A 48-year-old member asked:
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i was diagnosed with neurosarcoidosis after a ct scan. also bronchioscope, no confirm. i believe cauda equina. how to test for this? 2 yrs with this.

2 doctor answers
Dr. Jack Mutnick
17 years experience Allergy and Immunology
Help: Get into a neurologist who specializes in your condition(s)! it might take a bit of research and phone calls to find the right neurologist to help you, but it is better than just seeing a doctor, not getting any answers, then receiving a large bill in the mail.
Answered on Nov 26, 2013
Dr. Steven Machtinger
44 years experience Allergy and Immunology
2nd opinion time: Neurosarcoidosis is a complication of sarcoidosis. Sarcoidosis almost always begins with lung involvement. You said you had bronchoscopy. Did you have a chest ct scan to rule-out lung involvement? You should. For diagnosis of neurosarcoidosis a ct scan showing a lesion of the cauda equina is inadequate. You should at least have a spinal tap & probably a brain & spine MRI scans. Good luck.
Answered on May 16, 2019
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A 48-year-old member asked:
Dr. William Walsh
17 years experience Addiction Medicine
Possible - but: I am presuming that there is biopsy evidence for the disease; if you have seen a pulmonologist, a neurologist, and/or a rheumatologist i would seek im ... Read More
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A 39-year-old member asked:
Dr. Martin Tamler
33 years experience Physical Medicine and Rehabilitation
Cauda equina: An MRI would be better.
A 31-year-old member asked:
Dr. Kenneth Liu
20 years experience Neurosurgery
MRI is better.: If you are looking for problems with your cauda equina, an MRI would provide more information. Visit your physician if you are concerned.
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A 27-year-old male asked:
Dr. James Lin
A Verified Doctor answered
A US doctor answered Learn more
See the ENT...: The most reasonable steps to take are: collect the detailed symptoms over time and go to see the ENT doctor for reassessment and counseling. To get al ... Read More

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