Doctor insights on:
Unfortunately no: Eb can not be cured as it is a genetic condition. Several trials do occur that are looking at stem cell transplants as a method of increasing skin resistant to shearing forces and have shown promising results. http://www.debra.org/research-trials. ...Read more
Yes: Epidermolysis bullosa has several different types and they differ in their severity. (ebs - eb simplex is the most common). These are all genetic skin fragility syndromes and will require life long wound care which is very expensive. I have some patients with this condition and have helped all of them get ssi assistance for their disease. Good luck. You should not have too much difficulty. ...Read moreSee 1 more doctor answer
Skin disease: It's a congenital skin disease. The skin has two layers the epidermis and the dermis below. In this disease the proteins that anchor the two don't work well so they don't adhere well and detach easily. This results in blistering and chronic erosions. There are different types some more serious than others. Here is a link to learn more: http://www.ebkids.org ...Read more
See below: It is a term that refers to their skin being as fragile as a butterfly's wings. ...Read more
Gene defects: This rare disorder involves the loss of adhesion between top and bottom layers of skin caused by defects in the genes that control their constriction.It comes an dominant and recessive forms with many subtypes.Most involve the type 7 collagen gene. Many labs around the world have studied the problem and record >20k articles on the subject. See www.Ncbi.Nlm.Nih.Gov/gquery. ...Read more
What to do if I discovered a video that have cured a baby with epidermolysis bullosa is is true or is it fake?
Antibiotics maybe: Bullous myringitis was formerly thought to be mainly due to mycoplasma, and so antibiotics such as erythromycins were commonly used. But recent studies imply that the same organisms which cause routine otitis media cause the bullous form as well. Viruses can also cause it. If supportive care alone does not allow it to resolve, antibiotics may be curative. ...Read more
Epidermolysis bullos: The disease can take one of four different forms. Ranging from simple to severe.Basically one tries to diminish blister formation. Once formed they may be opened with a sterile needle and drained. Antibiotic ointment isapplied. Oral antibiotics may also be necessary. Meticulous skin care is also needed. Physical therapy to reduce possible contractures. Rarely steroids are used in severe forms. ...Read moreSee 1 more doctor answer
Myringitis bullosa: Myringitis bullosa is a variation on the common earache/infection (otitis media) in which the germ elicits an inflammatory reaction on the outer surface of the ear drum which causes a large blister. Symptoms are similar to that of an ordinary ear infection, although in some cases the pain is more severe. There are no long term serious complications of this infection. Antibiotics should be taken. ...Read moreSee 1 more doctor answer
Bullous myringitis: The treatment and prognosis for myringitis bullosa are the same as for acute otitis media (aom) without bullae. Management includes symptomatic therapy with pain remedies and treatment with antibiotics versus observation. The signs and symptoms of aom usually resolve in 24 to 72 hours with appropriate antimicrobial therapy, and a bit more slowly in children who do not get antibiotics initially. ...Read more
Clinical appearance.: Epidermolysis bullosa is a group of genetic conditions that cause the skin to be very fragile and to blister easily. There are 4 major types of eb simplex. It is an inherited condition. Blistering is present from birth and tends to improve with age. There is also abnormal nail growth and thickening of the palms and soles. As with most inherited diseases there is no definitive treatment. ...Read more
Revertant Mosaiciam: Revertant mosaicism or natural gene therapy is the somatic reversion of an inherited mutation, thereby partially or completely restoring the phenotype. In eb this phenomenon is visible as clinically healthy patches, surrounded by affected skin. The underlying mechanism of reversion has been investigated in a cohort of nine patients. ...Read more
I have epidermolysis bullosa, and I have a few questions for fellow sufferers or doctors out there?
OK, please ask!: This forum is suitable only for short question/short answer issues that must be general in nature, since no online consultant has the benefit of a detailed history or physical examination. A dermatologist would be the specialist to see for specifics. Please feel free to ask a question that may help you and others! ...Read more
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