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A 37-year-old member asked:

How long can someone with neurofibromatosis type 2 live?

2 doctor answers7 doctors weighed in
Dr. James Goodrich
Neurosurgery 39 years experience
Neurofibromatosis: It depends on how severely affected the patient is with the disorder. The earlier the diagnosis and the most number of lesions and location (particularly in the spine and brain) diagnosed can affect how long someone will live. In my practice I have adults doing well in the midlife yet have lost patients to the disorder as teenagers so it is very variable.
Dr. Gerald Mandell
Nuclear Medicine 52 years experience
50-60 yrs usually: Life expectancy of individuals with NF2 lower than the average person.Lower mortality number is the results of issues that arise as tumors grow within the brain and along the spine. As tumors grow; the brain, nerves and muscles weaken,affecting the whole body along the way. Recovery after treatments from brain and spine tumors becomes harder and harder, as some individuals with many surgeries.

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A 42-year-old member asked:

What is the life expectancy for someone with neurofibromatosis type 2?

2 doctor answers2 doctors weighed in
Dr. Tanya Russo
Pediatrics 25 years experience
Shortened: Life expectancy for people with NF-2 is generally shortened compared to non-affected and NF-1 affected people, but it is also highly dependent on a number of potential conditions, and available treatments. I've added a link that is more comprehensive, and I hope it helps. http://www.ctf.org/pdf/brochures/NF2_Info_for_Patients_Families.pdf
A 31-year-old member asked:

Please tell me the life expectancy for someone with neurofibromatosis type 2?

2 doctor answers2 doctors weighed in
Dr. Ellen Altenburg
Pediatrics 31 years experience
Much better: In past the past the average life span of individuals with NF2 was shortened compared to people without NF2. Improvements in diagnosis and management have changed this statistic.I would discuss it with your neurologist since she/he knows the specifics of your condition

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Last updated Dec 6, 2014
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