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Doctor insights on: Acantholysis Bullosa

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Can epidermolysis bullosa be totally cured?

Can epidermolysis bullosa be totally cured?

Unfortunately no: Eb can not be cured as it is a genetic condition. Several trials do occur that are looking at stem cell transplants as a method of increasing skin resistant to shearing forces and have shown promising results. http://www.debra.org/research-trials. ...Read more

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Is there SSI help with epidermolysis bullosa?

Is there SSI help with epidermolysis bullosa?

Yes: Epidermolysis bullosa has several different types and they differ in their severity. (ebs - eb simplex is the most common). These are all genetic skin fragility syndromes and will require life long wound care which is very expensive. I have some patients with this condition and have helped all of them get ssi assistance for their disease. Good luck. You should not have too much difficulty. ...Read more

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What is epidermolysis bullosa (eb)? What causes it?

Skin disease: It's a congenital skin disease. The skin has two layers the epidermis and the dermis below. In this disease the proteins that anchor the two don't work well so they don't adhere well and detach easily. This results in blistering and chronic erosions. There are different types some more serious than others. Here is a link to learn more: http://www.ebkids.org ...Read more

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How can we help our son with epidermolysis bullosa?

Support Group: Consider joining an epidermolysis bullosa support group where you can learn from other families that cope with this disease. Take care. ...Read more

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Why are kids with epidermis bullosa called butterfly children?

Why are kids with epidermis bullosa called butterfly children?

See below: It is a term that refers to their skin being as fragile as a butterfly's wings. ...Read more

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What is the definition or description of: epidermolysis bullosa?

Much: There are many different types some with blisters some with severe scarring and almost all types are inherited. ...Read more

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How is epidermolysis bullosa caused? What is being done by whom to cure this disease?

Gene defects: This rare disorder involves the loss of adhesion between top and bottom layers of skin caused by defects in the genes that control their constriction.It comes an dominant and recessive forms with many subtypes.Most involve the type 7 collagen gene. Many labs around the world have studied the problem and record >20k articles on the subject. See www.Ncbi.Nlm.Nih.Gov/gquery. ...Read more

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What to do if I discovered a video that have cured a baby with epidermolysis bullosa is is true or is it fake?

Fake: Epidermolysis bullosa is a genetic disease. Unfortunately there is no cure at this time although there is ongoing research. This is one disease where gene therapy may be helpful in the future. Any video claiming to cure this disease is fake and likely a scam to get your money. ...Read more

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How can I treat myringitis bullosa?

How can I treat myringitis bullosa?

Antibiotics maybe: Bullous myringitis was formerly thought to be mainly due to mycoplasma, and so antibiotics such as erythromycins were commonly used. But recent studies imply that the same organisms which cause routine otitis media cause the bullous form as well. Viruses can also cause it. If supportive care alone does not allow it to resolve, antibiotics may be curative. ...Read more