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A 39-year-old member asked:

what is primary ciliary dyskinesia?

1 doctor answer2 doctors weighed in
Dr. Khurram Rehman
Fertility Medicine 26 years experience
Cilia don't work ...: Primary ciliary dyskinesia is a disorder of cilia (moving hair-like structures on the surface of cells) causing chronic respiratory tract infections, sometimes abnormally positioned internal organs, and sometimes difficulty having children (infertility). Men with sperm that don't swim can be treated with icsi; women may have abnormal function of their fallopian tubes. http://1.usa.gov/u4tuug.

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A 34-year-old member asked:

Anyone out there treat primary ciliary dyskinesia?

1 doctor answer2 doctors weighed in
Dr. Brian Bezack
Pediatric Pulmonology 18 years experience
Pulmonologist: Your best bet on getting treatment is to find a pulmonologist at a tertiary care center who has experience with treating this disorder.
A 41-year-old member asked:

Primary ciliary dyskinesia sounds scarey. What is it?

1 doctor answer2 doctors weighed in
Dr. Brian Bezack
Pediatric Pulmonology 18 years experience
Gentetic Disorder: Pcd is a genetic disorder. The cilia are tiny hair-like structures that line the airways and help to clear mucus and other debris. Cilia are also present in the nose, sinuses, and parts of the upper airway. With this disorder, the cilia do not function properly and patients are predisposed to chronic ear, lung, & sinus infections.
A 39-year-old member asked:

Does anyone have cure for primary ciliary dyskinesia?

1 doctor answer3 doctors weighed in
Dr. Brian Bezack
Pediatric Pulmonology 18 years experience
No: This is a genetic disorder and there is no cure at this time. The treatments available all target trying to prevent infection from by the dysfunctional cilia.
A 33-year-old member asked:

Anyone treated primary ciliary dyskinesia (pcd)?

1 doctor answer1 doctor weighed in
Dr. Lokesh Guglani
Pediatric Pulmonology 21 years experience
Pulmonologists do: Pcd is diagnosed in both children & adults & they should be followed by a pediatric or adult pulmonologist who can help monitor their lung function & provide specific therapies to prevent lung damage in the long term. Most tertiary care centers would have either an adult or pediatric pulmonologist who has expertise in the management of patients with pcd. Talk to your doctor & see a lung specialist.
A 38-year-old member asked:

What exactly is primary ciliary dyskinesia?

1 doctor answer3 doctors weighed in
Dr. Khurram Rehman
Fertility Medicine 26 years experience
Cilia don't work ...: Primary ciliary dyskinesia is a disorder of cilia (moving hair-like structures on the surface of cells) causing chronic respiratory tract infections, sometimes abnormally positioned internal organs, and sometimes difficulty having children (infertility). Men with sperm that don't swim can be treated with icsi; women may have abnormal function of their fallopian tubes. http://1.usa.gov/u4tuug.

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Last updated Dec 9, 2013

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