Doctor insights on:
Acoustic Neuroma Neurofibromatosis
Hearing tests: Almost all acoustic neuromas are associated with hearing loss, but other neurological signs may be found on exam, including problems with gait, facial sensation, and double vision. Diagnosis can be confirmed, or excluded, by careful MRI films of the base of the brain. ...Read moreSee 1 more doctor answer
Balance nerve tumor: "acoustic neuroma" is actually a double misnomer: it is neither from the acoustic nerve nor is it a neuroma. It is actually a vestibular schwannoma: a benign tumor of the schwan cells (cells that wrap around and insulate nerves), not of the nerve itself, that grows off of / around the vestibular nerve, the nerve for balance, rather than the acoustic nerve or nerve of hearing. ...Read moreSee 1 more doctor answer
3 major types: (nf 1 consists of two or more neurofibromas on or under the skin, or one plexiform neurofibroma, café au lait spots (pigmented, light brown macules, freckles of armpit and groin, lisch nodules (hamartomas of iris), optic nerve gliomas and skeletal deformities. Nf2 centrla nf with bilateral acoustic neuromas(balance, hearing, ringing ears) .Nf3 schwannomas develop cranial, spinal and peripheral nerves. ...Read moreSee 1 more doctor answer
I'm worried about unilateral tinnitus. I know acoustic neuroma often causes this, but how common is acoustic neuroma among people w/unilat tinnitus?
Yes: Neurofibromatosis type 1 and type 2 are both hereditary diseases. Malignant tumors like sarcomas are a rare complication of neurofibromatosis. The technical name given to these are "malignant peripheral nerve sheath tumors, " and these are a type of sarcoma. Here's a link to a free full text article on the subject: http://theoncologist.Alphamedpress.Org/content/5/6/477.Full. ...Read more
Acoustic Neuroma regrowth. I had a 3.5cm Acoustic Neuroma removed 3 years ago by Translab. Wondering what chances of regrowth are.
Low: Unilateral sporadic acoustic neuromas have a very low recurrence rate after removal. Studies show it is about 0.2%. ...Read more
Large neurofibroma: Plexiform neurofibromas are large extensive tumors that grow from nerves anywhere in the body. Unlike cutaneous neurofibromas, plexiform neurofibromas are often found in young children, sometimes even present around the time of birth. Rarely they can become malignant.Plexiform neurofibromas may be located around the eye socket, face, arm, leg, back, chest, or abdomen. ...Read moreSee 1 more doctor answer
Had benign neuroma removed, pituitary microadenoma, now diagnosis with giant cell bone tumor--can there be a link here?
Pituitary adenoma: There is no known link between pituitary adenomas and giant cell bone tumors. Both are generally benign tumors. Close follow up with a neurosurgeon who specializes in pituitary surgery and an orthopedic surgeon who specializes in bone tumors is essential for both tumor types. Sorry for your difficulties. All the best to you. ...Read more
The symptoms of Acoustic neuroma include:: Difficulty swallowing, Double vision, Facial muscle weakness, Facial numbness, Headache, Hearing loss, Hydrocephalus, Nystagmus, Papilledema, Raised intracranial pressure, Ringing in ears, Vertigo, Loss of balance, Gait instability, Diminished taste. ...Read more
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