardiac evaluation for valvular or vascular problems, eye exams for vision problem such as lens dislocation, or high-risk obstetric care. ...Read more

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I was given a diagnosis of ehlers danlos syndrome? What are the treatment options for this?

I was given a diagnosis of ehlers danlos syndrome? What are the treatment options for this?

Not many: There are no specific treatments. Options such as pain meds or splinting are reserved for severe cases. ...Read more

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Can ehlers-danlos syndrome get worse?

Can ehlers-danlos syndrome get worse?

Yes it can: Because of the tendom laxicity, joints may not be as stable as normal joints. That can lead to increased risk of osteoarthritis particularly in larger joints such as the shoulder, hips, and knees. There may also be complications of chronic joint dislocation and chronic pain. The disease itself should not lead to any specific inflammatory diseases such as lupus or ra. ...Read more

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How does ehlers-danlos syndrome affect lifestyle?

Skin and Joints: Affects mostly the skin and joints but also the cardio-vascular system (e.g. Heart and large vessels). ...Read more

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What sort of disorder is ehlers-danlos syndrome (e.D.S.)?

What sort of disorder is ehlers-danlos syndrome (e.D.S.)?

Skin/joints stretch: In this disorder there is a deficiency of collagen in the body. Problems include skin hyperelasticity (very stretchy) and joint hypermobility ("double jointed"). Also those people affected have fragile skin and blood vessels. There are 6 forms of ehlers-danlos syndrome. ...Read more

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Is it possible to have symptoms from several types of ehlers-danlos syndrome?

Usually - one type: There are a variety of types as you note and most of the time this is the benign hypermobility type. It is genetic and you may have relatives also wiht it. Each type can have a variety of manifesations and so people with the same type can have different symptoms. Exercise is an improtant stabilizer and you need to be doing this. ...Read more

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Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.

Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.

ED Syndrome: This syndrome can have multiple symptoms, it is a connective tissue disorder which makes your skin and joints very flexible and somewhat weak. The vascular type is more worrysome, since it can cause dilatations of blood vessels that could eventually rupture. You should have a complete work up at a referral hospital and a local doctor should be able to control you according to your specific case. ...Read more

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What genes are related to ehlers-danlos syndrome, vascular type?

What genes are related to ehlers-danlos syndrome, vascular type?

Collagen 3: The vascular type of eds is due to dysfunction or deficiency of the type 3 collagen. The specific gene is called col3a1. ...Read more

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Can you have ehlers-danlos syndrome without a parent knowing it?

Ehler danlos syndrom: It is possible if parents have not been told about the diagnosis or the diagnosed was missed. ...Read more

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Would Ehlers-Danlos syndrome cause an elevated ANA? Titre 1:640.

Would Ehlers-Danlos syndrome cause an elevated ANA? Titre 1:640.

NOT: generally..... this syndrome is inherited whereas a elevated ANA indicates an ACQUIRED rheumatic disorder and a complete rheumatological evaluation is indicated! Hope this is helpful Dr Z ...Read more

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Is there any pain relief from ehlers danlos syndrome hypermobility?

Difficult problem: Because of vascular bleeding it is difficult to give you a definitive answer. You are better off going to a pain clinic preferably at a teaching hospital where they can taylor make a pain medicine cocktail for you, since they would have more experience with your type of problem. ...Read more

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Any relation between Ehlers Danlos Syndrome and gastric telangiectasias?

Ehlers Danlos : This type of EDS is the result of mutations in type III collagen which is abundant in major blood vessels, skin, and hollow viscera. Diagnosis is based on presence of two of the following: thin, translucent skin, arterial/intestinal/uterine rupture,easy bruisability, and facial features. ...Read more

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Ehlers danlos syndrome and fatigue, how are these related?

Ehlers danlos syndrome and fatigue, how are these related?

Depends: It depends on the type of Ehler-Danlos. Some can involve the heart and blood vessels, with mitral valve prolapse,aortic aneurysm and mid-sized arteries, the gastrointestinal tract, the skin and other organs. Proper examinations can give information regarding fatigue and other symptoms. ...Read more

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Are headaches and migraine related to ehlers-danlos syndrome?

See Neurologist: I don't know of a association in general but in vascular eds. There is a tendency for blood vessels to burst. You need to see your doctor to see if you might have this involvement from eds. Anyone with eds can garden variety migraines but you need to get the headaches checked out. ...Read more

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