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Doctor insights on: Alternative Treatments For Ehlers Danlos Syndrome

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What treatments for ehlers-danlos syndrome can I try at home?

What treatments for ehlers-danlos syndrome can I try at home?

None: There are several kinds of eh, er danlos and there is no alternative treatment. Evaluation of type and extent is necessary to monitor possible internal involvement in certain cases such as heart valve abnormalities. ...Read more

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Are there treatment guidelines for ehlers-danlos syndrome?

Are there treatment guidelines for ehlers-danlos syndrome?

Treat symptoms: While there is no cure for this inherited disorder, it is worth determining which of the 6 types the affected person has. This may guide the needs for cardiac evaluation for valvular or vascular problems, eye exams for vision problem such as lens dislocation, or high-risk obstetric care. ...Read more

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I was given a diagnosis of ehlers danlos syndrome? What are the treatment options for this?

I was given a diagnosis of ehlers danlos syndrome? What are the treatment options for this?

Not many: There are no specific treatments. Options such as pain meds or splinting are reserved for severe cases. ...Read more

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Can ehlers-danlos syndrome get worse?

Can ehlers-danlos syndrome get worse?

Yes it can: Because of the tendom laxicity, joints may not be as stable as normal joints. That can lead to increased risk of osteoarthritis particularly in larger joints such as the shoulder, hips, and knees. There may also be complications of chronic joint dislocation and chronic pain. The disease itself should not lead to any specific inflammatory diseases such as lupus or ra. ...Read more

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How does ehlers-danlos syndrome affect lifestyle?

Skin and Joints: Affects mostly the skin and joints but also the cardio-vascular system (e.g. Heart and large vessels). ...Read more

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What sort of disorder is ehlers-danlos syndrome (e.D.S.)?

What sort of disorder is ehlers-danlos syndrome (e.D.S.)?

Skin/joints stretch: In this disorder there is a deficiency of collagen in the body. Problems include skin hyperelasticity (very stretchy) and joint hypermobility ("double jointed"). Also those people affected have fragile skin and blood vessels. There are 6 forms of ehlers-danlos syndrome. ...Read more

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Is it possible to have symptoms from several types of ehlers-danlos syndrome?

Usually - one type: There are a variety of types as you note and most of the time this is the benign hypermobility type. It is genetic and you may have relatives also wiht it. Each type can have a variety of manifesations and so people with the same type can have different symptoms. Exercise is an improtant stabilizer and you need to be doing this. ...Read more

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Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.

Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.

ED Syndrome: This syndrome can have multiple symptoms, it is a connective tissue disorder which makes your skin and joints very flexible and somewhat weak. The vascular type is more worrysome, since it can cause dilatations of blood vessels that could eventually rupture. You should have a complete work up at a referral hospital and a local doctor should be able to control you according to your specific case. ...Read more

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What genes are related to ehlers-danlos syndrome, vascular type?

What genes are related to ehlers-danlos syndrome, vascular type?

Collagen 3: The vascular type of eds is due to dysfunction or deficiency of the type 3 collagen. The specific gene is called col3a1. ...Read more

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Can you have ehlers-danlos syndrome without a parent knowing it?

Ehler danlos syndrom: It is possible if parents have not been told about the diagnosis or the diagnosed was missed. ...Read more

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Would Ehlers-Danlos syndrome cause an elevated ANA? Titre 1:640.

Would Ehlers-Danlos syndrome cause an elevated ANA? Titre 1:640.

NOT: Generally..... this syndrome is inherited whereas a elevated ANA indicates an ACQUIRED rheumatic disorder and a complete rheumatological evaluation is indicated!

Hope this is helpful
Dr Z ...Read more

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Is there any pain relief from ehlers danlos syndrome hypermobility?

Difficult problem: Because of vascular bleeding it is difficult to give you a definitive answer. You are better off going to a pain clinic preferably at a teaching hospital where they can taylor make a pain medicine cocktail for you, since they would have more experience with your type of problem. ...Read more

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Any relation between Ehlers Danlos Syndrome and gastric telangiectasias?

Ehlers Danlos: This type of EDS is the result of mutations in type III collagen which is abundant in major blood vessels, skin, and hollow viscera. Diagnosis is based on presence of two of the following: thin, translucent skin, arterial/intestinal/uterine rupture, easy bruisability, and facial features. ...Read more

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I am inquiring if you are familiar with Ehlers Danlos syndrome and the implications for pain and pain management. If so I would like to consult you.?

I am inquiring if you are familiar with Ehlers Danlos syndrome and the implications for pain and pain management. If so I would like to consult you.?

Ehlers danlos: I can try to help guide you as much as I can, pain management is not so easy in this syndrome, you can consult me later on today. Www. Healthtap. Com/volkantuzcu ...Read more

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Ehlers danlos syndrome and fatigue, how are these related?

Ehlers danlos syndrome and fatigue, how are these related?

Depends: It depends on the type of Ehler-Danlos. Some can involve the heart and blood vessels, with mitral valve prolapse, aortic aneurysm and mid-sized arteries, the gastrointestinal tract, the skin and other organs. Proper examinations can give information regarding fatigue
and other symptoms. ...Read more

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Are headaches and migraine related to ehlers-danlos syndrome?

See Neurologist: I don't know of a association in general but in vascular eds. There is a tendency for blood vessels to burst. You need to see your doctor to see if you might have this involvement from eds. Anyone with eds can garden variety migraines but you need to get the headaches checked out. ...Read more

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How can I manage my skin from affects of lupus and ehlers danlos syndrome?

Lupus Management: Only a dermatologist or rheumatologist can manage lupus and ehlers-danlos syndrome. Seek one out. . . Do it soon! ...Read more

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If I have Ehlers- Danlos syndrome, what should I use to stabilize my joints?

Individualize: Ehlers-Danlos ranges from trivial to very serious. If you need to ask, see about getting with a physician who specializes in rehab medicine, braces and so forth and learn about the field and decide what's right. ...Read more

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Can you have ehlers-danlos syndrome without a parent knowing they having it? Anonymous donor child.

Absolutely: This condition often occurs without the patients knowledge. Because there are may differents patterns of this problem from mild to severe. ...Read more

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Could straightening of the cervical lordosis and anterolesthesis be associated with ehlers-danlos syndrome?

Maybe: Ehlers-danlos is a complex genetic disease that affects joints and tissues that use cartilage - like blood vessels. I would discuss your concerns with your MD as I don't know what your risks are for this condition.

http://www. Medicinenet. Com/ehlers-danlos_syndrome/article. Htm ...Read more

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I would like advice on ehlers danlos syndrome and chronic pain I have so much pain I am finding it hard not to think of killing myself I can't cope!

I would like advice on ehlers danlos syndrome and chronic pain I have so much pain I am finding it hard not to think of killing myself I can't cope!

Ehlers-Danlos syndro: If over-the-counter pain relievers — such as Ibuprofen (advil, Motrin ib, others) and Naproxen (aleve) — aren't enough, your doctor may prescribe stronger medications for your joint or muscle pain.Have your doc help with keeping your blood pressure low. Exercises to strengthen the muscles around a joint can help stabilize the joint. There are specific braces avail to help prevent joint dislocations. ...Read more

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If I happened to have thin, translucent skin that was caused by vascular Ehlers-Danlos syndrome, would my skin have been that way since I was a child?

May occur: The thin skin is part of Ehlers-Danlos. It is called cutest Lexus. However as we mature there can be increased thinning. Part of it also depends on the type of Ehlers-Danlos you as there are many genetics subtypes ...Read more

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I have a rheumatologist. In Ontario Canada there are few rheumatologists that can even spell Ehlers Danlos syndrome. What kind of Dr should I look for?

A few different docs: Medical genetics physician may be helpful in diagnosis if there is concern about an EDS type other than type 3. A physical medicine and rehabilitation physician would be best and helping to coordinate a plan for functional recovery. A rheumatologist would be helpful to look for other causes of joint pain such as an inflammatory disorder. ...Read more