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Doctor insights on: Acetazolamide And Iih

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Dr. Barbara Hurlbert
343 Doctors shared insights

Pseudotumor Cerebri (Definition)

A condition in which the pressure inside your skull increases when there is no obvious cause. Although symptoms may resemble those of a brain tumor, there is no actual tumor present. The condition occurs more commonly in obese women, especially those ...Read more


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I have IIH, started 500mg Diamox (acetazolamide). started to help for 4 weeks, but now SX have come back, I think I need more than 500mg. What's normal dose for iih?

I have IIH, started 500mg Diamox (acetazolamide). started to help for 4 weeks, but now SX have come back, I think I need more than 500mg. What's normal dose for iih?

Higher doses: You can be on much higher doses; however, most start to complain of side effects at those doses. If you have papilledema (swollen optic nerves) your doctors may insist on higher doses despite side effects. ...Read more

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Does taking Acetazolamide really help to treat papilledima IIH and what is the best treatment for it?

Does taking Acetazolamide really help to treat papilledima IIH and what is the best treatment for it?

Yes.: This does help intracranial hypertension. Whether it is the best method or not, depends on the cause. See a neurologist if you have not already. If you would like a second opinion, that is always a good plan. You may gt a second opinion with a virtual consult with several neurologists on Healthtap Concierge. Be sure to have lab reports and scan results available-you can upload medical records. ...Read more

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I take 1000 mg Diamox (acetazolamide) BID for Pseudotumor Cerebri same dose for 6 months. Tonight I only had 750 mg left. I took it but should I expect any problems?

Possible headache: With the lower dose you may experience a return of symptoms. You should get your prescription refilled tonight either through your doctor or via live consult here on Health Tap. ...Read more

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I have pseudotumor cerebri. I take 500mg Diamox (acetazolamide) daily. I also get migraines. Is this a separate problem or do the conditions aggravate eachother?

I have pseudotumor cerebri. I take 500mg Diamox (acetazolamide) daily. I also get migraines. Is this a separate problem or do the conditions aggravate eachother?

Headaches: Pseudotumor cerebri is condition where there is increased pressure around your brain. Both pseudotumor and migraine can cause severe headaches so it is very possible that they are exacerbating each other ...Read more

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How successful is weight loss for IIH? I’ve had it for 3 years now. Diamox helped papilodema but not pressure. 87kg 170 female. Will weight loss work?

How successful is weight loss for IIH? I’ve had it for 3 years now. Diamox helped papilodema but not pressure. 87kg 170 female. Will weight loss work?

Weight loss helps: Your body mass index is 30, which is above normal. Weight loss is an important strategy among obese patients with idiopathic intracranial hypertension. Lower weight is associated with decreased risk of severe visual loss. Weight loss is associated with improvement in marked papilledema, and a discontinuation of treatment that is probably related to overall improvement. ...Read more

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I have ptc aka iih. Was on Diamox 1250 and Lasix (furosemide) 80 quit working. Now since sept '11 I have 2 failed vp, 1 failed LP shunt wants to do vp again? Sugg?

I have ptc aka iih. Was on Diamox 1250 and Lasix (furosemide) 80 quit working. Now since sept '11 I have 2 failed vp, 1 failed LP shunt wants to do vp again? Sugg?

Optic nerve: You can also see a neuro-opthalmologist and try optic nerve fenestration if your vision is a problem. Weight reduction surgery should be considered also if that is relevant. ...Read more

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Is there a cure for IIH papilledema? I am taking acetazolamide and have done lumbar puncture once but I'm terribly afraid of losing my eyesight.

Is there a cure for IIH papilledema? I am taking acetazolamide and have done lumbar puncture once but I'm terribly afraid of losing my eyesight.

VP shunt: If your eye sight is getting worse even on acetazilamide, then next step is VP shunt by neurosurgeon. Consult to your eye doctor regularly i. E. Twice a year for your eye sight exam and evaluation of papilledema. If your headache is not controlled on high dose acetazolamide, the next step is VP Shunt. Talk to your doctor about it. ...Read more

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Taking 2g Diamox a day for IIH or BIH. Could this be the cause of tingling AND WEAKNESS in both legs today?

Taking 2g Diamox a day for IIH or BIH. Could this be the cause of tingling AND WEAKNESS in both legs today?

Yes: Tingling is common with the medication. Some will insist you take it anyways depending on your vision and what your optic nerve look like ...Read more

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Why does Diamox (acetazolamide) causing ringing in my ears? My pressure is normal from iih and have no headaches or papilledima.

Why does Diamox (acetazolamide) causing ringing in my ears? My pressure is normal from iih and have no headaches or papilledima.

Side effect: Ringing in the ears (tinnitus) is an infrequent side effect of diamox (acetazolamide). Discuss this with your treating physician to see if your dose can be lowered. I presume you are taking it for idiopathic intracranial hypertension, in which your brain fluid pressure (CSF) was elevated, ; now you report it's back to normal. That's great. Your physician will decide on the safest tapering dose for you. ...Read more

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daignosed with IIH my neurologist told me my papilledema is gone for now due to high dose of acetazolamide. Does pregnancy make the condition return?

daignosed with IIH my neurologist told me my papilledema is gone for now due to high dose of acetazolamide. Does pregnancy make the condition return?

Pregnancy does: Worsen IIH. There is no substitute for your spouse's & your discussing your possible clinical course during a pregnancy with your neurologist, OB/GYN & other members of your health care team. If you choose to read a clinical article on this before your consultations, www. Ncbi. Nlm. Nih. Gov/pmc/articles/PMC1681692/, please do not base your decision about attempting pregnancy on that alone. ...Read more

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Have IIH, taking Acetazolamide for 2+months. Been slowly breaking out with zits all over body. Take long time to heal. Some just red bumps, some hurt.

Acne not common: Acne is not a common side effect of acetazolamide. It can a potentially dangerous skin reaction, hives, or rash, along with many other side effects. There are many other reasons for acne that include diet, hormones, and other medications. See your physician for evaluation if you're concerned. Http://www. Nlm. Nih. Gov/medlineplus/druginfo/meds/a682756.html ...Read more

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MRI showed Non-spec narrowing of dural venous. I've got IIH symptoms of tinnitus/neausea/headache, vision loss. OponLP is low but done while on diamox (acetazolamide)?

MRI showed Non-spec narrowing of dural venous. I've got IIH symptoms of tinnitus/neausea/headache, vision loss. OponLP is low but done while on diamox (acetazolamide)?

Alternate diagnosis.: Http://www. Ncbi. Nlm. Nih. Gov/pubmed/22644164. Sinus venous stenosis-associated IIH is much more prevalent than believed in the general population & can run without symptoms or signs of raised intracranial pressure in most of individuals affected; also, sinus venous stenosis is a very sensitive, specific, common, & modifiable predictor of IIH & chronic headaches. ...Read more

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I have idiopathic intracranial hypertension, taking diamox (acetazolamide). How can I help relieve the pressure naturally? Herbs, foods, drinks, meds?

I have idiopathic intracranial hypertension, taking diamox (acetazolamide). How can I help relieve the pressure naturally? Herbs, foods, drinks, meds?

Weight loss: I am not sure if herbals exist out there to fight pseudotumor. However, given the high association with obesity, weight loss is thought to help significantly. Also, all patients with the diagnosis of "pseudotumor" should get an MRI to look at the veins draining the brain to make sure a blockage isn't causing the symptoms. ...Read more

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I have pseudotumor cerebri and lupus. Is it ok to do Bikram yoga? I'm on acetazolamide and plaquenil (hydroxychloroquine)

I have pseudotumor cerebri and lupus. Is it ok to do Bikram yoga? I'm on acetazolamide and plaquenil (hydroxychloroquine)

Ask your MD: Bikram yoga has 26 positions with some a little extreme considering the effort involved. I would print them out and show to your Doctor before enrolling. ...Read more

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Can't lower 1, 000 mg daily acetazolamide despite acidosis due to pseudotumor cerebri / chiari I & lack of insurance for shunt. Suggestions?

Can't lower 1, 000 mg daily acetazolamide despite acidosis due to pseudotumor cerebri / chiari I & lack of insurance for shunt. Suggestions?

CONSIDER GYCEROL: Although glycerol is not commonly used, may be an alternative choice if minimal GI rxtns. Another approach is serial lumbar punctures to remove regular amounts of spinal fluid. ...Read more

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I started Diamox (bid) for new dx of Idiopathic intracranial hypertension. Can I take my a.m. dose with my levothyroxine and pm dose with metformin XR?

Yes: Generally, it is safe to take these medications together. The metformin and Diamox (acetazolamide) are flagged as potentially interacting down the line with continued use. However, the likelihood of that happening will be kept at a minimum if your prescribing doctors are both aware that you are on both of those medications and if they follow your lab work. ...Read more

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Pseudotumor cerebri diagnosis aug 2012. My headaches have once a month at most, take ibuprofen and 1000mg/day diamox (acetazolamide). Quality of life decreased need help?

Pseudotumor cerebri diagnosis aug 2012. My headaches have once a month at most, take ibuprofen and 1000mg/day diamox (acetazolamide). Quality of life decreased need help?

Need More Info: Need more information. Your current headaches may be unrelated to pseudotumor; need to be examined by a physician to see if there is papiledema. If so, then other therapies will need to be considered. ...Read more

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I take Diamox (acetazolamide) for idiopathic intracranial hypertension. I get numbness around my mouth for an hour after taking it. Is it an allergic reaction?

I take Diamox (acetazolamide) for idiopathic intracranial hypertension. I get numbness around my mouth for an hour after taking it. Is it an allergic reaction?

Probably not: The most common side effect of Diamox (acetazolamide) is numbness and tingling in mucosal tissues which includes around the mouth. Simply a side effect of the medication, not an allergy. ...Read more

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18 year-old female with past pseudotumor cerebri and shunt placement, but now has intractable daily headache, emotional lability, slow cognition.....?

18 year-old female with past pseudotumor cerebri and shunt placement, but now has intractable daily headache, emotional lability, slow cognition.....?

See your Dr: With your history of a shunt and new onset of headaches, lability, and slow cognition, I would recommend that you be seen by a Dr as soon as possible. If you are unable to get hold of your Dr right away, then go to the ER. ...Read more

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46 yr-old woman who 9 years ago started having progressive, dramatic neurological and pain symptoms after an "acute illness", including 50-pound.....?

46 yr-old woman who 9 years ago started having progressive, dramatic neurological and pain symptoms after an "acute illness", including 50-pound.....?

Autoimmune: Post-infectious sequelae can cause a variety of syndromes and symptoms, largely of the autoimmune etiology. CIDP is a possibility. Do you have reflexes? CIDP can be diagnosed with EMG/NCS. Did you have that? There are panels of antibodies associated with not only CIDP but also autoimmune dysautonomia, which is another consideration. Were these panels sent? Mayo has comprehensive panels. For dysautonomia testing, I would recommend tilt table and skin biopsy for small fiber neuropathy. Other considerations include myopathies, which can be metabolic or mitochondrial, and I would recommend EMG as well as possible muscle biopsy. ...Read more

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Diagnosed with idiopathic intracranial hypertension. Mri and ct scan noRmal. Can I take acetazolmide with mobitz type 1 and low hr during sleep.?

Underlying EKG?: The answer depends on the underlying lung & heart conditions. In general, with healthy lungs & heart, acetazolamide is safe. Mobitz type 1 blocks may be due to pulmonary hypertension (high pressures in the lungs) or to other unrelated factors. In the former case, Acetazolamide should be given with caution & you should avoid altitude, as it slows HR. In latter, no problems reported. TTYD or HT Prim ...Read more

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Some docs suspect that I got iih. But doesn't explain me is my oversleep is related to this.?

IIH and hypersomnia: Iih is not directly related to increased sleepiness and tiredness. Medical treatment of iih can cause tiredness, best to check with your doctor. ...Read more

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I have IIH and a history of traumatic LPs. Tomorrow I will be having X-ray guided LP, told this is easier and safer. Is this true? Why?

Could avoid bones: With X-ray guidance, the LP / spinal needle can avoid hitting the vertebral bones that make up the spine. Under skilled hands, they can be avoided even without X-ray images, but given your history, it's probably best to get as much help as possible. While bones are sensitive, the skin houses the most nerves, & so the procedure will probably not be totally pain-free w/o skin anesthesia. Good luck! ...Read more

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When should I be concerned about my IIH Papilledema? Is there a certain sign or set of signs that mean I should see a dr. As soon as possible?

Pseudotumor cerebri: Anything change or loss in vision that you feel is new or significant or worsening of headache should prompt a visit for your ophthalmologist to evaluate with a check of your visual acuity, visual fields and appearance of your optic disks. ...Read more

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Recently diagnosed with IIH, been feeling nauseas and hot, I noticed when looking at thumbnails on phone, parts of the image tremble in center?

Recently diagnosed with IIH, been feeling nauseas and hot, I noticed when looking at thumbnails on phone, parts of the image tremble in center?

Check thyroid: IIH can be caused by thyroid disorder (which can cause tremor as well) heat intolerance and diarrhea can be seen with hyperthyroidism. Make sure BP and HR are in normal range on this combination of meds. Tell the neurologist about your symptoms. ...Read more

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I have IIH. I'm having bad vision issues today. Everything is very blurry. I'm also extremely nauseated - for about the 2 weeks. Dry heaving.?

I have IIH. I'm having bad vision issues today. Everything is very blurry. I'm also extremely nauseated - for about the 2 weeks. Dry heaving.?

See treatment: You should seek treatment from your physician who diagnosed the IIH. There is medical management as well as a therapeutic tap that can be done to relieve your symptoms and you should be evaluated sooner rather than later to preserve vision and prevent further complications. Please seek care as soon as possible. ...Read more

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Have IIH. When reading or writing on my phone, I see white & grey kind of flurries in my peripherals. It makes things look like their fading. Why?

Visual obscurations: If you have the diagnosis of IIH then, funny things in your peripheral & even in central vision are part and parcel of the problem. Visual obscurations are when your vision suddenly goes out which is felt to be from the increased intracranial pressure and its effect on the optic nerve. If you'd like more specific information please look me up at www. Healthtap. Com/drsaghafi and I'll happily help. ...Read more

Dr. Siviero Agazzi
187 Doctors shared insights

Acetazolamide (Definition)

Acetazolamide is a carbonic anhydrase inhibitor which is a kind of water pill or diuretic (heart ...Read more


Dr. Warren Foster
88 Doctors shared insights

Diamox (Definition)

Diamox is a carbonic anhydrase inhibitor which is a kind of water pill or diuretic (heart ...Read more