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Doctor insights on: Sarcoidosis

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Dr. Marci Dietrich
857 Doctors shared insights

Sarcoidosis (Overview)

A condition in which nodules form in various organs, including lymph nodes, lungs, eyes, and liver. Common symptoms include cough, chest pain below the breast bone, fatigue, fever, and weight loss.


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What is sarcoidosis?

What is sarcoidosis?

Sarcoidosis: Dear jbennett,
sarcoidosis is a disease of unknown etiology which can affect almost any part of a patient's body. It is known for the granulomas it produces--non-caseating--which can form commonly in the lungs. About 50% of the patients are african or hispanic origin, there is also a large % from northern europe. It has been found that a patient's immune response creates the granulomas.. . ...Read more

Dr. Marci Dietrich
857 Doctors shared insights

Sarcoidosis (Overview)

A condition in which nodules form in various organs, including lymph nodes, lungs, eyes, and liver. Common symptoms include cough, chest pain below the breast bone, fatigue, fever, and weight loss.


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How does sarcoidosis differ from prolactinoma?

How does sarcoidosis differ from prolactinoma?

Almost not: Sarcoidosis is a systemic problem in which the body forms inflammatory granules in a variety of organs. A prolactinoma is a tumor leading to excess production of the hormone prolactin. A few conditions have both problems, but it's rather rare. ...Read more

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What are the symptoms of sarcoidosis?

Possibly none: Symptoms range from completely asymptomatic to a skin rash to shortness of breath. Sarcoidosis can affect about any organ. ...Read more

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Is it possible to have the separate diagnoses of carcinoid syndrome and sarcoidosis at the same time?

Yes: These are two separate diseases. Carcionoid syndrome is flushing and diarrhea associated with a carcinoid tumor and sarcoidosis is a disorder in which the body makes granulomas, typically in e lungs. ...Read more

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Test for sarcoidosis, ACE inhibitor results normal. Does this definitively rule it out?

Test for sarcoidosis, ACE inhibitor results normal. Does this definitively rule it out?

Not definitively: This does not completely rule out sarcoidosis. Work up includes thorough evaluation med history, exam and several tests may be indicated depending on other symptoms. Lesions of sarcoidosis often secrete the ACE enzyme. Not always high. You listed Chest XR as completed. Often ordered. More tests on lungs if needed. Possible biopsy of any lesions such as the rash you listed, if indicated ...Read more

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What are the tests for sarcoidosis?

What are the tests for sarcoidosis?

See below: Tests many times are directed at the symptoms or physical findings. There is a blood test called an ace level which is positive in 2/3 of patients with sarcoid. Chest xray may show abnormalities. Biopsy of enlarged lymph nodes or other organ biopsy such as the lungs may be needed. Some patients will have anemia, increased inflammation markers such as a sed rate or crp. ...Read more

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How do you know if you have sarcoidosis?

Everyone different: Sarcoid can have many different manifestations. Characteristically you can have some of the follwoing: swollen lymph nodes, rashes, lung spots, eye changes, liver changes, skin rashes, etc. Each person is different and the diagnosis is made depending where the granulomas (the sarcoid biopsy inflammatory change) are found and if there is no other cause found. Your doctor can guide you here. ...Read more

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I have a slightly elevated angiotensin conv. Enzyme the cut off was 53 and I was 64. Does this mean I have sarcoidosis? And is that a fatal illness?

See below: Sarcoidosis can be such a mild disorder that no treatment is needed or can be life-threatening. Most of the time simple treatments - not steroids - will control the disease. Workup for underlying causes/mimics is essential. Ace levels are meaningful only related to clinical symptoms. Rheumatologist should provide clarification. ...Read more

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Is sarcoidosis pancreatitis treatable?

Yes: Most cases resolve sporadically or with steroids. Very rare to get sarcoidosis there. ...Read more

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How to doctors treat sarcoidosis?

Most often we don't: But in cases where the sarcoid causes symptoms that don't go away on their own, or when organ damage is severe, or imminent, then steroids are the first step. Long term we try to get off steroids and use other drugs like methotrexate, Hydroxychloroquine ("plaquenil") and several others that are used less commonly. ...Read more

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How long does the treatment of sarcoidosis take?

See below: How long does it take for what? To get better? No way to know. Or are you meaning do you have to take it life long? Often yes, although some people do get better. ...Read more

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What are the treatments for sarcoidosis?

There are several...: Prednisone is the usual first line therapy. If that doesn't control symptoms, then methotrexate or azothioprine can be tried. Acthar is another very expensive drug that seems to have a very good effect. ...Read more

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Where can I get the best treatment for sarcoidosis?

Pulmonologist: Since most sarcoidosis starts or involves the lungs, pulmonary medicine specialists are the most common treating physicians. However, immunologists and rheumatologists can also be effective providers. Since so many organs can be involved by sarcoidosis, many different specialists can be required for management. ...Read more

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Dear dr, I am taking prednisone for my sarcoidosis in my eyes and my shoulder but now I put on weight is there any other tablet our their?

Dear dr, I am taking prednisone for my sarcoidosis in my eyes and my shoulder but now I put on weight is there any other tablet our their?

NO: There's no substitute for Prednisone and yes, weight gain is a known side effect. The side effects are dose related. Your doctor can help you taper to the smallest effective dose and that may help. Good luck! ...Read more

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What happend if I refused to take any meds for my sarcoidosis? It will gets worst? Or will be the same? I really don't want to take anything.

Can not comment: We can not comment without knowing details of your condition.Sarcoidosis can be asymptomatic to affecting one or more bodily organs. If your doctors have prescribed the meds, and you did not say what meds have been prescribed
by not following your doctors treatment you are taking a big risk and it can do serious damage to your body
so talk to your doctors and follow their advice. ...Read more

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Is sarcoidosis a genetic disease? Will my children get it?

Is sarcoidosis a genetic disease? Will my children get it?

Family sarcoid: It is not likely that you would give your children sarcoid, however your inherited immune system may make it more likely.
The statistics show about a 16%increase of sarcoid in family. Sarcoid has an unknown cause. Some ideas have been, bacteria in the environment-but scientists have not isolated it; or chemicals in the environment-more common on rural areas, fields/ farmers, health care, & teachers. ...Read more

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My dad also have sarcoidosis and now need to get oporetion for prostate cancer. Is the oporetion and the anaeathesia risking person with sarcoidosis?

Lung function: The magnitude of risk depends on the degree of activity of sarcoidosis and his current lung function. If it is dormant and his lung function is normal, there should be no additional risk. If his lung function is severely compromised anesthesia could be very risky. His doctor is the best judge. ...Read more

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Hi I was seeing all these checklists and one I didn't see was for sarcoidosis I wonder if any of you doctors had thought about doing one this?

All systems.: A list of common symptoms and systems affected in patients with sarcoidosis is difficult because it can affect every system and be different in each patient. The most commonly affected systems are the skin, the eyes and the lungs. The disease is rarely fatal unless the heart is involved. Treatment depends on which systems are affected and usually by a specialist. ...Read more

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What is sarcoidosis?

Sarcoidosis: Dear jbennett,
sarcoidosis is a disease of unknown etiology which can affect almost any part of a patient's body. It is known for the granulomas it produces--non-caseating--which can form commonly in the lungs. About 50% of the patients are african or hispanic origin, there is also a large % from northern europe. It has been found that a patient's immune response creates the granulomas.. . ...Read more

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How can we treat sarcoidosis?

There are: There are a variety of immunosuppressive treatments to treat sarcoidosis, but Prednisone is the mainstay of therapy. ...Read more

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How do you end up with sarcoidosis?

Not predictable: This disease occurs spontaneously, but higher incidence if you have a relative with it, or if black or scandinavian background. Often involves lung and lymph nodes but may affect many other organs including eyes, skin and kidney. Mild diseases may resolve spontaneously, but some require specific treatment depending on extent and location. ...Read more

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What are the tests for sarcoidosis?

See below: Tests many times are directed at the symptoms or physical findings. There is a blood test called an ace level which is positive in 2/3 of patients with sarcoid. Chest xray may show abnormalities. Biopsy of enlarged lymph nodes or other organ biopsy such as the lungs may be needed. Some patients will have anemia, increased inflammation markers such as a sed rate or crp. ...Read more

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Is exercise good for my sarcoidosis?

Probably yes: Sarcoidosis is a multisystem disease with unknown cause some of time the lungs are affected negatively a lung specialist would evaluate you and determine the extent of your lung involvement. Also, in some rare cases there can be heart involvement-perhaps irregular heart beats. A cardiologist would need to evaluate you in that case if you are affected by aches, pains and given the o-k--exercise helps. ...Read more